YOPN
YOPN’s Living Well Starts Here
Real, in-depth conversations about living with Young Onset Parkinson’s Disease (YOPD). Join cohosts Esther, Mel, and Chris as they talk with care partners, healthcare experts, and treatment developers to better understand this neurodegenerative disease and those living with it. Brought to you by the Young Onset Parkinson’s Network of PMD Alliance
Where to listen?
Podcasts in the app Replaio Radio Coming soonPodcasts are coming to the app soon. Install now and be the first to see a whole new take on podcasts
Episodes
Non runner Kamal Julka trains for 5 weeks and completes the NYC Marathon 27.02.2023 45:23
Welcome to this week's episode of "The YOPN: Living well starts here Podcast", where we share the inspiring stories of people who have overcome incredible challenges and achieved what was thought to be impossible. Today, we bring you the incredible story of Kamal Julka. Kamal Julka was diagnosed with epilepsy over 10 years ago, and just when she thought that was enough to deal with, she was diag...
Koren Snow takes on Parkinson’s through exercise and attitude 21.02.2023 47:45
Hello and welcome to today's podcast! Today, we have the privilege of introducing you to an incredible individual who embodies resilience, determination, and inspiration. Despite facing the challenges of Parkinson's disease, she has continued to shine and uplift those around her with her infectious personality. Koren Snow is that person who, no matter the situation, finds a way to come out of it...
Kat and Ken Hill sell everything to travel the country in an airstream 21.02.2023 47:44
Ladies and gentlemen, welcome to today's episode of our podcast. Today, we have the privilege of speaking with Kat Hill, a Davis Phinney Foundation YOPD Council Leader, who was diagnosed with Parkinson's disease in her mid-40s. Kat's journey with Parkinson's began three years ago when she stopped working due to her diagnosis. It took her a good two to three months to come to terms with the reality...
Mountain Climber trainer Molly Cupka (Donelan) discusses the benefits of indoor Mountain Climbing for Parkinson’s 13.02.2023 41:44
Welcome back to the YOPN podcast! Sponsored by the Young Onset Parkinson's Network (YOPNetwork.org), and radioparkies.com. This episode features Molly Cupka (Donelan), who's passionate about rock climbing and how it can help people living with Parkinson's disease. Molly's movement, Upend Parkinson's (https://www.upendparkinsons.com/), focuses on funding research, educating the climbing community,...
The story of Dianne Bramble ”Genes: The Story of an Accidental Superhero” 13.02.2023 39:10
Join the Young Onset Parkinson's Network (YOPNetwork.org) in celebrating Dianne Goebel Bramble's inspiring story! Dianne's small business, Mind and Body Wellness for You, offers coaching and personal training (mindandbodywellnessforyou.com) . She also sells her beautiful Parkinson's-inspired paintings on Facebook and has authored two books. Check out past podcast episodes on yopn.podbean.com and j...
Tati Mayorga Wolfe discovers ayurvedic holistic medicine 07.02.2023 59:59
Tati Mayorga Wolfe was diagnosed with Young Onset Parkinson's Disease (YOPD) at 31. Now 35 She has fought back from deep depression, and discovered ayurvedic holistic medicine Ayurveda. While the word may be unknown to many, this holistic approach to medicine has been around for over 5,000 years. Ayurveda is the “traditional, ancient Indian system of health science” and known to be one of the olde...
Tati Mayorga Wolfe discovers ayurvedic holistic medicine 07.02.2023 59:59
Tati Mayorga Wolfe was diagnosed with Young Onset Parkinson's Disease (YOPD) at 31. Now 35 She has fought back from deep depression, and discovered ayurvedic holistic medicine Ayurveda. While the word may be unknown to many, this holistic approach to medicine has been around for over 5,000 years. Ayurveda is the “traditional, ancient Indian system of health science” and known to be one of the olde...
Miriam Bram talks about the WPC and shares her story 07.02.2023 54:13
In 2008, Miriam was diagnosed with Young Onset Parkinson’s Disease (YOPD) at the age of 44. She is a Parkinson’s advocate and Ambassador for the 6th World Parkinson Congress (WPC) which will take place in Barcelona July 4-7 2023. As an advocate, she has raised awareness of Parkinson’s disease and fundraises to help speed research for a cure. Check out her blog at https://www.shakingupparkinson...
Call on the Fighter 2 24.01.2023 42:54
"Calling all music lovers! Tune in to the young onset Parkinson's podcast interview episode of 'Call on the Fighter' Part 2 where we sit down with the one and only Richard Gootee. He'll be sharing his incredible story, the inspiration behind his Grammy-winning song "Just Reach Out" for the 80s Christian Rock band Petra. Plus, we'll be getting the inside scoop on "Call on the Fighter" and his new r...
Joni and Sequoia Lowe talk about their song ”Sim Shaky” 13.01.2023 41:57
When a mom with young onset Parkinson's and her son team up, amazing things happen! Checkout the heartwarming story of Joni and Sequoia Lowe and their hit song "Slim Shaky"
ESPN Founder Bill Rasmussen and his new book ”One Giant Leap for Fankind” 23.12.2022 39:52
"Exciting news for sports fans! "One Giant Leap for Fankind," the new book by ESPN founder Bill Rasmussen, has just won the grand prize at the New England book festival. In the book, Bill shares his secrets to staying positive and offers valuable tips for maintaining a positive outlook. Don't miss this opportunity to hear from the man who revolutionized sports broadcasting and get your hands on a...
Michelle Newman C.O.O of the Kirk Gibson Foundation for Parkinson’s 20.12.2022 39:48
Michelle Newman, the Chief Operating Officer of the Kirk Gibson Foundation for Parkinson's, discusses her decision to leave corporate America and join the foundation. She shares her personal connection to Parkinson's disease through her father's experience with the condition, and discusses how he managed his disease. Additionally, she explains the mission and purpose of the Kirk Gibson Foundation...
SEGMENT THREE: DEVELOPING A WELLNESS PLAN TO MANAGE YOUR DIAGNOSIS 07.12.2022 1:03:49
Thanks to Ellen Bookman for taking the lead on this series Special thanks to StanandTeresa Jackson for coming on the show (Part 3) and sourcing great guests for this series. Teresa Jackson is a National Board-Certified Health & Wellness Coach (NBC-HWC), Duke Integrative Medicine Coaching Program, and a Certified Coach— International Coaching Federation who will: Discuss how to take what you h...
Dr. Peter Schmidt talks about Parkinson’s and Covid 29.11.2022 49:36
Dr. Schmidt is active in research, specializing in the intersection between mathematics and medicine, with a special interest in mapping the n-dimensional spaces of clinical data. Schmidt serves as an advisor to several government, industry, and foundation initiatives. He has been involved in several national-scale quality initiatives including with the US National Quality Forum and the Fresco Net...
PMD Alliance and the ALL IN summit 22.11.2022 59:22
In this Episode we spoke with Andrea Merriam, CEO and Anissa Mitchell, LCSW, Chief Program Officer of the PMD Alliance about the ALL IN summit The ALL IN summit was held October 22-25 in Washington DC This national in-person summit gathered community + support group leaders and allies from around the country, convening prospective leaders, newbies, and veterans to connect, collaborate, and embrace...
PART 2: Mental Health: Navigating through Life with Ellen Bookman and Dr. Charles Dent 07.11.2022 52:45
Welcome to Segment 2 of our mental health series Segment 1 included MENTAL HEALTH SYMPTOMS ASSOCIATED WITH A YOPD DIAGNOSIS which can be found here https://twomikespdpodcast.podbean.com/e/maintaining-emotional-health-is-as-important-as-the-medical-management-of-any-chronic-disease-diagnosis/ In segment 2 we discuss a PRIMER ON WAYS TO STAY MENTALLY HEALTHY AS YOU NAVIGATE THOSE THINGS IN LIFE THAT...
Call on the Fighter 31.10.2022 42:55
Call on the Fighter" began as a simple idea...create and offer original music to encourage and inspire "fighters" along their Parkinson's journey. Colleen Bridges, owner, and director of Bridges for Parkinson's found the perfect fit in one of her own fighters, Rich Gootee. Rich, an award-winning singer/songwriter, knows all too well the constant and daily struggles as he was diagnosed with Parkins...
The woman who can smell Parkinson’s 25.10.2022 1:00:16
The woman who can smell Parkinson’s Joy Milne’s husband Les was diagnosed with Parkinson’s at the age of 45. However, it had been 12 years earlier when Joy had first noticed that something was different about him. Joy has a rare condition called hereditary hypersomnia that gives her a heightened sense of smell. When Les was 33, she noticed that he had started to develop an odor, which she describe...
Vestibular Training for Parkinson’s with Sheila Thelen 10.10.2022 37:35
Sheila Thelen, owner of Vestibular Training Services LLC (VTS), is a National/International/Master Figure Skating Coach & Worldwide presenters at International Conferences & Events. (She is a Vestibular GENIUS - working with thousands of athletes & kids & rehabilitation groups throughout the world.) https://vestibulartrainingservices.com/web/index.php?siteid=420&pageid=3356 She's here to talk abou...
Eli Pollard and the WPC in 2023 plus Alison Miller of Supernus Pharmaceuticals 27.09.2022 44:18
Today's guests include Eli Pollard and Alison Miller Elizabeth “Eli” Pollard is the Executive Director of the World Parkinson Coalition (https://www.worldpdcoalition.org/) talks about many subjects including the WPC in 2023 being held in Spain. She also discusses the "Parkinson's Tulip Project" what it's about and how to enter. Travel grants and much more! Alison Miller, Strategic Partnership Mana...
Maintaining emotional health is as important as the medical management of any chronic disease diagnosis 13.09.2022 45:34
Thanks to Ellen Bookman for taking the lead on this series Special thanks to StanandTeresa Jackson for coming on the show (Part 2) and sourcing great guests for this series. Maintaining emotional health is as important as the medical management of any chronic disease diagnosis Monday at 8AM EST on radioparkies.com , we begin a 3-part Mental Wellness series created to educate those diagnosed wi...
John Cullen will not let Parkinson’s define him 06.09.2022 1:00:44
This week on radioparkies.com sponsored by the Young Onset Parkinson's Network ( YOPNetwork.org ) we chat with John Cullen about his documentary. The documentary, “It’s Just Parkinson’s” is an inspiring and emotional look at one man’s journey to live life to the fullest, while living with a disease that has no cure. John Cullen is a 62-year-old man battling Parkinson’s disease with grit, courage,...
Mark Milow helps others with their Parkinson’s diagnosis through social media 29.08.2022 47:33
Mark Milow interacts on social media platforms as #markinthepark21 and shares really informative and fun content while bringing awareness to Parkinson’s Disease. Diagnosed with Parkinson's himself in 2020 during the Covid boom Mark immediately searched for a way to add meaning to his diagnosis and found that meaning through patient advocacy! When he received his diagnosis, there were so many quest...
Darbe Schlosser explains how to break through bradykinesia 04.08.2022 39:10
Darbe Schlosser is the coach, consultant, & creator of the Motorvation System. Motorvation ( https://www.motorvationfoundation.org/ ) provides scholarships for People with Parkinson's to receive fall prevention consulting and coaching. They have administered over 900 hours of training through the Parkinson's Foundation community grant. They are in the process of developing a rehabilitative trainin...
Keri Shaw tells her story about how sobriety helped her manage Parkinson’s 30.07.2022 38:18
About Keri: Dedicated single mama to 2 amazing girls. Keri has had a long career in pharmaceuticals and geeks out reading anything she can that has to do with research and science. Keri is an avid athlete, starting early as a competitive gymnast and later fell in love with all things running. After being diagnosed with young onset Parkinson’s, Keri knew from her prior experience with recovery and...
Similar podcasts
Replaio is not a podcast publisher; show names, artwork and audio belong to their authors and are distributed through public RSS feeds.