Julie Bergfeld

Unstoppable Strides: Navigating Runner's Dystonia

Health EN ↓ 30 episodes

Join Julie and JoJo for information, exploration, stories of hope and real talk related to running with dystonia. Runner’s dystonia is a type of repetitive exercise dystonia that is brought on by running. Some are affected by walking and cycling as well. Dystonias are a class of movement disorders marked by involuntary muscle contractions in one or more parts of the body, depending on the type of dystonia. Runner’s dystonia is considered task-specific, which means that it only occurs when doing a repetitive motion—in this case, the repetitive nature of the running gait cycle. Give us a liste...

Author

Julie Bergfeld

Episodes

Episode 5 - Dealing with Comments and Questions 27.11.2024 34:57

Julie and JoJo discuss how they have managed comments, questions and reactions from other people. If you have comments or questions, we would love to hear. Support the show The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals. You can fin...

The Farias - Dystonia Recovery Program 24.10.2024 31:33

In this episode, we do a deep dive into the Farias Dystonia Recovery Program. Benefits, Drawbacks, Cost, etc. The Dystonia Recovery Program (DRP) is an online platform tailored for individuals with various forms of Dystonia, including Cervical Dystonia, Hand Dystonia, Leg Dystonia, Blepharospasm, Oromandibular Dystonia, Facial Dystonia, Spasmodic Dysphonia, and Musicians’ Focal Dystonia. Develope...

Focal Dystonia in Cyclists 18.09.2024 39:58

In this episode we talk with cyclist Chris Melia about her presentation of Focal Dystonia. Chris is a former runner and now a cyclist who recognized the signs of dystonia in 2021. She relates to us how it presented and how she detected it. Since that time, she has made much progress and this episode details what she has done to move forward. Much of what Chris shares is less about the physical and...

Episode 2: What we've tried, what is working, what didn't 07.08.2024 48:06

In this episode, JoJo and Julie review all of the treatments tired for dystonia, explaining what seems to be working and what didn't work. It's a long list and NOT comprehensive by any means. Keep in mind that this is based on our own needs, tolerances and preferences - and may not work for you. In addition, some things that did not work for us may be working for you. We are all unique i...

Episode 1 - Intentions, Introductions and Why We are Here 09.07.2024 44:56

In this episode, JoJo and Julie describe our intentions for this show and give background information on what is know as Runner's Dystonia, how it presents and why it is so hard to diagnose, much less understand. We briefly share our own personal stories and journeys from initial days of knowing something was "wrong" and how we are leveraging our newly discovered resilience. Our in...