Uncharted Bodies

Content note: parental grief, caregiver burnout, chronic illness, emotional interview. In Episode 4, Nikki K. steps back and hands the mic to the person who has been there through all of it — her mom. In a raw, unfiltered interview, Nikki asks her mother five questions about what it has meant to watch her only daughter navigate a life-changing medical journey — from the first collapse at 18 to the...

Content note: chronic illness, disability, medical system critique. Episode 3 digs into the diagnoses that changed everything — EDS Hypermobile Type, POTS, and MCAS. Patient Advocacy for hidden & invisible diagnoses. Nikki K. breaks down what each condition actually does to the body, why no two patients are the same, and what it means to live with hidden disabilities in a world that only recog...

Content note and Trigger Warning: medical trauma, chronic illness, grief. In Episode 2, Nikki goes deep into the story she's carried for nearly a decade — recurrent, rare, unknown, lung collapses beginning at 18, a 103-day stay at Mayo Clinic, and a rare surgery involving titanium staples and talc powder that saved her life but left more questions than answers. She also opens up about the 2023...

Nikki K. is 27, an EMT, and a rare disease patient — and she's done pretending that's not a complicated thing to be. In this first episode, she shares the story she's never fully told: the diagnoses, the dreams that didn't survive them, and why she built this space for patients and caregivers who are tired of sugarcoating it. Join us on this journey, and if you feel like this as a...