The Understanding ME/CFS Podcast

In this interview, I talk to Prof Klaus With, the man trying to create the world's first approved medication for ME/CFS & Long Covid ( Mitodicure ). 🧠 This 45-minute deep dive explores the groundbreaking research that led to the current development efforts of Mitodicure and Prof. Wirth’s unifying model of ME/CFS — created in collaboration with Prof. Carmen Scheibenbogen. We cover: 🔹 How Mito...

In today's episode I talk to Ray about his story with ME/CFS and serious other health problems, including paralysis from motor axon neuropathy. Initially sick after exposure to a nerve agent, Ray has struggled with debilitating health problems for almost two decades. But how does he stay positive? How does he still try to take personal responsibility for his health? And what message does he have f...

Fleury Simons was severely ill with Long Covid for nearly three years — and is now fully recovered. In this interview, she shares the treatments and strategies that changed her life. After struggling with debilitating symptoms and little hope of improvement, Fleury travelled to the Aviv Clinics in Florida, where she completed 60 sessions of medical-grade hyperbaric oxygen therapy (HBOT). She expla...

From being bedridden to running 5K twice a week —Prof Matthew Robinson’s story shows what recovery from Long Covid, ME/CFS, and POTS can look like. In this interview, Matthew shares how 60 sessions of medical-grade hyperbaric oxygen therapy (HBOT) at Aviv Clinics in Florida transformed his health. Once unable to function for long periods, he is now back to traveling internationally and working as...

In the third episode of the Understanding ME/CFS podcast, I talk to Sarah Warde about her experience of living with ME/CFS. Sarah's has taken an inspiring approach to managing her illness for over two decades, readjusting her life and mindset to still try to find joy, despite having ME/CFS. She is also an author about an ME/CFS book (link below), gives regular talks to IMET (Irish ME Trust) and ha...

In the second episode of the Understanding ME/CFS podcast, I talk to Steve, an ME/CFS & Long Covid patient, who travelled to a German dialysis centre in order to have HELP apheresis (for microclots) and immunoadsorption (for autoantibodies). Steve shares his (initially positive but overall disappointing experience) with these therapies, as well as more about his overall journey.  More about yo...

My story with seven years of ME/CFS, what has helped me so far, my advocacy work, ME/CFS books and plans for this podcast.    All my links: https://linktr.ee/patrickussher All music by Patrick Ussher **Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other hea...