The ResearchWorks Podcast

We're in Maulbronn Germany - at the pre-conference sessions! We catch up with Professor Blank - EACD / IAACD 2025 President and a man giving voice to the international community! Professor Blank has visited a number of countries world-wide onsite in order to hear the international voices on childhood-onset disabilities.  Be sure to visit the m:con Mannheim YouTube channel for the special vide...

We're in Maulbronn Germany - at the pre-conference sessions! We catch up with Professor Bleyenheuft - the Habit-ile story, it's origins and what the future holds! Be sure to visit the m:con Mannheim YouTube channel for the special video-casts we created for the Pre-Conference - all set in the beautiful location of Maulbronn Monastery - a UNESCO world heritage site! The video-casts will b...

We're in Maulbronn Germany - at the pre-conference sessions! We catch up with Professor Ortibus - a conversation centred around CVI (cerebral visual impairment)! Be sure to visit the m:con Mannheim YouTube channel for the special video-casts we created for the Pre-Conference - all set in the beautiful location of Maulbronn Monastery - a UNESCO world heritage site! The video-casts will be avai...

We're in Maulbronn Germany - at the pre-conference sessions! We catch up with Dr Greaves - all about upper limb therapy, unilateral cerebral palsy, bimanual therapy and all things hands-off! Be sure to visit the m:con Mannheim YouTube channel for the special video-casts we created for the Pre-Conference - all set in the beautiful location of Maulbronn Monastery - a UNESCO world heritage site!...

We're in Maulbronn Germany - at the pre-conference sessions! We catch up with Professor Novak - State of the Evidence, traffic lights. A brilliant conversation about her seminal work and the future of stem cells and early intervention. "...i did it myself..." "...whose brain is doing the work?..."  Be sure to visit the m:con Mannheim YouTube channel for the special video-c...

We're in Maulbronn Germany - at the pre-conference sessions! We catch up with Dr Sebastian Schroeder - a look behind the scenes at EACD / IAACD 2025. Dr Schroeder is the Chair of the Scientific Committee for the conference and one of the key personnel behind the combined congress this year. Hearing his heart for the conference was a beautiful insight into the interdisciplinary and collaborati...

Longitudinal trajectory of medial gastrocnemius muscle growth in the first years of life Aim: To define the longitudinal trajectory of gastrocnemius muscle growth in 6- to 36-month-old children with and without spastic cerebral palsy (SCP) and to compare trajectories by levels of gross motor function (Gross Motor Function Classification System, GMFCS) and presumed brain-lesion timing. Method: Twen...

Are we focusing too much on body structures and functions?   Should participation and the F-words—Fun, Family, Friends, Fitness, Function, and Future—be leading the way?   Dr. Ginny Paleg is a pediatric physiotherapist specializing in children with severe motor impairments, particularly those at GMFCS Levels IV and V. She holds a Master’s in Physical Therapy from Emory University and a Doctorate f...

Interrupting normal broadcasting for a quick announcement! The ResearchWorks team are heading to Heidelberg Germany in a few weeks time to interview guests from across Europe and around the globe! From video-casts to audio-casts, it will be a full integration into the conference and we're excited to bring you all the latest in research from Heidelberg - with dozens of interviews! We still hav...

Identifying and Evaluating Young Children with Developmental Central Hypotonia: An Overview of Systematic Reviews and Tools Children with developmental central hypotonia have reduced muscle tone secondary to non-progressive damage to the brain or brainstem. Children may have transient delays, mild or global functional impairments, and the lack of a clear understanding of this diagnosis makes evalu...

Gross Motor Family Report: Refinement and evaluation of psychometric properties Elton D. D. Magalhães , Peter Rosenbaum , Marilyn Wright , F. Virginia Wright , Lesley Pritchard , Kennea M. A. Ayupe , Ana Carolina de Campos , Rosane S. Morais , Hercules R. Leite , Paula S. C. Chagas Abstract Aim To refine the Gross Motor Family Report (GM-FR) using parents' input and to evaluate its psychometr...

Professor Gareth Baynam is a globally recognised clinical geneticist, researcher, and advocate for rare diseases. He is the Director of the Rare Care Centre at Perth Children's Hospital and the Head of the Western Australian Register of Developmental Anomalies.  With a career dedicated to improving the diagnosis, management, and care of individuals with rare and genetic conditions, he has bee...

Spinal manipulation and mobilisation in paediatrics - an international evidence-based position statement for physiotherapists Anita R Gross , Kenneth A Olson , Jan Pool , Annalie Basson , Derek Clewley , Jenifer L Dice , Nikki Milne PMID: 38855972 PMCID: PMC11216248 DOI: 10.1080/10669817.2024.2332026 Abstract Introduction: An international taskforce of clinician-scientists was formed by specialty...

Early Detection and Early Intervention - where are we now (and what does the future hold)? The last time we had Alicia on the pod, we spoke about the Cochrane Review she led titled “Early developmental intervention programmes provided post hospital discharge to prevent motor and cognitive impairment in preterm infants” which was published in 2024. In this week’s episode, we thought we’d ask Alicia...

Implementing Clinical Practice Guidelines for Improving Function in Cerebral Palsy: Development of a Fidelity Tool In this study, the research team developed a 21-item fidelity tool to help clinicians implement evidence-based guidelines for improving function in children with cerebral palsy. Designed for goal setting, intervention, and reflection, the tool was found to be practical and useful but...

Professor Nick Gottardo walks us through medulloblastomas - a comprehensive master class for clinicians and researchers.  Expect to learn about early signs and symptoms, diagnosis, treatment and prognosis. Dr Nick breaks this down beautifully. What was really clear throughout our discussion was that collaboration is key. Given the incidence of medulloblastomas and the specific subtypes that fall w...

All about knowledge translation A special episode with our illustrious hosts before we catch up with Professor Nick Gottardo, Professor Alicia Spittle, Professor Andrew Whitehouse, Dr Gareth Baynam, Assoc. Professor Nikki Milne and Assoc. Clinical Professor Anita Gross amongst many others!

Randomized Comparison Trial of Rehabilitation Very Early for Infants with Congenital Hemiplegia Roslyn N Boyd, Susan Greaves, Jenny Ziviani, Iona Novak, Nadia Badawi, Kerstin Pannek, Catherine Elliott, Margaret Wallen, Catherine Morgan, Jane Valentine, Lisa Findlay, Andrea Guzzetta, Koa Whittingham, Robert S Ware, Simona Fiori, Nathalie L Maitre, Jill Heathcock, Kimberley Scott, Ann-Christin Elias...

Upper Limb Therapy for Infants and Young Children with Unilateral Cerebral Palsy: A Clinical Framework Susan Greaves, Brian Hoare PMID: 39598017 PMCID: PMC11594546 DOI: 10.3390/jcm13226873 Abstract Early detection and rehabilitation interventions are essential to optimise motor function in infants and young children with unilateral cerebral palsy. In this paper we report a clinical framework aimed...

Experiences of participation in daily life of adolescents and young adults with cerebral palsy: A scoping review Stacey L Cleary, Prue E Morgan, Margaret Wallen, Ingrid Honan, Nora Shields, Freya E Munzel, James R Plummer, Cassandra Assaad, Petra Karlsson, Evelyn Culnane, Jacqueline Y Ding, Carlee Holmes, Iain M Dutia, Dinah S Reddihough, Christine Imms PMID: 39673293 DOI: 10.1111/dmcn.16196 Abstr...

To round off 2024 and as an extra special lead-in to a stellar 2025 ahead, we have a holiday special - all about the EACD & IAACD 2025 Conference to be held in Heidelberg Germany! 🇩🇪 It's going to be a very unique conference this year as a combined EACD/IAACD event - so join with Dr Sebastian Schroeder and Dr Rainer Blank as they speak with our very own Dr Dayna Pool! From a behind the sc...

incredible! The team at the ResearchWorks Podcast are celebrating 200 episodes! With over 4 seasons, invited collaborators with the EACD - European Academy of Childhood-onset Disabilities Conference and the AusACPDM - the Australasian Academy of Cerebral Palsy and Developmental Medicine and Transformative Practice Award Winners for 2024, it has been a stellar journey. 🚀 Join us for a brilliant wr...

An incredible episode with Director of Research - Professor Ben Jackson from The Kids Research Institute Australia - a masterful lesson in communication skills. Our role as clinicians involves a whole lot of communication and there are evidence based approaches for how we communicate. This is so important because whilst communication skills are often referred to as 'soft skills', they ar...

Motor optimality score-revised (mos-r) and hammersmith infant neurological examination (hine) predict high likelihood of autism at 12 months corrected age in a developmentally vulnerable infant cohort. Dr Carly Luke is a Physiotherapist and Postdoctoral Research Fellow with the Queensland Cerebral Palsy and Rehabilitation Research Centre, the University of Queensland. Her work across clinical and...

The power of Para sport: the effect of performance-focused swimming training on motor function in adolescents with cerebral palsy and high support needs (GMFCS IV) - a single-case experimental design with 30-month follow-up. Abstract Objective: This study aims to evaluate the effect of a performance-focused swimming programme on motor function in previously untrained adolescents with cerebral pals...