The ResearchWorks Podcast

Abstract This article explores the often-overlooked tragedy of promising happiness through overcoming disability. It draws on qualitative interviews and focus groups with 36 adults with cerebral palsy to explore how medical discourse shapes the ways in which individuals are encouraged to pursue a good life, leading to unintended consequences. Sara Ahmed's theory of happiness is used to unders...

Time toxicity and shared decision-making in cerebral palsy David B Frumberg, Paige T Church, Nathan Rosenberg PMID: 41387091 DOI: 10.1111/dmcn.70123 Abstract Clinicians and families regularly enter into a process of shared decision-making. Seldom, if ever, however, is the critical question of time usage, or, more specifically, time-related burdens, accounted for when establishing goals and outcome...

From Childhood to Adulthood: Lifespan insights into health and health service needs in cerebral palsy Keynote session: Oceania Academy Of Cerebral Palsy And Other Childhood-onset Disabilities

We catch up with Professor Hércules Ribeiro Leite - to discuss his 2024 top-cited DMCN article! What are the barriers and facilitators to participation of people with Down syndrome? A scoping review Deisiane Oliveira Souto , Marina Oliveira de Sousa , Rafaela Guimarães Ferreira , Ana Claudia Brandão , Pedro Brandão Carrera , Hércules Ribeiro Leite Free article Abstract Aim: To determine the barrie...

Longitudinal decline in upper-limb range of motion in adults with cerebral palsy Erika Cloodt , Jenny Hedberg-Graff , Anna Lindgren , Marianne Arner , Evgenia Manousaki , Katina Pettersson , Elisabet Rodby-Bousquet Abstract Aim: To analyse longitudinal changes in passive range of motion (ROM) in the upper limb in adults with cerebral palsy (CP). Method: Passive ROM for shoulder abduction and flexi...

Hip Displacement in Spastic Hemiplegia: Increased Risk with Hip Internal Rotation and Adduction Irrespective of Sagittal Gait Pattern Zhe Yuan , Alexander Aretakis , Chris Church , M Wade Shrader , Freeman Miller , Anuj Gupta , Arianna Trionfo , Jason J Howard Abstract Background: Hip displacement (HD), common in cerebral palsy (CP), is reportedly less prevalent for spastic hemiplegia. Patients wi...

EACD 2026 - Galway, Ireland. "‘Mol an Óige agus Tiocfaidh Siad’​ - Encourage the young and they will flourish​". We catch up with Dr Hazel Killeen President, EACD Annual Congress 2026 Lecturer in Occupational Therapy College of Medicine, Nursing and Health Sciences, University of Galway  and Dr Rory O'Sullivan Scientific Chair, EACD Annual Congress 2026 Head of Strategy & Innova...

Join Dayna and Marissa on an extended episode back, after the Oceania Conference 2026, with the one and only Dr Brian Hoare.  A candid conversation about: More isn’t always better: getting smarter about therapy dosage in children with cerebral palsy. Join us for a wonderful look at why it isn't just about doing more - dosage is far more complex than that and we - as therapists and researchers...

A brilliant conference that has come to a close but we are excited about the implications both for the future and what we can implement into clinical practice today. Dayna and Marissa walk through some of their favourite moments, interviews and the conference. Also... who doesn't like a good acronym? 😉  #REACH R.E.A.C.H. R - Research Priorities & Resource Allocation  E - Early Detection...

We catch up with Dr Joline Brandenburg! An incredible conversation, all about: Developmental Neuromotor Disorders have altered Motor Neuron Morphology and Survival. A continuing series of interviews from Oceania Conference 2026 - live from Hobart, Tasmania, Australia.

We catch up with friend of the show, Dr Theresa Sukal-Moulton! It's our pleasure to speak with her about: Selective motor control changes from term age to 3 months of age in infants both with and without cerebral palsy. A continuing series from Oceania Conference 2026, live from Hobart, Tasmania, Australia.

We have the opportunity to speak to the wonderful Dr Alison Salt and Dr Nofar Ben Itzhak - fellow Perth-ians, but meeting across the other side of our continent!  We get to speak with them both about the European Cerebral Visual Impairment Clinical Practice Guidelines. A continuing series from Oceania Conference 2026, live from Hobart, Tasmania, Australia!

We catch up with Dr Fiona Russo! We're discussing her paper: Four Layers Deep: Co-Designing a Community-Led Online Navigation Program for Families of Young Children with Cerebral Palsy. A continuing series from Oceania Conference 2026 - live from Hobart, Tasmania, Australia.

It's our pleasure to have Anne McNee on the pod - discussing: Evaluating the Effectiveness of Serial Casting for Idiopathic Toe Walking in Children with Autism Spectrum Disorder. A continuing series from Oceania Conference 2026 - live from Hobart, Tasmania, Australia.

We catch up with an old friend - Dr Iain Dutia to discuss all things fatigue. Understanding cognitive fatigue in people with cerebral palsy A continuing series from Oceania Conference 2026 - live from Hobart, Tasmania, Australia.

It's always a privilege to speak with Monica - we have the chance to talk to her about: Hammersmith Infant Neurological Examination findings in infants with hemiplegic cerebral palsy from 3 to 24 months. A continuing series from Oceania Conference 2026 - live from Hobart, Tasmania, Australia!

Validation and Responsiveness of activity limitation testing in framerunning for children and young people with CP. We catch up with friend of the show Dr Reedman and Healthy Strides' Sam King! Validation and Responsiveness of activity limitation testing in framerunning for children and young people with CP.

We catch up with Rachel Byrne - Executive Director at the Cerebral Palsy Foundation. We have the chance to discuss the topic of Scaling Australian clinical breakthroughs into a global CP roadmap. From Australian Advances to a Global Roadmap for Cerebral Palsy A continuing series from the Oceania 2026 Conference, live from Hobart, Tasmania, Australia.

We catch up with Sophia Gribbon from the Healthy Strides Foundation. Kindy Moves - the experience of early, intensive, group based locomotor training (from the parents perspective). A continuing series, live from Oceania Conference 2026, Hobart, Tasmania, Australia.

We catch up with the brilliant Dr Postol to talk about her paper: "Stepping Forward" with overground exoskeletons and "More than Movement" with walking frames. A continuing series from Oceania Conference 2026, live from Hobart, Tasmania, Australia!

We finish off Day 1 of the conference with the dynamic duo of Dr Johan Jarl and Assoc. Professor Ann Alriksson-Schmidt! We have the privilege to talk Dr Jarl and Dr Alriksson-Schmidt about the educational outcomes of adolescents with spina bifida in Sweden. A continuing series of interviews from Oceania Conference 2026, Hobart, Tasmania, Australia.

We catch up with Meredith Smith to talk pain assessments! Pain Assessment in children with in CP: PhD Platform A continuing series from Oceania 2026 Conference - live from Hobart, Tasmania, Australia!

We catch up with Dr Lynne McKinlay - to talk about Hope! Hope can reduce burnout (and what you can do to become more hopeful) A continuing series from Oceania 2026 Conference, live from Hobart, Tasmania, Australia!

We catch up with ResearchWorks own Marissa Smith! Today we discuss the topic of evidence based guideline implementation. Real-World Application of Evidence-Based Guidelines in Paediatric Neurodisability. A continuing series from Oceania Conference 2026 - live from Hobart, Tasmania, Australia!  NB. This episode was pre-recorded at the ResearchWorks studio prior to the conference.

We catch up with friend of the show, Dr Carly Luke! Early identification of Australian First Nations infants at high risk of neurodevelopmental disability or neurodiverse outcomes by 12 months of age. A continuing series from Oceania Conference 2026 - live from Hobart, Tasmania, Australia!