The ResearchWorks Podcast

DIGIT-ALL: RARE DISEASES Rare Diseases - a 2 part special! Rare diseases are increasingly recognised as a global public health priority and contribute to significant and disproportionately high health system impacts. Accordingly, they present clinical and public health challenges, as well as opportunities for digital health solutions across the lifespan, including improved diagnosis, treatment, na...

Changes in walking ability, intellectual disability, and epilepsy in adults with cerebral palsy over 50 years: a population-based follow-up study Ulrica Jonsson , Meta Nyström Eek , Katharina Stibrant Sunnerhagen , Kate Himmelmann PMID: 33772773 DOI: 10.1111/dmcn.14871 Abstract Aim: To determine if walking ability and presence of intellectual disability and epilepsy change from childhood to 50 yea...

A special episode with Kids Rehab's own Research Operations Manager.  Today we highlight the team based approach to modern research - with a focus on project management and tales of research endeavours. With pearls of wisdom that highlight what to look for in making research happen smoothly (and to learn from the missteps that can cause hiccups). As part of the Kids Rehab team at Telethon Kid...

Detection vision development in infants and toddlers with congenital vision disorders and profound-severe visual impairment Alison T Salt , Michelle A O'Reilly , Elena Sakkalou , Naomi J Dale PMID: 32237151 DOI: 10.1111/dmcn.14525 Abstract Aim: To investigate detection vision development in infants and toddlers with congenital disorders of the peripheral visual system (CDPVS) and severe to pr...

Congenital Cytomegalovirus (CMV) and Covid-19. This topic of infectious diseases is a really timely one. Our job as clinicians is face to face with children - we might be at arms length away or we may also be really up close too! This not only presents as a potential spread of an infectious disease, but it is also a point of contact where families might have some questions or potentially may be si...

Gait features of dystonia in cerebral palsy Bhooma R Aravamuthan , Keisuke Ueda , Hanyang Miao , Laura Gilbert , Sarah E Smith , Toni S Pearson Affiliations expand PMID: 33411352 DOI: 10.1111/dmcn.14802 Abstract Aim: To determine the features cited by motor phenotyping experts when identifying dystonia in people with cerebral palsy (CP). Method: Dystonia identification in CP, particularly when com...

Assistive technology products: a position paper from the first global research, innovation, and education on assistive technology (GREAT) summit Abstract This paper is based on work from the Global Research, Innovation, and Education on Assistive Technology (GREAT) Summit that was coordinated by WHO’s Global Cooperation on Assistive Technology (GATE). The purpose of this paper is to describe the n...

The effect of a running training intervention on ankle power generation in children and adolescents with cerebral palsy: A randomized controlled trial Abstract Background: Children and adolescents with cerebral palsy who are classified as Gross Motor Function Classification Scale level I or II are usually able to run but lack ankle power generation for push-off. The aim of this study was to analyz...

A ROUNDTABLE DISCUSSION WITH RESEARCHERS AND CLINICIANS A special Q and A - in conjunction with families and parents This is a unique podcast as we hit pause on our usual program to answer questions that families have been sending us. On the pod this week, we have Marissa Smith (Physiotherapist), Georgia Hoffman (Physiotherapist), Loren West (Occupational Therapist) and Dr Dayna Pool (Physiotherap...

Comparing parent and provider priorities in discussions of early detection and intervention for infants with and at risk of cerebral palsy Rachel Byrne , Andrea Duncan , Tracy Pickar , Stephanie Burkhardt , Roslyn N Boyd , Mary Lauren Neel , Nathalie L Maitre Abstract Background: Although literature suggests that parents need support when their child is diagnosed with cerebral palsy (CP), it is un...

Participation predictors for leisure-time physical activity intervention in children with cerebral palsy Sarah E Reedman , Roslyn N Boyd , Jenny Ziviani , Catherine Elliott , Robert S Ware , Leanne Sakzewski   Abstract Aim: To determine the predictors of magnitude of change in response to a participation-focused leisure-time physical activity intervention in children with cerebral palsy (CP) using...

Somatosensory discrimination impairment in children with hemiplegic cerebral palsy as measured by the sense_assess© kids Belinda McLean , Susan Taylor , Jane Valentine , Leeanne Carey , Ashleigh Thornton , Catherine Elliott PMID: 33738799 DOI: 10.1111/1440-1630.12729 Abstract Introduction: To characterise somatosensory discrimination impairment of the upper-limb across domains of tactile discrimin...

Autism and attention-deficit/hyperactivity disorder in children with cerebral palsy: high prevalence rates in a population-based study Magnus Påhlman , Christopher Gillberg , Kate Himmelmann Abstract Aim: To assess a total population of school-age children with cerebral palsy (CP) for autism and attention-deficit/hyperactivity disorder (ADHD) with a view to determining their prevalence and to rela...

Botulinum toxin and surgical intervention in children and adolescents with cerebral palsy: who, when and why do we treat? Jane Valentine ,  Sue-Anne Davidson , Natasha Bear , Eve Blair , Roslyn Ward , Ashleigh Thornton , Katherine Stannage , Linda Watson , David Forbes , Catherine Elliott   PMID: 31415723 DOI: 10.1080/09638288.2019.1644381 Abstract Introduction: This audit aimed to increase unders...

A realist evaluation of a physical activity participation intervention for children and youth with disabilities: what works, for whom, in what circumstances, and how? C E Willis , S Reid , C Elliott , M Rosenberg , A Nyquist , R Jahnsen , S Girdler Abstract Background: The need to identify strategies that facilitate involvement in physical activity for children and youth with disabilities is recog...

Measuring skeletal muscle morphology and architecture with imaging modalities in children with cerebral palsy: a scoping review Sîan A Williams 1 2 , N Susan Stott 2 3 , Jane Valentine 4 5 , Catherine Elliott 4 6 , Siobhán L Reid 7 Abstract Aim: To investigate the use of ultrasound and magnetic resonance imaging (MRI) methodologies to assess muscle morphology and architecture in children with cere...

24‐hour activity for children with cerebral palsy: a clinical practice guide Olaf Verschuren  Raquel Y Hulst  Jeanine Voorman  Sigrid Pillen  Nicole Luitwieler  Jeroen Dudink  Jan Willem Gorter The association between physical activity and health has been clearly established, and the promotion of physical activity should be viewed as a cost‐effective approach that is universally prescribed as a fi...

Interventions for children on the autism spectrum: A synthesis of research evidence.  There are many interventions available for children on the autism spectrum. Learning about and navigating these interventions can be challenging for families, clinical practitioners, and educators. Autism CRC has completed a report, entitled Interventions for children on the autism spectrum: A synthesis of resear...

Abstract Purpose of review: Cerebral palsy is the most common physical disability of childhood, but the rate is falling, and severity is lessening. We conducted a systematic overview of best available evidence (2012-2019), appraising evidence using GRADE and the Evidence Alert Traffic Light System and then aggregated the new findings with our previous 2013 findings. This article summarises the bes...

Welcome back - it's our second episode! Patterns and reliability of children's skin temperature prior to and during sleep in the home setting Susan M McCabe , Catherine Elliott ,  Katherine Langdon , Chris R Abbiss PMID: 29885918 DOI: 10.1016/j.physbeh.2018.06.005 Abstract The relationship between patterns of change in skin temperature and sleep is well recognised. In particular, there i...

The Pilot episode! Locomotor and robotic assistive gait training for children with cerebral palsy  Dayna Pool, Jane Valentine, Nicholas F Taylor, Natasha Bear, Catherine Elliott https://pubmed.ncbi.nlm.nih.gov/33225442/ Abstract Aim: To determine if robotic assisted gait training (RAGT) using surface muscle electrical stimulation and locomotor training enhances mobility outcomes when compared to l...