The POTScast

Meet Kelley from Maryland, a driven student who loves to read, plays the guitar and has plans to pursue neuroscience so she can study the intersection between the brain, one's mindset and POTS. You can read the transcript for this episode here:  http://tinyurl.com/potscast195 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donatio...

POTScast listeners took a survey on podcasts and social support. Here are the results - podcasts can help individuals feel less socially isolated and provide them with informational and emotional support. Parasocial relationships between podcast listeners and hosts are also important. You can read the transcript for this episode here:  http://tinyurl.com/potscast194 If you liked this episode, we h...

Learn about the psychological experiences of POTS patients in this episode with Dr. Alissa Sheldon. Understand how to trust your symptoms and navigate through life despite challenges. You can read the transcript for this episode here:  http://tinyurl.com/potscast193 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are acc...

Erin is working on her Master's degree in English, and loves to write. She's written stories about her journey with both lupus and POTS, which started in her late teens and early 20s, but her first love is fiction. You can find her stories at https://vocal.media/fiction/waiting-room-lv3wu40jdv and https://www.artwifemag.com/short-stories/chinchilly If you liked this episode, we hope you will click...

Dr. Dempsey interviews pediatric cardiologist Dr. Jeffrey Boris about the Triad (MCAS, POTS and hypermobility syndromes) in his pediatric population.  As an avid researcher and data analyst, Dr. Boris is always a wealth of knowledge on latest findings and yet-unpublished trends and hypotheses.  The doctors also exchange interesting observations about MCAS and cholesterol, PCOS, and much more. You...

Attention POTS patients and those who care about them: Ever wondered what exactly is happening in your body when you experience common POTS symptoms like fainting, nausea, dizziness or brain fog? Tune in to this episode with Dr. Cathy Pederson to unpack the potential causes of these symptoms. You can read the transcript for this episode here:  http://tinyurl.com/potscast190 If you liked this episo...

This is a conversation between Jill Brook and Megan Barnett discussing the relationship between nutrition, gut health, and complex health conditions like POTS and mast cell disorders. They delve into topics like food sensitivities, the importance of micronutrients, and the role of functional medicine in managing these conditions.  Megan's website is: https://bioloungepdx.com You can read the trans...

Erica really can't remember life without POTS symptoms and anxiety was blamed for many years. She currently attends school and lives bicoastally as she pursues a career as an actress and dancer. Her diagnosis brought relief, and learning how to control her symptoms have helped her follow her dreams. You can read the transcript for this episode here:  http://tinyurl.com/potscast188 If you liked thi...

Dr. Anjali Agarwal - consulting physiotherapist trained in UK, located in India, and consulting via telemed around the world - is a wealth of information on POTS and related conditions, describing how "everything is connected", which also presents many treatment opportunities.  She shares numerous lifestyle strategies to manage POTS/dysautonomia, MCAS, hypermobility and related conditions, and she...

We have the entire medical/production team of 5 physician/researchers to give us an update and behind-the-scenes look at the documentary they are making about the trifecta of dysautonomia/POTS, MCAS and hypermobility spectrum disorders.  We hear from doctors Tania Dempsey, Larry Afrin, Linda Bluestein, Lawrence Kinsella and Leonard Weinstock, along with patient Jill Brook, to hear how filming is g...

Despite Leah being largely bedbound, Tim and Leah's relationship is as strong as ever. How do they balance illness, household chores, and raising their children? Find out in this heartwarming episode. You can read the transcript for this episode here:  http://tinyurl.com/potscast185 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved,...

Dr. Tania Dempsey interviews Dr. Eva Nagy, a breast surgeon experienced in all sorts of breast surgeries, who has developed special interest and skill in treating breast implant illness (BII), which she believes can be related to mast cell activation syndrome (MCAS).  Dr. Nagy describes BII, how she removes problem implants, and the effects this can have on a wide range of symptoms. You can learn...

In this episode, Nutritionist Jill Brook reviews the research findings on nutrient deficiencies in POTS, shares some tips, and directs listeners to a great resource for finding which lab tests are recommended by our Medical Advisory Board to determine whether nutrient imbalances may be a factor for you. With Jill’s husband as this week’s interviewer, we also learn about some nutrient experiments a...

Quinton loves to work out and research Long COVID. About two weeks after recovering from a mild COVID infection, he developed POTS and found himself nearly bedridden. He has slowly worked his way back toward being functional, although he still has significant limitations. You can read the transcript for this episode here:  http://tinyurl.com/potscast182 If you liked this episode, we hope you will...

Dr. Alexis Cutchins wrote a comprehensive review of POTS, including less-known treatments like oral contraceptives, gluten-free diets, and diosmin. Join her in thinking about promoting good blood flow that might decrease other POTS symptoms. Dr. Cutchin's review paper on POTS: https://www.uscjournal.com/articles/narrative-review-postural-orthostatic-tachycardia-syndrome-associated-conditions-and Y...

Emily was working as a medical assistant when she developed POTS. While she was aware of POTS, receiving a proper diagnosis still took 7 or 8 months. Many practitioners were dismissive of her symptoms, leading to a delay in treatment. You can read the transcript for this episode here:  https://tinyurl.com/potscast180 If you liked this episode, we hope you will click subscribe so that you don't mis...

Leah's life changed after her family got sick in December 2019. They rebounded in a couple of weeks, but she did not. She was diagnosed with POTS quickly, but remains largely bedbound and has had to shift her perspective to use her energy wisely for her family. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted...

Dr. Settle is a psychiatrist who believes that mast cell activation is responsible for some symptoms of anxiety, depression, bipolar disorder type II and others. She treats MCAS as a way to stabilize both mast cells and their emotional state. You can read the transcript for this episode here:  https://tinyurl.com/potscast178 If you liked this episode, we hope you will click subscribe so that you d...

Perceived burdensomeness, feeling like a burden to friends and family, is common in POTS patients. This feeling can be a predictor of suicidal thinking, particularly in men. We can change feelings of burdensomeness - find out how in this episode! You can read the transcript for this episode here:  https://tinyurl.com/potscast177 If you liked this episode, we hope you will click subscribe so that y...

Happiest holidays from everyone at Standing Up to POTS!

Hanna had a 15-year journey to her POTS diagnosis after fainting episodes that started in her teens. An avid athlete, she has completed a triathlon and climbed mountains in her less symptomatic days. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standing...

Dr. Lewan, a POTS patient with a CSF leak, helps many patients learn how to listen to their bodies and slowly progress in their physical therapy exercises. An understanding practitioner can make all the difference in assisting POTSies to live their best lives! You can read the transcript for this episode here:  https://tinyurl.com/potscast175 If you liked this episode, we hope you will click subsc...

Resilience is a nuanced topic. How do you build it? Is it always a compliment if someone says you are resilient? How can we better support our chronic illness community? Dr. Gorman-Ezell discusses it all! You can read the transcript for this episode here:  https://tinyurl.com/potscast174 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so mo...

Kaylee is an ER nurse in Phoenix and shares her own story along with tips on how to get the most out of an ER visit, like telling the triage nurse everything gets you proper care faster. She has POTS, EDS, and MCAS and is delightful! If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our prod...

MCAS expert Dr. Bluestein is an anesthesiologist and pain specialist focusing on hypermobility and its associated pain syndromes. Having EDS and her own pain, she discusses the use of opioids, ketamine, pain programs in this population, and much more! You can read the transcript for this episode here:  https://tinyurl.com/potscast172 If you liked this episode, we hope you will click subscribe so t...