Standing Up to POTS, Inc.
The POTScast
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series...
Author
Standing Up to POTS, Inc.
Category
Podcast website
Latest episode
Jul 4, 2026
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Episodes
E219:Hope for neurologic pain with Katinka van der Merwe, DC 20.08.2024 33:43
Dr. Katinka is a chiropractor in Arkansas dedicated to the treatment of neurological pain, a particularly stubborn type of chronic pain often seen in POTS, EDS, fibromyalgia, and CRPS. Dr. K leaves no stone unturned to try to help these patients and in this episode she discusses her approach to treating these tough pain conditions. Dr. K's website is here. If you liked this episode, we hope you...
E218: Dr. Jill Carnahan’s new book and film and approach to MCAS: MCAS Matters with Tania Dempsey, MD 13.08.2024 42:57
This is a not-to-be-missed episode between two incredible physicians: Dr. Jill is a highly sought-after leader in functional medicine and a survivor of cancer/crohne's/MCAS. She and Dr. Dempsey compare approaches to treating MCAS, discuss Dr. Jill's new book and film, and describe some lesser-known treatment strategies like methylene blue with red light therapy. Connect with Dr. Jill at the link...
E217:Antonia from Virginia 06.08.2024 37:49
Antonia's fast-paced life as a video/TV producer got a shock starting 10 days after her first COVID shot, but don't miss this episode to hear how she is still producing, finding silver linings, and having some hopeful experiences with steroids. See Antonia's latest show here: https://www.aetv.com/shows/find-my-country-house If you liked this episode, we hope you will click subscribe so that you...
E216:Concussions in POTS with Erik Reis, DC, DACNB, CBIS 30.07.2024 48:58
Dr. Erik Reis is a Doctor of Chiropractic Medicine, Board-Certified Chiropractic Neurologist, Certified Brain Injury Specialist, past brain injury patient himself, and founder of The Neural Connection in Minneapolis, a clinic that focuses on treating complex neurological and orthopedic disorders that range from traumatic brain injuries, dysautonomia/POTS, concussions, and more. Here he discusses...
E215:Intensive Pain/Exercise Programs for POTS with Dr. Cathy Pederson 23.07.2024 1:01:29
What are intensive hospital-based treatment programs and how do POTS patients rate their effectiveness? Dr. Cathy Pederson reports on her recent publication, showing these programs are not for everyone. Dr. Pederson's article can be found here . If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to su...
E214:Kait from MI 16.07.2024 32:19
Kait lives on a farm in Michigan and has embraced exercise as a way of life for herself and for her clients. As a personal trainer and coach, Kait has enjoyed helping many people find wellness, including POTS patients who didn't think they could exercise. Kait's website -- KO Wellness -- which includes a program for POTS patients, can be found here. If you liked this episode, we hope you will cl...
E213: Breast Implants and MCAS Insights with Surgeon Eva Nagy: MCAS Matters with Tania Dempsey, MD 09.07.2024 1:05:41
Dr. Dempsey interviews breast surgeon Dr. Eva Nagy about her important new findings just published about evidence of mast cell activation in Breast Implant Illness. Dr. Nagy is the world's leading surgeon for explant surgery and previously covered Breast Implant illness in episode 184. Dr. Nagy's website is here and her new publication is here. Dr. Dempseys website can be found here. If you like...
E212: Laura from Alabama 02.07.2024 30:02
Laura has been described as a 'gregarious chameleon' and a force to be reckoned with. This mother of 2 estimates she's about 80% improved since her worst days, but she's had to work for it. Hear her story in this episode. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production cos...
E211:Dr. Dempsey answers MORE listener questions as part of MCAS Matters with Dr. Tania Dempsey 25.06.2024 47:08
Nobody answers your MCAS questions as rapid-fire as Dr. Dempsey! She's back to answer listener questions, addressing the topics of anaphylaxis, Epi-Pens, difficult blood draws, itching, what to do when otherwise healthy or important activities cause flares, and so much more. More information about Dr. Tania Dempsey can be found at https://drtaniadempsey.com/ . If you liked this episode, we hope...
E210:Lexi from South Carolina 18.06.2024 36:27
Lexi is a busy mother of 3, a pediatric nurse, and started feeling POTSy while standing in lines at military school. Now she's a wealth of information and tips for dealing with medical situations. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standingup...
E209:Dr. Kelly McCann’s Functional/Integrative/Environmental Medicine Approach to MCAS - Mast Cell Matters with Dr. Tania Dempsey 11.06.2024 56:48
Dr. Kelly McCann is a leading educator on MCAS and related complex disease, with her online seminars and an approach that combines functional, integrative and environmental medicine. Drs Dempsey and McCann have a far-reaching conversation about MCAS strategies and factors ranging from mindset to muscle testing to genetic predisposition for breaking down fibrinogen blood clots. More information ab...
E208: Laura and Sharon published a book about Dysautonomia! 04.06.2024 40:49
Laura and Sharon became great friends while they supported one another through dysautonomia and related conditions. Between Laura's writing experience, Sharon's nursing career, and their joint ability to find the humor in every situation, they decided to help others by writing The Dysautonomia Diary: Essays and Tips for Enjoying Life Despite Chronic Illness . Their book has a foreword by Dr. B...
E207:Dr. Neil Nathan on Mold and MCAS with Dr. Tania Dempsey - Mast Cell Matters 28.05.2024 57:34
Dr. Neil Nathan is the leading expert on mold and mycotoxin illness, and in this episode he and Dr. Tania Dempsey discuss how mold can cause chronic illness and how to treat it. They also discuss Dr. Nathan's new book, The Sensitive Patient's Healing Guide, available here from Amazon . Dr. Nathan's other books and resources, plus information about working him, can be found at https://neilnathan...
E206:Brianne Dressen on science-based support for COVID-19 vaccine injured 21.05.2024 51:01
Brianne Dressen founded React19 to help people struggling with Long COVID and COVID vaccine injuries after being injured herself in a COVID19 vaccine trial, and learning the hard way that there was not a resource for adequate answers, treatment, financial or social support, or representation. Now she oversees 100 volunteers who have created a provider network, are funding and conducting research,...
Your vote can raise awareness and funds - with (the very strong) Dr. Tania Dempsey 13.05.2024 24:29
Dr. Tania Dempsey shares her passion (and some tips) for bodybuilding, because she has been nominated to be on the cover of Muscle and Fitness Hers magazine! If she is voted to be on the cover, it will raise awareness of complex conditions like POTS/MCAS/hypermobility spectrum disorder, AND Dr. Dempsey would donate the $20,000 prize to the documentary in progress about the Triad. You can vote h...
E205: Dr. Julie Maamari on perioperative considerations for complex patients 07.05.2024 34:57
Dr. Julie Hubbard Maamari is a Perioperative Clinical Pharmacy Specialist who helps patients before, during and after surgery by making sure they get the best medications for their needs. She has helped many complex patients, including those with POTS, MCAS and other hypersensitive or allergic conditions, and she has authored peer-reviewed articles. Dr. Maamari discusses what patients and their...
E204: Maddie can walk again! A POTS Diary follow-up 30.04.2024 23:05
In this episode we check in on Maddie from episode 83, and hear how she is doing, including how she regained the ability to walk again! You can read the transcript for this episode here: https://tinyurl.com/potscast204 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs ...
E203:Humor in Chronic Illness with DoodleThru Creators Mike & Jill Brook 23.04.2024 31:05
Sometimes we have to laugh so we don't cry. In this episode, cartoonists and married couple Mike and Jill Brook describe what made them create DoodleThru.com, how it helped them cope, and remark at the endless supply of absurdities that are available to chronic illness humorists. You can see their cartoons at https://doodlethru.com/ . If you liked this episode, we hope you will click subscribe...
E202: Dr. Theo Theoharides on mast cells driving dysautonomia and much more - Mast Cell Matters 16.04.2024 1:02:10
Dr. Theoharides is among the world's top mast cell researchers and speaks with Dr. Dempsey about his recent article reviewing how mast cells may drive dysautonomia and vice verse. They also cover a range of topics from mast cells' diversity to their role in autism, most effective mast cell stabilizers and much more. This episode is packed with advanced mast cell information. Dr. Theoharides has...
E201:Allie 09.04.2024 32:08
In this episode we meet Allie, a student at Purdue University who, since getting POTS, has started introducing herself to one new stranger per day. How cool is that?! If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us wha...
E200: Dr. Leticia Soares, PhD on female reproductive health concerns associated with long COVID, POTS, EDS, ME/CFS 02.04.2024 35:09
Dr. Leticia Soares is a research biologist who, before COVID, focused on infectious disease in birds. Now she serves on the leadership team of the Patient-Led Research Collective, conducting and publishing research to help improve treatment for people with Long COVID. Dr. Soares recently published a review article about female reproductive health issues associated with long COVID, ME/CFS, POTS,...
199: Listener Q&A with Dr. Tania Dempsey — Mast Cell Matters 26.03.2024 50:36
Dr. Dempsey answers questions about MCAS and depression/anxiety/fatigue/brain fog; physical triggers; Kounis Syndrome; whether it's worth it to allow "small" flares in the name of pizza or other small joys; treatments such as stenting for venous compression; how long to try each antihistamine; and much more. More information about Dr. Tania Dempsey can be found at https://drtaniadempsey.com/ . If...
E198:POTS Diaries with Arianna from Indiana 19.03.2024 41:40
Arianna was an athlete until POTS and has now developed a large following as a social media influencer. She's sharing her POTS journey with her audience, too! You can follow her here on TikTok or follow her here on Instagram. You can read the transcript for this episode here: https://tinyurl.com/potscast198 If you liked this episode, we hope you will click subscribe so that you don't miss an...
E197:Dr. David Kaufman on ME/CFS, MCAS, POTS and complex disorders - Mast Cell Matters Series 12.03.2024 54:50
Dr. David Kaufman is renowned for working with the most complex patients and for his podcast on Patreon, Unraveled: Understanding Medical Complexity . He and Dr. Dempsey discuss the role of MCAS in ME/CFS and other complex disorders and how he starts unraveling these complex clusters of conditions. You can learn more about Dr. Kaufman and his practice here . You can learn more about Dr. Dempsey...
E196:Jolie is Miss Chattanooga, spreading awareness of POTS at the Miss Tennesee Pageant 05.03.2024 22:02
Jolie was first featured in episode 160, and she's back to talk about how she's doing, how she successfully manages her POTS, and some big news: She was chosen to be Miss Chattanooga, TN! In this role she is helping raise awareness of POTS and in the next few days (March, 2024) she'll be competing in the Miss Tennesee Pageant. Thanks to Jolie for using her platform and growing notoriety to help...
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