Standing Up to POTS, Inc.

The POTScast

Health EN ↓ 267 episodes

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series...

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Author

Standing Up to POTS, Inc.

Category

Health

Podcast website

the-potscast.castos.com

Latest episode

Oct 31, 2026

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Episodes

E236:Angela on MALS surgery, vascular compressions and more 17.12.2024

Angela was healthy, busy, active and loved hiking and traveling before the cascade of syndromes arrived:  POTS, MCAS, hEDS, MALS, May Thurner Syndrome, Nutcracker Syndromes, ME/CFS.  Angela discusses how she worked to find the right experts, get answers, how her surgery for MALS went, which symptoms it did and didn't help, and which treatments she is considering now.  She also discusses how she co...

E235:Heart Expert Joseph Anew on Mast Cell Matters with Dr. Tania Dempsey 09.12.2024

Joseph Anew is now the picture of health and fitness, but as a young man he was severely injured and received a dior diagnosis. When conventional treatments failed, he moved to a tropical beach to live out his few remaining days.  What happened next has been the basis for his great fitness and career helping others to overcome health challenges, feel their best, and perform beyond expectations.  J...

E234:Hyperbaric Oxygen Therapy with Dr. Scott Sherr 02.12.2024

Hyperbaric oxygen therapy (HBOT) can affect energy, healing, the central nervous system, immune system, GI and cognitive function and more.  Dr. Scott Sherr is a Board-Certified Internal Medicine Physician and the director of Integrative Hyperbaric Medicine and Heath Optimization at Hyperbaric Medical Solutions and co-founder of OneBaseHealth , a company that makes home HBOT devices.  In this epis...

E233:Methylene Blue for POTS with Dr. Scott Sherr 23.11.2024

Can a blue dye that was the first drug ever approved by the FDA help POTS energy and brain fog?  Dr. Scott Sherr is a Board-Certified Internal Medicine Physician, expert in health optimization, and COO of Troscriptions.  In this episode he explains Methylene Blue; what it is, how it affects the body, risks, benefits, and why he thinks it is helping POTS patients. Here is Dr. Scott's company, Trosc...

E232:Dr. Steve Smith’s research update on treating pelvic venous disorders (and how it helps POTS and related syndromes) 16.11.2024

Dr. Steve Smith's most updated research suggests that stenting or embolizing dysfunctional pelvic veins may improve a wide array of POTS symptoms and related syndromes in patients with pelvic venous disorders/congestion. Dr. Smith is now retired and publishing research, but in his long career as an interventional radiologist he noticed that many of his Pelvic Congestion Syndrome patients had POTS...

E231:Lumia tracks blood flow to the head with Daniel Lee 10.11.2024

Engineer and tech founder Daniel Lee created the Lumia to be a personal wearable device that fits in the ear and measures blood flow to the head, along with several other measurements and a phone app.  This allows POTS patients, researchers and others to track how their activities, foods, medications, and other environmental factors are affecting blood flow to the head and symptoms of POTS.  He ex...

E230:POTS vs. Anxiety with Author/Advocate Christie Cox 04.11.2024

Christie Cox is a best-selling author and patient advocate working to help others have an easier journey than she has had.  Her latest article explains why POTS is often mistaken for anxiety, why this can lead to harm, and practical tips for how patients and healthcare practitioners can distinguish anxiety from POTS. Christie's book, Holding It All Together When You're Hypermobile, can be found he...

E229:Hormones and MCAS with Dr. Dempsey, Mast Cell Matters: Deep Dives on MCAS 27.10.2024

Another great episode where Dr. Dempsey explains how hormones can affect mast cells and vice verse, especially when it comes to puberty, menarche, pregnancy, and menopause.   More information about Dr. Tania Dempsey and her practice can be found at https://drtaniadempsey.com/ .  If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, dona...

E228: 11th Annual Standing Up to POTS 5K/2K LIVE 19.10.2024

Several POTS patients who traveled to Springfield, Ohio for the 11th Annual SUTP 5K/2K spoke with Jill live as they waited for the event to begin. These quick interviews are inspiring, and we hope that some of their tips and tricks will help our listeners! If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to h...

E227:Dr. Cathy Pederson on Travel Tips with POTS 15.10.2024

 Dr. Cathy Pederson shares numerous practical tips for making travel easier for people with POTS, many of which she has tested in her own family's extensive world travels with severe POTS and related conditions. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://...

E226:Molly from VA has 2 children with POTS 08.10.2024

Molly's life has changed dramatically since two of her three children developed POTS - at different times, from different triggers and with different symptoms and severity.  Hear her story, insights and advice in this episode. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production...

E225:Mold Remediation Expert Michael Rubino - Mast Cell Matters with Dr. Tania Dempsey 01.10.2024

Michael Rubino is an air quality expert, environmental wellness advocate and President of Change the Air Foundation .  He is widely known as the trusted source for mold remediation expertise.  In this episode Dr. Dempsey and Michael discuss how to avoid mold in your environment, even if you don't have the means to move out of a moldy home. Here is the mold spore video discussed in this episode.  ...

E224:Dr. Dempsey on Mold/Mycotoxin Illness: Mast Cell Matters 24.09.2024

Dr. Dempsey explains the facts on mold as a trigger for mast cells, including symptoms, preferred tests, treatments, resources for remediation and expectations for recovery.  This is a not-to-be-missed episode since -- as we learn in this episode -- nearly everyone has likely had exposure to the types of mold that can be problematic.  Dr. Dempsey is a mold expert and serves on the Medical Board of...

E223:Nutrition for brain health with Erik Reis, DC, DACNB, CBIS 17.09.2024

Dr. Erik Reis is a Doctor of Chiropractic Medicine, Board-Certified Chiropractic Neurologist, Certified Brain Injury Specialist, past brain injury patient himself, and founder of The Neural Connection in Minneapolis, a clinic that focuses on treating complex neurological and orthopedic disorders that range from traumatic brain injuries, dysautonomia/POTS, concussions, and more.  Here he discusses...

E222:Jess from Louisiana 10.09.2024

Jess was a busy, active student and essential worker as a medical case worker during COVID, and then her bout with COVID resulted in... hell.  Among many other symptoms, one point she could barely even talk.  But with tons of perseverance she eventually found a good doctor and some relief with IVIg.  Hear her story and advice to others. If you liked this episode, we hope you will click subscribe s...

E221:Dr. Dempsey on Infections: Mast Cell Matters with Dr. Tania Dempsey 03.09.2024

In this 3rd Q&A session with the amazing Dr. Dempsey she goes deep on infections as a trigger for MCAS:  How they're transmitted, symptoms, testing, treatment, and expectations for recovery.  This is a not-to-be-missed episode since -- as we learn in this episode -- nearly everyone has likely had exposure to the types of infection that can be at play. More information about Dr. Tania Dempsey a...

E220:S. founded the support organization she wished she’d had 27.08.2024

S. got POTS while becoming an occupational therapist and struggled through her graduate program, but now she reports having no more limitations than her friends and has founded the non-profit support organization that she wishes had been there for her.  It has helped over 600 girls internationally who live with chronic illness. If you liked this episode, we hope you will click subscribe so that yo...

E219:Hope for neurologic pain with Katinka van der Merwe, DC 20.08.2024

Dr. Katinka is a chiropractor in Arkansas dedicated to the treatment of neurological pain, a particularly stubborn type of chronic pain often seen in POTS, EDS, fibromyalgia, and CRPS.  Dr. K leaves no stone unturned to try to help these patients and in this episode she discusses her approach to treating these tough pain conditions.   Dr. K's website is here. If you liked this episode, we hope you...

E218: Dr. Jill Carnahan’s new book and film and approach to MCAS: MCAS Matters with Tania Dempsey, MD 13.08.2024

This is a not-to-be-missed episode between two incredible physicians: Dr. Jill is a highly sought-after leader in functional medicine and a survivor of cancer/crohne's/MCAS.  She and Dr. Dempsey compare approaches to treating MCAS, discuss Dr. Jill's new book and film, and describe some lesser-known treatment strategies like methylene blue with red light therapy.  Connect with Dr. Jill at the link...

E217:Antonia from Virginia 06.08.2024

Antonia's fast-paced life as a video/TV producer got a shock starting 10 days after her first COVID shot, but don't miss this episode to hear how she is still producing, finding silver linings, and having some hopeful experiences with steroids. See Antonia's latest show here:   https://www.aetv.com/shows/find-my-country-house If you liked this episode, we hope you will click subscribe so that you...

E216:Concussions in POTS with Erik Reis, DC, DACNB, CBIS 30.07.2024

Dr. Erik Reis is a Doctor of Chiropractic Medicine, Board-Certified Chiropractic Neurologist, Certified Brain Injury Specialist, past brain injury patient himself, and founder of The Neural Connection in Minneapolis, a clinic that focuses on treating complex neurological and orthopedic disorders that range from traumatic brain injuries, dysautonomia/POTS, concussions, and more.  Here he discusses...

E215:Intensive Pain/Exercise Programs for POTS with Dr. Cathy Pederson 23.07.2024

What are intensive hospital-based treatment programs and how do POTS patients rate their effectiveness?  Dr. Cathy Pederson reports on her recent publication, showing these programs are not for everyone.  Dr. Pederson's article can be found here . If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to su...

E214:Kait from MI 16.07.2024

Kait lives on a farm in Michigan and has embraced exercise as a way of life for herself and for her clients.  As a personal trainer and coach, Kait has enjoyed helping many people find wellness, including POTS patients who didn't think they could exercise.  Kait's website -- KO Wellness -- which includes a program for POTS patients, can be found here. If you liked this episode, we hope you will cl...

E213: Breast Implants and MCAS Insights with Surgeon Eva Nagy: MCAS Matters with Tania Dempsey, MD 09.07.2024

Dr. Dempsey interviews breast surgeon Dr. Eva Nagy about her important new findings just published about evidence of mast cell activation in Breast Implant Illness.  Dr. Nagy is the world's leading surgeon for explant surgery and previously covered Breast Implant illness in episode 184. Dr. Nagy's website is here and her  new publication is here. Dr. Dempseys website can be found here. If you like...

E212: Laura from Alabama 02.07.2024

Laura has been described as a 'gregarious chameleon' and a force to be reckoned with.  This mother of 2 estimates she's about 80% improved since her worst days, but she's had to work for it.  Hear her story in this episode. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production cos...

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