The MEN1 Mosaic

How are you meant to keep yourself informed about MEN1 when even those whose job it is to have the knowledge still know so little?// Today's guest, a MEN1 Patient & Nurse Practitioner, shares: 1) how an over-the-top reaction from her doctor-colleagues led her to believe she might only have a couple of years left to live with MEN1// 2) how practising yoga helped stop her panic episodes in...

Have you ever wondered whether a genetic disorder like MEN1 could be affected by lifestyle health such as diet?// Today's guest, an internationally-renowned Functional Medicine Doctor shares: 1) why MEN1 patients need a strong immune system and diet is one of the key factors 2) why traditional medical approaches continue to ignore lifestyle factors in treating disease & this lets MEN1 pat...

You know the way people look at you when they feel sorry for you?// Today's guest, a MEN2a Patient (including Stage 4 Cancer) & Founder of an International Cancer Patient Movement, shares: 1) how a sweaty episode on the tube to work one morning turned into the discovery of a 8cm tumour// 2) how he had to sideline his professional basketball career to take care of his health// 3) how he is...

Does being a MEN1 Patient make you feel like the victim of genetic misfortune?// My patient guest shares: 1) how lack of relevant information, poor medical care & the internet created chaos in her family's and her diagnosis process// 2) how in spite of all of this, she is determined to take responsibility for her health(care) wherever she can// 3) how she wants to set the best example for...

Have you ever wondered why you go for bone scans and get achey joints as a MEN1 patient?// This Pain Rehab Coach & Neurokinetic Therapist explains:// 1) Why MEN1 affects your bones & joints// 2) How surgery affects MEN1 patients long-term// 3) What you can do to be free from physical pain & discomfort in MEN1// ABOUT OUR GUEST// Gurinder joined the fitness industry in 2012 and qualifie...

Have you found yourself being dismissed, overlooked or even misdiagnosed because MEN1 is such a rare disease?// Jo Grey, CEO of AMEND Charity & MEN2a Patient shares:// 1) how doctors missed her MEN2a symptoms & a psychiatrist implied she was hallucinating// 2) why she 'accidentally' became AMEND's CEO when a newsletter advert helped find her people// 3) what she does with AM...

Have you found your MEN1 goes quiet and then all of a sudden starts causing problems?// Lead Clinician for Endocrinology, Professor Karim Meeran, shares:  1) what it is that 'triggers' the MEN1 disease to flare up in a patient// 2) whether MEN1 patients have an increased risk of developing cancer// 3) why stress could affect MEN1 (but not your boss shouting at you!)// Are you sure MEN1 c...

Do you ever feel you’re tussling between traditional medical opinion in MEN1 and alternative options?// Dr Anitha Raval shares with us: 1) how to avoid obstacles when choosing the best alternative treatments 2) how to know whether you can trust a practitioner who isn’t a labelled MEN1 expert 3) how to know which supplements & diets are right for you// Enjoy! Are you sure MEN1 can’t be influenc...

Do you ever wish your doctors in MEN1 would just make the hard decisions for you? International Endocrine Tumour Expert, Professor Ashley Grossman, shares: 1) Whether to watch & wait or intervene with surgery in MEN1 2) How to know you can trust your doctor & healthcare team 3) How many second opinions to seek 4) How to get yourself heard by your practitioner 5) How to live your life as we...