The Lympha Press Podcast

The unique challenges of being a child diagnosed with lymphedema are candidly shared by Mary Kastelberg. She discusses her six surgeries, how she effectively manages her condition, the social connections she finds so helpful, and how her passion for helping those with lymphedema intersected with her current profession. This interview was recorded in December 2020. You can watch the video recording...

Lipedema presents many challenges for women and there's no "one-size-fits-all" approach to successfully facing this chronic condition. Be inspired by Kathryn Max's journey, which is a story of embracing herself with compassion and love, expressing her message through her art, and sharing light to uplift the community of Lipedema Ladies. Follow her amazing Instagram page @fat_mystic_art . This inte...

A gymnastics accident at age 15 left Alex Robinson with a fractured fibula...and a lymphedema diagnosis. Told she'd "just have to live with it" and given no tools to manage the condition, she continued being active in both gymnastics and dance. These "bare feet" sports made it impossible to hide her lymphedema. High school students were often cruel, making fun of her different-sized limbs. Undaunt...

The November Lymphedema Patient Roundtable was pumped with interesting topics, covering everything from pain management and vibration plates to vulnerability and self-acceptance. There was also conversation around compression garments as panelists answered questions about the differences between off-the-shelf versus custom and flat-knit versus circular knit, and our medical professionals weighed i...

"Thank you for being a friend..." The Lipedema Patient Roundtable was a cornucopia of warmth and gratitude this month in celebration of Friendsgiving. We pulled up some extra chairs to the virtual table as our panelists each brought a special friend along to talk about life, lipedema , and friendship. Is it safe to have your blood pressure taken if you have lipedema in your arms? Does anyone else...

The Lipedema Foundation is a groundbreaking organization devoted to the lipedema community in meaningful ways. Chief Science Officer Guy Eakin talks about the Foundation's history, mission, and registry, which is key to the organization's goal of funding research that can lead to a cure. Quality of life, genetic studies, imaging, and diagnostic tools are some of the topics of focus for The Lipedem...

From clinical questions about wound care to candid conversation around mental health, the October Lymphedema Patient Roundtable was full of valuable inspiration and insight. Speaking of inspiration, the panel was joined by special guest Veronica Seneriz, a lymphedema patient and founder of the blog and online community Lymphie Strong . Panelist Kelly Bell was one of the first members of Lymphie St...

A bout of ulcerative colitis in 2018 started a downward spiral for Morgan McCoy's health. In 2019, her colon perforated and an infection led to the amputation of her left leg, forcing her to drop out of the University of Oklahoma during her senior year. Then, a lymphedema diagnosis evidenced by 30 pounds of fluid. You'd never know any of this by the smile on Morgan's face. Her credo? "I could pout...

Wisdom, heart, and encouragement are packed into this latest hour of the Lipedema Patient Roundtable brought to you by Lympha Press ! Dr. Karen Herbst reveals why not everything that looks like lipedema IS lipedema. Dr. Jaime Schwartz talks about fibrosis and surgery; Linda Anne Kahn offers aromatherapy tips, and CurvyGirlBeth (Beth Rylaarsdam) shares how she came to a place of self-acceptance and...

A must-listen episode for lymphedema patients with excellent conversation around exercise, elevation, the COVID vaccine, nerve pain, "pity parties" and much more. Our panel of experts includes: Cam Ayala, Primary Lymphedema Patient, Lympha Press Compression Therapy Consultant (@CamronAyala) Kelly Bell, @Veteran_Fighting_Lymphedema Mary Kastelberg, Primary Lymphedema Patient, Lympha Press Compressi...

When returning from the playground at age five, Amy Beaith's parents noticed her legs were swollen. She estimates it took about 30 doctor's visits before finally being diagnosed with primary lymphedema. She's used Lympha Press to manage her condition for decades and loves the way it helps reduce pain and swelling. She says, "It's so comfortable it feels like a hug." Amy is proactive about her cond...

It's our special Fitness episode with Coach Bob Cornute (the encouraging voice behind @LipedemaFitness). Your questions about strength training, resolutions, stretching, and much more are answered, along with our regular discussions about lipedema-related matters. Be encouraged that "you can be healthy at any size" and discover the latest tips offered by our amazing lipedema leaders: @PaleGingerPe...

Our monthly Roundtable discussion included questions and answers about exercise, diet, neuropathy, fibrosis, and how to not give up when feeling overwhelmed about managing lymphedema. NLN Executive Director Jeannette Zucker (@the_nln) joined as a special guest as did Compression Therapy Consultant Deb Springer, Certified Lymphedema Therapist Nasreen Starner, and Lymphedema Patient Catherine Rosenb...

At one point, he weighed nearly 700 pounds. Now, his videos have made over 60 million impressions as he inspires others through The Obesity Revolution. Sean Mulroney's story is also about lymphedema, the struggle to be diagnosed, and how he found the Lympha Press LymphaPod.  He calls it a game-changer. Sean views obesity as "the last socially acceptable prejudice."  He found many doctors...

Does lipedema affect fertility? How about the ability to sweat? And why does lipedema light up on airport scanners? These are just some of the questions that popped up during the September Lipedema Patient Roundtable for our panel of patients and medical professionals. The hour seemed to fly by as conversation continued on topics like Ehlers-Danlos syndrome, eczema, hypermobility, and food sensiti...

Diagnosed with lymphedema as a baby, Blanche Pepitone had her first surgery at 18 months old. Her parents and siblings raised her to live life fully, regardless of her condition, and that has been Blanche's lifelong credo: "You've got to decide how much living you want to do and do what it takes to live that life." Managing a little-known condition without the benefit of Google or social groups co...

It's Fall, y'all, and lymphedema patients in the Northern Hemisphere are rejoicing at the transition to cooler weather! From compliance to clothes to circulatory changes, panelists at the September Lymphedema Patient Roundtable shared the different ways the Fall season can affect life with lymphedema . Speaking of transitions, many are returning to in-person work after a year or more of working fr...

Find out how a billboard changed Veronica Seneriz' life...and in turn, she's helping effect positive change in the lives of thousands of lymphedema patients. Her message?  "I may have lymphedema, but it doesn't have me." Her father struggled for years, not knowing his diagnosis. He battled cellulitis over 100 times.  When Veronica recognized swelling similar to his, she was afraid to tel...

The May 2021 Lipedema Patient Roundtable featured a wide range of topics, including venous ultrasounds and the vein connection to lipedema, the differences between lipedema fat and non-lipedema fat, obesogens and toxins that impact our overall health, and the signs of Ehlers-Danlos. Candid and heartfelt conversations about pain and depression led to reminders about the importance of community and...

An accident while playing basketball at age 15 left him with an unusually swollen leg and, eventually, a lymphedema diagnosis. Dominique's mother also had lymphedema, and they learned to encourage each other to stay compliant to manage this chronic condition. Dominique's mom was a great source of inspiration for him.  When she was diagnosed with breast cancer, her response was, "When the doct...

Our amazing panelists are joined by special guests this month! William Repicci is the President and CEO of the Lymphatic Education and Research Network (LE&RN) and shares the organization's vision to support those with lymphedema as well as special plans for World Lymphedema Day on March 6th. Author Jean LaMantia, who wrote "The Complete Lymphedema Management and Nutrition Guide" also visits t...

April Sluder's Lovely Lipedema Ladies Facebook group is inspiring! From "Selfie Sundays" asking members to show their beautiful faces, or quotes like "It's not your job to like me. It's mine..." from Byron Katie, her mission is clear: "I help people see their own worth and live life unapologetically." A Masters' level social worker and Certified Life Coach, April also has lipedema. She always noti...

The June Lipedema Patient Roundtable was a special one: Not only was it Lipedema Awareness Month, but also the one-year anniversary of the Lipedema Patient Roundtables! Participants reflected on their takeaways from the past year, such as the increase in accessible information on lipedema, the importance of connectedness and community, and the discovery of one's own personal strength and resilienc...

She had relatives with similar legs, so Amber Grainger never considered that she had a medical condition. She endured taunts from middle school classmates and continued into her adult years to try and find an answer. Things worsened after the birth of her daughter. At one point, Amber was running miles a day, only to see no improvement. Adding to the frustration? Constant advice from medical profe...

Living with lipedema can be painful. "We put up with just so much level of pain that we don't even realize what we live with every day," explained Pattie Cornute at the August Lipedema Patient Roundtable, as the rest of the panel nodded their heads in agreement. But one of the beautiful things about living with lipedema is the community and the wealth of information and support it offers. A big th...