The Invisible Cancer - Bringing Visibility to Neuroendocrine Cancer

In this episode, Neuroendocrine Cancer UK's Campaign Lead, Lisa interviews Andy Hall, Chief Scientific Officer at RareCan—an organisation dedicated to improving outcomes for individuals with rare forms of cancer.  Join them in a thought-provoking discussion as Andy shares his journey from being a lab-based researcher, specialising in pediatric cancer biology. Delve into the world of basic res...

In this week's podcast episode, we feature Ancora.ai, a company connecting cancer patients with clinical trials and empowering them to understand ongoing trial options.  Ancora.ai maintains a research database of all ongoing cancer trials, including neuroendocrine cancer, making it easier for patients to find personalised trial options. The podcast with CEO and founder, Danielle Ralic, explor...

Welcome to the latest episode of the "Not Just NE Cancer Takeover Series." Following our successful launch last week, this series continues to delve into the world of neuroendocrine cancer research, with a specific focus on our newly introduced 'Advancing Neuroendocrine Cancer Research' campaign.  In this second episode, Campaigns Lead Lisa engages in a compelling discussion wi...

NOT JUST NE CANCER TAKEOVER SERIES! Join Neuroendocrine Cancer UK CEO, Catherine, and Campaigns Lead, Lisa, in this informative and inspiring podcast episode. Neuroendocrine Cancer UK is proud to announce the launch of their Advancing Research campaign. Neuroendocrine cancer, a complex and less common form of cancer affecting multiple parts of the body, often leaves those living with the disease u...

In this episode, Neuroendocrine Cancer UK's CEO, Catherine Bouvier, talks to Dr Tahir Shah about his work in developing a new service for Neuroendocrine Cancer patients to improve outcomes and their quality of life through using surgery and liver transplantation. Dr Shah is a Consultant Liver Transplant Physician at Queen Elizabeth Hospital Birmingham. He is also Lead Clinician for the Neuroe...

In this episode Neuroendocrine Cancer UK CEO, Catherine talks with Rareminds Mindfulness Programmes Lead, Steve about mindfulness and how it can help those with cancer to help manage pain and daily life.    Steve is a core teacher trainer for Breathworks, and an ‘Living Well’ Trainer and Supervisor. He runs both ‘Mindfulness for Health’ and ‘Mindfulness for Stress’ programmes and is a qualified Mi...

In this episode, Catherine talks to Neuroendocrine Cancer Clinical Nurse Specialist, Debbie. In December 2021, Debbie's life took an unexpected turn when she was diagnosed with breast cancer.  Debbie shares her experience of a cancer diagnosis from both sides. Further support: Just Diagnosed Support the show

In this episode Pete, Neuroendocrine Cancer patient and fundraiser shares his story. Pete talks to us about his diagnosis, the symptoms of Pancreatic Neuroendocrine Cancer and his experience of Radioligand Therapy (also known as PRRT). Further support: Pete's story Pancreatic Neuroendocrine Cancer Secondary Neuroendocrine Cancer  Recognising a hypo Radioligand (PRRT) Treatment Support the sho...

Rambles with Sally - Insights from Neuroendocrine Cancer patient, Sally on living with Neuroendocrine Cancer and pain control.  Further Support: Understanding Neuroendocrine Cancer Newly Diagnosed Living with Neuroendocrine Cancer Neuroendocrine Cancer Patient Stories Support the show

Rambles with Sally Sally, Neuroendocrine Cancer UK Ambassador, shares her remarkable insights on living with Neuroendocrine Cancer in this episode of "Rambles with Sally." Join us as Sally reveals the art of cherishing the perfect moments amidst life's challenges, painting a vivid portrait of resilience and gratitude. Stay tuned for an enlightening conversation that will touch your...

Insights from NCUK Ambassador, Sally on living with Neuroendocrine Cancer. In this episode NCUK Ambassador, Sally discusses useful tips for better sleep with fellow patient, Phil. Further support - https://www.neuroendocrinecancer.org.uk/neuroendocrine-cancer/living-with-neuroendocrine-cancer/sleep/ Support the show

In this episode of Not Just NE Cancer, Cathy speaks to Dr Debashis Sarker, Consultant Medical Oncologist at King's College Hospital, London. Topics include: 1- How did you get involved in the neuroendocrine world? 2- What is the role of the oncologist within the MDT? 3- What are the main influences in your decision to suggest a treatment? 4- What do you see as the main challenges we still fac...

In this episode of Not Just NE Cancer, Cathy speaks to Kym Winters, founder and Director of Rare Minds about some of the emotional challenges those diagnosed and living with Neuroendocrine Cancer face.  Kym also shares her experience of rare disease and the work of Rare Minds. Rare Minds NCUK Counselling Service Supporting you Just Diagnosed Living with Neuroendocrine Cancer NCUK's MIND the G...

In this episode of Not Just NE Cancer, Cathy speaks to NCUK Ambassadors, Maxine and Simon all about treatments after their Neuroendocrine Cancer diagnosis. Click here to read all about treatments on the NCUK website Support the show

In this episode, Cathy speaks to Liver Transplant & Hepatobiliary Surgeon, Mr Andreas Prachalias from King's College Hospital, London. Topics include: 1- What is the role of the surgeon within an expert MDT? 2- If technically possible, what influences your decision to support surgical intervention? 3- What would influence you in reviewing a case for surgery when initially not a possibilit...

In this episode of Not Just NE Cancer, Cathy travels to the Queen Elizabeth Hospital, Birmingham to speak to Cardiac Consultant, Professor Steeds, about Carcinoid Heart Disease. Find out more: Carcinoid Heart Disease  Just diagnosed Carcinoid syndrome Types of tests Emotional support Carcinoid crisis Support the show

In this episode of Not Just NE Cancer, Cathy speaks Jo Grey, CEO of AMEND (The Association for Multiple Endocrine Neoplasia Disorders) about her personal story, the work of AMEND and genetic Neuroendocrine tumours. AMEND - https://www.amend.org.uk/ Support the show

In this episode of Not Just NE Cancer, Cathy speaks to Consultant Histopathologist, Dr Claudia Mestre at King's Hospital in London.  Topics include:  1- What is a histopathologist? 2- How did you get involved in the neuroendocrine world? 3- What is your role within the MDT? 4- Are there any key differences in the tissue from neuroendocrine cancers and other more common cancers? 5- Has the WHO...

In this episode of Not Just NE Cancer, Cathy speaks to Consultant Gastroenterologist, Dr Raj Srirajaskanthan at King's College Hospital in London. - Working with your healthcare team - Useful questions for your appointments - Getting the right care Support the show

Insights from Neuroendocrine Cancer UK Ambassador, Sally on living with neuroendocrine cancer. Support the show

Insights from NCUK Ambassador, Sally on living with Neuroendocrine Cancer. Sally talks to Neuroendocrine Cancer patient, Sherry about her experience of receiving treatment, Radioligand Therapy (PRRT). Further support: Neuroendocrine Cancer Treatments Radioligand Therapy (PRRT) Support the show

NCUK CEO, Catherine Bouvier speaks to Debra and Michelle about their symptoms prior to diagnosis with Neuroendocrine Cancer. Further information:   - Lung Neuroendocrine Cancer Primary - Rectal Neuroendocrine Cancer Primary - Barrier to Diagnosis Report - Symptoms & Awareness Postcard - Order here Support the show

Neuroendocrine Cancer UK CEO, Catherine Bouvier speaks to Ambassadors, Maxine and Simon about their symptoms prior to diagnosis with MEN1 and small bowel neuroendocrine  cancer. Further information: - MEN1 - Small Bowel - Barrier to Diagnosis Report - Symptoms & Awareness Postcard - Order here Support the show