The Heart of Hospice Podcast

End of life option advocate Dan Diaz is sharing the story of his wife Brittany Maynard and her pursuit  of a gentle death. Diagnosed at age 29 with a terminal brain tumor, Brittany chose to move 600 miles to a state that allowed for death with dignity, utilizing Medical Aid in Dying.  In this powerful interview, Dan describes the impact of her life and death on compassionate death choices and legi...

Hospice nurse Beth Cavenaugh helps to clear up confusion around live discharges from hospice services.  Sometimes people on hospice care improve or stabilize, and no longer meet the criteria to receive care from the hospice agency.  The discharge process can be confusing, and it’s important to know the things that need to happen.  Here are a few highlights from this episode: Live discharges are in...

Author and Alzheimer’s caregiver Marianne Scuicco shares her powerful story of caring for her mother and stepdad through dementia diagnosis and end of life. She describes the roller coaster of her caregiving journey, all the ups and downs that her family experienced. After her stepfather was diagnosed with mixed dementia and her mother declined, Marianne and her siblings had to find a balance to e...

We’re getting back to the basics of hospice care, sharing information about complaints, when to make them, and what should happen when you do. Hospice Social Worker Lisa Pahl (creator of The Death Deck and End of Life Deck) helps drive this discussion. Here are a few highlights from our discussion: •Patients and/or caregivers have a right to make a complaint.  •There are numerous reasons a complai...

Drs. Barry Jacobs and Julia Mayer join the podcast for a great conversation about bringing your best to caregiving, reminding us that caregivers don’t have to be perfect.   As authors and clinical psychologists, Barry and Julia support family caregivers, guiding them through the messiness of caring for a loved one.  As a married couple, they’ve had lived experience with caring for their parents an...

We’re getting back to the basics of hospice with Hospice Social Worker Lisa Pahl, sharing information about transfers from one hospice agency to another.  It’s really important for patients and their decision makers to know they can transfer to another hospice agency if the care isn’t a good fit.  Hospice team members should be knowledgeable about how transfers work and what needs to be done.   He...

Elder law attorney Patrick Cawley is equipping dementia caregivers with the essential tools they need for estate planning, including advance care planning for end of life. Patrick guides family members as they navigate the health care system and complicated ways to pay for long-term care for their loved one. He is a certified dementia care consultant, and host of the Dementia Empowered podcast.  P...

On-call, after hours, 24/7 services - no matter what you call it, hospice care is available to patients and caregivers every hour of every day. Regardless of the day of the week, whether it’s a holiday, or the office is closed, a member of the hospice team is accessible all the time. Some hospice agencies have answering services or triage teams, but the final result of a call is connection with a...

Blending aromatherapy and sound bathing into the care of dying patients comes naturally to end of life doula and hospice nurse Carrie Oram. Carrie has witnessed deep, relaxing responses from clients as they experience the vibrations of Tibetan sound bowls. Regardless of diagnosis or disease progression, people who are at the end of their lives become more relaxed during treatments with aromatherap...

We’re getting back to the basics of hospice, talking about Continuous Care with hospice nurse Gabby Jimenez of The Hospice Heart.  Continuous care can be confusing.  We’re talking about when it’s used, how it works, and where it happens. Here are some highlights from this episode:             • Continuous Care (CC) is a level of care within the Medicare hospice benefit.  It’s also called Crisis Ca...

Funeral director Andre Roupp of Roupp Funeral Home believes each person and every family has a story, and he’s sharing all the ways funeral planning makes services personal and meaningful.  When advance care planning doesn’t include funeral planning, there can be fallout that makes the family’s grief journey more difficult.  Here are some highlights from Andre’s interview: Pre-planning a funeral c...

We’re getting back to the basics of hospice care with Social Worker Lisa Pahl to talk about respite care and how it works. Respite care is part of the care that hospice agencies provide but the details about it can be confusing. Here are a few things you should know about respite care: Respite care offers 5 days of care for a hospice patient to allow the caregiver time away. There is no regulation...

Christy Byrne Yates of Alz Authors has experienced all the unique challenges of sandwich caregiving.   Caring for both of her parents with neurodegenerative diseases (dementia and Alzheimer’s disease) while she raised young kids taught her lessons she now shares with other caregivers. In this open and honest conversation, Christy shares the good times and the struggles of her caregiving experience...

We’re getting back to the basics of hospice care with Hospice Social Worker Lisa Pahl to talk about who’s on the hospice team and what each person brings to the care of patients and caregivers.  This episode focuses on the core members of the hospice interdisciplinary team (doctor, nurse, social worker, and chaplain) as well as hospice aides (Certified Nurse Assistants) and hospice volunteers.  Ea...

Carrie Aalberts (AKA the Dementia Darling) supports dementia caregivers with her heart and soul, and a whole lot of strength. With a Master of Science specializing in Gerontology and over a decade of hands-on experience in various care settings, Carrie has established herself as a leading voice in dementia education and support. As the founder of Dementia Darling, she has cultivated an online comm...

It’s National Healthcare Decisions Day 2025!   This episode features clips from some of our favorite guests, highlighting wisdom and thoughts about advance care planning for the end of life.  You’ll hear some of the brightest and best voices working in the end of life care industry talk about managing hard conversations about dying and death, funeral planning, and choosing a proxy or medical power...

We’re getting back to the basics of hospice - talking about starting hospice care, and what you can expect from a hospice admission.  Hospice nurse Beth Cavenaugh helps to navigate this topic.  There are a lot of moving parts that compose the admission to hospice care. Here are some of the main things you should know about hospice admissions: The admission process includes assessment visits from t...

Patty Webster of The Conversation Project is talking with me about the swoopers and seagulls that are sometimes part of the caregiving experience. As part of her caregiving journey with her dad and siblings, Patty realized that she had been a “swooper”, offering her opinions about her dad’s care during an intermittent visit.  Here’s what Patty says she learned: Supporting the primary caregiver is...

In this fourth and final episode of our special series in partnership with Stanford Healthcare, our guest Susan Evans shares the ins and outs of caregiving, and talks about her work to support other caregivers dealing with the challenges of Alzheimer’s Disease.  As a caregiver, Susan worked to ensure her dad was safe and well cared for.  She and her brother incorporated humor into their caregiving...

Dr. Jocelyn Jiao and Social Worker Mike Polisso of the Stanford Healthcare Palliative Team know the value of getting to know patients and families from the start of the care relationship.  As part of an interdisciplinary team providing neuropalliative care for people and families living with serious neurological illnesses, they’re supporting patients and caregivers and training other healthcare wo...

With courage and vulnerability, Sheralin Samuels shares her experience as a caregiver for her mom, and their journey through Early Onset Alzheimer’s disease.  Here are a few highlights from this episode, created in partnership with Stanford Health Care: Sheralin’s mom Carlys began showing symptoms in 2012, and a definitive diagnosis of Alzheimer’s disease wasn’t found until about 10 years later. ...

This episode is the first in a 4-part special series in partnership with Stanford Healthcare, sponsorsored by Kensington Senior Living. Grant Smith, M.D. and Emily Linderman, BCC from the Palliative Care team at Stanford Health Care are sharing all the basics of palliative care - when to start it, who can benefit from it, and what a PC team does for patients and caregivers.   Here are a few highli...

Social Worker Rosie Gaston brings energy and compassion to the care of people and families dealing with life-limiting illness.  As a passionate clinical social worker, she’s worked for over a decade supporting individuals, families, and professionals through the intricate journey of end-of-life care.  Rosie founded A Better Ending in 2022 to focus on personalized support, community education, and...

Dr. Robert Klitzman has learned the truth about the value of spiritual care through his professional practice and his own lived experience.  As an author, he’s written over 180 articles and books on critical issues in bioethics regarding doctor-patient relationships and communication, research, and other areas.  Robert realized the whole-person impacts of a traumatic grief event after the death of...

My guest Gabby Jimenez and I are busting the hospice myths to get to the truth about end of life care. Because there are so many misconceptions about hospice care, many people don’t choose to have care from a hospice team or they delay hospice care until very close to death. It’s important to know the truth about all the aspects of hospice care - how medicines are managed, how morphine is really u...