The Eye Believe Podcast

2 part session: Join the following three physicians as they discuss new advances in treatment of uveal melanoma of the eye. This session was sponsored in part by Aura Biosciences. They discuss the following:  -RADIATION RETINOPATHY -Pars plana vitrectomy (PPV) with diode -ENDORESECTION -ADVANCES IN TREATMENT OF THE EYE (Aura presentation) Dr. Scott Walter, a practicing ophthalmologist in Hartford,...

A Cure in Sight is joined by Dr. Marlana Orloff, MD, for a brief but highly informative discussion on liver-directed therapies when navigating metastatic disease. Dr. Marlana Orloff is an associate professor of medicine and medical oncologist at Thomas Jefferson University Hospital – Sidney Kimmel Cancer Center in Philadelphia, PA. In this discussion, Dr. Orloff shares a few slides (you can find t...

A Cure in Sight is joined by Alec Mackenzie, a patient diagnosed 3 years ago with ocular melanoma. Alec recently participated in the #lookinforacure walk for OM in Santa Monica and was the top fundraiser of the event! We're so excited to have him on live to share his journey and why he started "The One-Eyed Cooking Show." Alec’s story: “I had absolutely no warning in terms of diagnosis. I’m not on...

In this session, fellow ocular melanoma patient Dr. Terry Watson teaches how to use the telling of your story to aid in the healing journey after a traumatic diagnosis.  Dr. Terry Watson is a graduate of the University of Louisville School of Dentistry and the owner of Midtown Smiles here in Nashville, Tennessee.  He received specialized training in cosmetic dentistry, dental implants, orthodontic...

Join fellow omie, Anne Osborn, as she helps patients navigate "What we can expect of our friends after an OM diagnosis."   Welcome our friend Anne Osborn helping us to understand What we can expect of our friends after an OM diagnosis. Anne Osborn, Author, as a teen grew up in the shadows of OM when her mother died of OM. Forty years later, she was diagnosed with OM, Class 2.   Anne spent her care...

Welcome to your Track 2 session for 9am! In this session you will hear from Dr. John Pino in a talk about low vision.  Dr. John Pino has been providing primary eye care for 36 years. As clinical director of one of the largest Optometric practices in Tennessee, Dr. Pino focuses on providing the latest technology to his patients. He is a member of both the American Optometric Association and the Ten...

In this session from our second track, Joanna from Triage Cancer discusses navigating insurance. Thank you Triage Cancer for your invaluable information. Joanna is a cancer rights attorney, speaker, and author, dedicated to improving access to and availability of quality information on cancer survivorship issues. Monica is the co-founder and Chief Executive Officer for Triage Cancer, a national, n...

Join 5 patients as they discuss their ocular melanoma diagnosis, and some of the struggles, and the strange but welcome gifts that have come despite their diagnosis. Patients participating: Mike Stansbury - diagnosed Dec 2018, metastatic June 2021 Julie Le Blanc - Diagnosed Sept 2018, metastatic in March 2022 Laura Cunningham - Diagnosed June 2013, metastatic in Dec 2013 Steve Durrant - Diagnosed...

Join Dr. David Reichstein of Tennessee Retina to discuss what to expect in your eye after treatment. Dr. Reichstein is a graduate of the world's premier Ocular Oncology Fellowship at Wills Eye Hospital, under the direction of Drs. Jerry and Carol Shields. Dr. Reichstein's interests include the diagnosis and management of patients with all types of ophthalmic tumors, including uveal melanoma or nev...

In this session, Dr. Reichstein, Dr. Schefler, Dr. Hovland, and Dr. Walter will be discussing "Standards of Care for Uveal Melanoma, are there any?" Topics addressed include: - NCCN/TNM Staging & guidelines -Types of Plaque/Proton Beam Treatment -Transpupillary Thermotherapy (TTT) alone (and why we shouldn't do it)   Dr. David Reichstein, an ocular oncologist, who studied at the renowned Wills Eye...

Join Dr. Justin Moser and Dr. Meredith McKean to learn more about the approval of KIMMTRAK and what this means for you as a patient, whether you are HLA-0201 positive and qualify for this treatment drug, or if you do not and wonder what is out there treatment wise for you. Dr. Moser is a Medical Oncologist who specializes in phase 1 clinical trials, drug development, and cutaneous malignancies. He...

Join Dr. Justin Moser and Dr. Meredith McKean, together with Dr. Sanger to discuss navigating an ocular melanoma mets diagnosis. Dr. Moser is a Medical Oncologist who specializes in phase 1 clinical trials, drug development, and cutaneous malignancies. He leads the Melanoma program at HonorHealth Research Institute, and runs one of the only programs dedicated to uveal melanoma in Arizona.   Dr. Me...

Welcome to Eye Believe 2022! Welcome message from Dr. David Reichstein. 

A Cure in Sight is joined by Dr. Sapna Patel, MD, of MD Anderson in Texas. She joins in for a discussion on how she guides patients through the decision making process, as well as some of the key things to be aware of as a patient as you are making decisions about navigating your diagnosis.    Sapna Patel, MD, is a board-certified medical oncology physician, Associate Professor, Uveal Melanoma Pro...

A Cure in Sight is joined by Allie, diagnosed June 1, 2022 at the age of 26 with a small choroidal melanoma. Tune in to hear her story and some of her coping skills she has leaned into as a psychologist by profession.  I don’t really know how to say this, but I was diagnosed with an incredibly rare eye cancer, choroidal melanoma, last week. Thankfully, we caught it early. There’s a lot of uncertai...

In this session, learn what a registry is and what it can tell us with Dr. Armin Afshar from UCSF ocular oncology and one of the investigators of the Insight Registry. Join the Insight registry below, and be sure to keep updating your surveys. www.insight.iamrare.org   Dr. Armin Afshar, MD is an ophthalmologist who specializes in treating eye tumors and disorders of the retina and vitreous (the ge...

A Cure in Sight is joined by Dr. Richard Carvajal for a medical webinar-style discussion on:  - how to understand the data behind a clinical trial? - What the decision making process can look like for managing surveillance, ahead of metastatic discovery, or after and what components go into that process? - Recommended scan protocol from uveal melanoma oncology teams and how they differ and why   C...

A Cure in Sight is joined by Dr. Kristin Markell, M.D., an integrative women’s health provider, to discuss the importance of self-compassion in times of high stress. Dr. Kristin Markell is a double board-certified Integrative Gynecologist practicing in Fayetteville, Arkansas. As a practicing OB/GYN for over a decade, she began experiencing burnout symptoms. While researching and exploring ways to...

In this session, participate in a live group music therapy session and learn about the benefits of music in healing and stress management with Carrie Friddell. Carrie Friddell, MT-BC, NMT, is a Nationally Board Certified Music Therapist and Neurologic Music Therapist. She earned her Music Therapy Board Certification in 2005 and has served both children and adult populations. Additionally, she is a...

Dr. Stone presents on childhood development, and what are developmentally appropriate responses to navigating ocular melanoma as a family. A patient panel also is consulted to discuss various approaches to talking to kids about cancer, from young children to adults.    Dr. Caitlin Stone received her bachelor’s degree in psychology and child development from Tufts University. She earned her PhD in...

In this session, Anne helps patients and caregivers work through the process of being “in the waiting room." An OM diagnosis is chalk full of uncertainty. Anne walks patients and caregivers alike through the processing and caring of ourselves in this state of limbo.  Anne Osborn, author, grew up in the shadows of OM when her mother died of OM. Forty years later, she, was diagnosed with OM, Class 2...

A Cure in Sight is joined by Katariina McCrea from Cookeville, TN  to discuss being newly diagnosed with mets (cancer spread) 15 months after her initial eye diagnosis and treatment.  Due to the nature of her diagnosis, and a few nuances that are unique to her story, this was both a shock, and not a shock–but Kat shares how she has been coping, some of the thought process her medical team has appr...

A Cure in Sight is joined by Presley Jackson and his mom, Stephanie to discuss coming of age with a rare cancer diagnosis. This month is #childhoodcancerawarenessmonth and there are few more brave than kids tackling a cancer diagnosis. Please consider sharing this episode and or starting a fundraiser for ACIS on your page to help us ensure patients have the resources they need, as well as funds fo...

A Cure in Sight is joined by Anna Malloch and her mom, Wendy, to discuss being a freshman in college at the time of diagnosis. Due to the nature of her diagnosis and other complications, she noted they experienced 39 appointments in a single year! Anna shares her story below–tune in to hear more!   “My name is Anna Malloch, I am an OM survivor. I was diagnosed in April of 2020 right when covid loc...

A Cure in Sight is joined by Cynthia Hayes, author of the book, 𝙏𝙝𝙚 𝘽𝙞𝙜 𝙊𝙧𝙙𝙚𝙖𝙡: 𝙐𝙣𝙙𝙚𝙧𝙨𝙩𝙖𝙣𝙙𝙞𝙣𝙜 𝙖𝙣𝙙 𝙈𝙖𝙣𝙖𝙜𝙞𝙣𝙜 𝙩𝙝𝙚 𝙋𝙨𝙮𝙘𝙝𝙤𝙡𝙤𝙜𝙞𝙘𝙖𝙡 𝙏𝙪𝙧𝙢𝙤𝙞𝙡 𝙤𝙛 𝘾𝙖𝙣𝙘𝙚𝙧. Cynthia is a new connection from the #ASCO22 conference attendance this summer. A former journalist, Harvard-trained management consultant, and hospital executive, Cynthia is the author of 𝙏𝙝𝙚 𝘽𝙞𝙜 𝙊𝙧𝙙𝙚𝙖𝙡: 𝙐𝙣𝙙𝙚𝙧𝙨𝙩𝙖𝙣𝙙𝙞𝙣𝙜 𝙖𝙣𝙙 𝙈𝙖𝙣𝙖𝙜𝙞𝙣𝙜 𝙩𝙝𝙚 𝙋𝙨𝙮𝙘𝙝𝙤𝙡𝙤𝙜𝙞𝙘𝙖𝙡 𝙏𝙪𝙧𝙢𝙤𝙞...