The Eye Believe Podcast

Today, hear 10 tips compiled from our website and patient feedback to help newly diagnosed patients in navigating and understanding their initial diagnosis, especially during the first few visits with a doctor, namely: Take notes during your appointments. Stay off google and ask questions of experts! Be prepared for long appointments, especially at first: Bring a light jacket, water, and a snack. ...

A Cure in Sight is joined by Mila and her mom, Kezia, as well as Presley and his mom Stephanie to speak to their journey with ocular melanoma. Here’s a short snippet of each of their stories--tune into the podcast to listen fully! Be sure to subscribe, and share this episode with your friends and family on social--and we would LOVE it if you would consider making a donation to ACIS, or creating a...

A cure in sight is joined by Paige Thompson, in an interview about her 4 year plus journey so far with Ocular Melanoma. After being told she was too young to need her eyes dilated, Paige scratched her left eye. This thankfully led to her ophthalmologist dilating both eyes and eventually referring her to further specialists who diagnosed her with Ocular Melanoma in July of 2017, at the age of 27. S...

A Cure in Sight is joined by Carrie Younger-Howard, a patient in Arizona living with ocular melanoma.   She expresses a piece of her journey below; tune in and listen as you’re able, then be sure to share her story with those you know in hopes of raising more awareness and funding for researching and finding a cure.   ••••••••••••••••••••••••••••••••••••••••••••••••• “It’s malignant. You have canc...

A Cure in Sight is joined by Dr. Scott Walter for a discussion on the importance of biopsies, and how they are being used in the field to diagnose ocular melanoma early on, as well as provide information for how patients should proceed after treatment with scan protocols. He explains the process of the biopsy, the risks involved, and what he does to ensure minimal risk in the procedure, as well as...

A Cure in Sight is joined by Devyn Anderson, who speaks about her journey with ocular melanoma. She was diagnosed at age 23, in October of 2013. At such a young age, she was shell shocked to receive this diagnosis, and felt very “in the dark” as to what her diagnosis meant. Within a week and a half of diagnosis her eye was enucleated and she continued through her life, getting married within a few...

I was diagnosed with Choroidal Melanoma in March of 2008.   My optometrist found a freckle in my eye at a routine exam. I wasn’t going to say anything, but I eventually told her that I had been seeing a flash of light in my right eye for several months.   She sat me back down in the chair and took a much longer, more careful look. She said that she wasn’t qualified to diagnose anything, but that I...

•Barbara's story• I was diagnosed with OM in April 2015. My optometrist found the tumor on a routine eye exam, and then referred me to the retinal specialist. I had a medium sized tumor with plaque treatment (4 days). I had the muscle released to insert the plaque. I didn't have tumor testing because insurance wouldn't pay for it in 2015. I have 20/40 vision in my right eye. I had a cataract remov...

In 2014 I learned the words Ocular Melanoma. It was August. I was in Florida visiting my parents, and I decided to get new glasses. This time, however, the doctor found what he called a worrying little freckle, and thought it would be a good idea to consult a Retina Specialist. That week, I went from Retina Specialist to various appointments at Bascom Palmer. I was diagnosed with OM and my plaque...

“Life only gives you what you can handle, well apparently life thinks I’m a badass” Hi, my name is Nicolette Pagliei and I am 22 years old from West Chester PA. At 22 years old I just graduated from Kutztown University in May where life was just perfect, and I was so ready to take that next step into the world, but the world had different plans for me. And even though the world was already differe...

Do you really know your sunscreen?  Learn about an all-natural, good for the earth, sunscreen that really works from Love Sun Body.

Jaime Jessen with Impact Genetics talks about ocular melanoma genetic testing and tumor mutations.

Arjun was born with ocular melanoma.  His mother, Sumathy, talks about his diagnosis and how Arjun is doing today.  

Welcome to The Eye Believe Podcast! A short description for what you can expect from this podcast to support you in your journey with ocular melanoma: - patient stories - caregiver interviews - The Eye Believe Seminar Recordings when we release them - interviews with the experts - mental health support from qualified experts - announcements for what's going on in the world of ocular melanoma aware...

Presley was 13 when he was diagnosed with ocular melanoma.  His mother Stephanie talks about his diagnosis, treatment, and life after ocular melanoma treatment.