The Dementia Collective

What if Hollywood’s dementia problem is not just what it shows, but what it leaves out? In this episode, Andrew Karesa sits down with filmmaker, writer, director, producer, and caregiver advocate Susie Singer Carter to explore dementia, storytelling, long-term care, and the responsibility that comes with representing people who are too often misunderstood. Susie shares the story of caring for her...

In this episode, ⁠ Andrew Karesa ⁠ sits down with ⁠Cindy Diogo⁠ , CEO and Co-Founder of ConSoul , to explore what it means to support employees who are caring for a loved one living with dementia. Drawing on her background in HR and People & Culture, as well as her own family caregiving journey, Cindy reflects on the growing reality that more families are trying to navigate dementia care while...

What can one year of dementia conversations teach us about care, stigma, grief, advocacy, and hope? In this special one-year anniversary episode of The Dementia Collective, Andrew Karesa steps out of the interviewer’s chair and becomes the guest. Joined by guest host Anoushka Fernandes , Andrew reflects on how the show began almost by accident, what it has grown into, and what a year of conversati...

What if dementia is not only a medical condition, but a story shaped by who gets to tell it? In this episode, Andrew Karesa sits down with novelist and screenwriter Alfredo Botello to explore caregiving, storytelling, and the power of representation. Alfredo shares his experience caring for his mother and how that journey influenced his writing. From the private realities of family caregiving to t...

What happens when a family is left to navigate dementia without clear guidance or support? In this episode, Andrew Karesa sits down with Lori La Bey , founder of Alzheimer’s Speaks , to explore what a decades-long caregiving journey reveals about the realities of dementia care. Lori supported her mother through a 30-year experience with dementia. What began as confusion and uncertainty became a li...

What happens when correcting someone you love no longer brings clarity, and may actually increase distress? In this episode, ⁠Andrew Karesa⁠ sits down with ⁠ Karen Tyrell⁠ , founder and CEO of ⁠ Personalized Dementia Solutions ⁠, to explore one of the most common and misunderstood challenges in dementia care: the instinct to correct. With more than 30 years of experience supporting families and fr...

How do you stay connected to someone when dementia seems to be pulling them further away? In this episode of The Dementia Collective, Andrew Kares a sits down with Glenna Hecht , author, speaker, and former HR executive, to explore the unexpected game that transformed her nine year journey caring for her mother living with dementia. Glenna shares the moment everything shifted. After watching her m...

Why do so many men struggle to ask for help when caring for someone living with dementia? In this episode of The Dementia Collective, Andrew Karesa sits down with Ron Beleno , caregiver advocate and leader in the aging and dementia space, to explore the role men play in dementia caregiving and why many feel pressure to handle the responsibility alone. Ron begins by sharing his own caregiving journ...

What does it mean to love someone whose personality is changing and to slowly realize it is not them? In this episode, Andrew Karesa sits down with Erin Chalmers , co-anchor of Global Edmonton Morning News , daughter, caregiver, and Board Member of the Alzheimer Society of Alberta and Northwest Territories , to talk about her mother’s Alzheimer’s diagnosis and the quiet shift from confusion to cla...

What if the problem isn’t whether Canada has a dementia strategy, but whether families can actually feel it? In this episode, Andrew Karesa sits down with Dr. Saskia Sivananthan to examine the gap between Canada’s National Dementia Strategy and the lived reality of families, clinicians, and communities trying to navigate brain change. Drawing on her experience working at the intersection of resear...

What happens to joy when dementia enters the picture? When routines change, roles shift, and caregiving becomes heavier than anyone expected, is joy still possible, or does it quietly disappear? In this episode of The Dementia Collective, Andrew Karesa sits down with  Carrie Aalberts , gerontologist, dementia educator, and founder of Dementia Darling , to explore why joy still matters in dementia...

What if The Notebook was never really a love story? Most people remember it that way. But underneath the romance, the film is doing something much more unsettling. It’s exploring what happens when memory fades… to the point that identity itself begins to break apart. In this video, we look at why The Notebook might actually be one of the most revealing films about dementia, caregiving, and the way...

What does it mean when a former governor says caregiving was harder than public office? In this episode, Andrew Karesa sits down with former Wisconsin Governor Martin J. Schreiber, author of  My Two Elaines , for a deeply personal conversation about loving, caring for, and slowly losing his wife Elaine after her Alzheimer’s diagnosis. Marty brings a perspective few people can offer. He has lived i...

What happens to faith when memory fades, words disappear, and the person we knew begins to change in ways that feel unfamiliar, or even unsettling? In this episode of  The Dementia Collective , Andrew Karesa sits down with Elisa Bosley , chaplain and founder of SpiritualElderCare.com , to explore how faith, music, and presence continue to matter in dementia care, especially near the end of life. E...

What if good dementia care was not about getting everything right, but about understanding the person in front of you? In this episode, Andrew Karesa sits down with Dr. Natali Edmonds , board certified geropsychologist and founder of Dementia Careblazers , to explore what caregivers are rarely told about dementia care, and why striving for perfection often makes the journey harder, not better. Nat...

What if Inside Out accidentally explained how memory really works? Pixar created a world where memories form as glowing spheres, fade over time, and are reshaped by emotion. It’s a beautiful storytelling device. But it’s also surprisingly close to what researchers understand about how human memory actually works. In this video, we explore why Inside Out might be one of the most accurate films abou...

What happens when families sense cognitive change years before dementia is ever named, and are left living in uncertainty while waiting for clarity that arrives too late? In this episode, Andrew Karesa sits down with Greg McGillis , engineer, entrepreneur, and founder of Brain Care Technologies , to explore why dementia is so often detected only after lives have already been disrupted, and what mi...

What if the most powerful story in Coco isn’t about music at all? In one quiet moment near the end of the film, Pixar reveals something deeply human about memory, aging, and the fear of being forgotten. When Miguel sings Remember Me to Coco, the song stops being about fame or performance and becomes something far more personal — a bridge back to memory. In this video, we explore the hidden story i...

What happens when a diagnosis doesn’t just change a life, but quietly changes the way a room responds to you? In this episode,  Andrew Karesa  sits down with  Phyllis Fehr , an international dementia advocate, registered nurse, author, and human rights leader who has been living with a diagnosis of early-onset Alzheimer’s since the age of 53. Phyllis’s relationship with dementia began long before...

What if dementia isn’t just something that happens to us, but something shaped over time by how we live? In this episode, Andrew Karesa sits down with Dr. Tommy Wood , neuroscientist, physician, and author of  The Stimulated Mind , to explore one of the most challenging ideas in brain health: that a significant portion of dementia may be preventable, and that everyday choices play a meaningful rol...

In this Ask the Experts conversation, Governor Martin Schreiber, Ron Beleno, Alfredo Botello, and Spencer Cline explore why so many male caregivers struggle to ask for help. The discussion examines the pressure men often feel to stay strong, handle everything alone, and suppress their own needs, while also unpacking the guilt, silence, and isolation that can come with caregiving. Disclaimer: The i...

What if dementia care isn’t about having the right answers, but about responding to the moment you’re in? In this episode, Andrew Karesa sits down with Teepa Snow , one of the most respected voices in dementia care, to explore what it really means to support someone living with brain change when memory, language, and recognition come and go. Drawing on more than four decades of experience as an oc...

What if supporting people living with dementia was not only about care, but about activity, connection, and purpose? In this episode, Andrew Karesa sits down with  Haidong Liang , gerontologist and CEO of WE Seniors and the Westend Seniors Activity Centre, to explore why meaningful activity is critical in dementia care and healthy aging. Haidong shares how his work bridging research, policy, and r...

In this short bonus episode of The Dementia Collective, Andrew Karesa turns to the DC universe and one of Batman’s most fascinating ideas: the Lazarus Pit. Within the mythology of DC Comics, the Lazarus Pit offers an extraordinary promise. When the body begins to fail, the pit restores it. Age recedes. Strength returns. Life begins again. But beneath that supernatural premise lies a deeper cultura...

What happens when childhood unfolds alongside loss — not all at once, but slowly, quietly, and long before anyone knows how to name it? In this episode,  Andrew Karesa  sits down with  Spencer Cline  — FTD advocate, former college basketball player, endurance athlete, and AFTD Ambassador — to talk about what it means to grow up while a parent is living with dementia. Spencer’s father began showing...