The Bendy Nurse

In this episode, I share my personal experience living with  narcolepsy with cataplexy , from early symptoms in childhood to my diagnosis in 2018. I talk about what narcolepsy actually looks like day to day—excessive daytime sleepiness, cataplexy triggered by laughter or surprise, vivid dreams, and the long-term impact of living with a chronic neurological condition. This episode is intentionally...

Turns out, Ehlers Danlos and weight loss may impact your muscle mass and joint stability more than you may know. Stay tuned to hear more about how weight loss can impact loss of muscle mass leading to potential joint instability and worsened chronic pain. I would love to hear from anyone with EDS / HSD that may have experienced significant or rapid weight loss and subsequently suffered from worsen...

Navigating Chronic Illness: Insights from an Occupational Therapist's Journey with Ehlers-Danlos and EndometriosisChronic illness can often feel like a solitary journey, but sharing experiences can foster understanding and empathy. In this episode of the Bendy Nurse podcast, host Mallory Macon interviews Zada, an occupational therapist, who opens up about her personal journey with Ehlers-Danlo...

When your child is diagnosed with Type 1 Diabetes, life changes overnight. In this episode, Kaelynn shares her journey as a mom learning to navigate her son's diagnosis - emotionally, medically, and mentally. Whether you're a parent of a child with a chronic condition or just trying to make sense of the chaos of motherhood, you'll find pieces of your own story here. We talk about the h...

Welcome to the first episode of The Bendy Nurse Podcast! Episode 1 talks about some general background info about EDS, in particular, why the zebra is the symbol for the EDS community. Hear a little bit about my experience leading up to and since diagnosis, and a little bit of what I hope to achieve out of publishing this show. I look forward to what's to come and hope you all will find this t...