Team Vasculitis: Thriving through Life with Chronic Illness

Even if you're doing the best you can. Even if you're doing all the things to the best of your ability, if your disease is one of the ones that can flare… then at some point it probably will. It's this cloud following you around ready to shut out the sunshine, and take away the joy. Join us on Instagram: http://www.instagram.com/teamvasculitis PLEASE CONSIDER LEAVING A REVIEW!

Welcome to EMPOWERED A series that brings to you resources to empower yourself to live a full life. Meet Brooklyn! She helps you release stress and live with ease through yoga, meditation + breathwork. Our conversation filled me up and delievered so much information I had never heard. You are not going to want to miss this. Connect with Brooklyn: https://www.instagram.com/brooklynb.yoga/ Clarity C...

When the clip came out where Ashton said he had vasculitis, it sent the community talking. One of the things is excitement that he is advocating, but is he? Another thing was frusteration that he used the past tense of "had." I talk about all of this as well as share some basic vasculitis info in this episode. Ashton's Charity Thorn: https://www.thorn.org/ Team Vasculitis Instagram: http://www.ins...

Welcome to EMPOWERED A series that brings to you resources to empower yourself to live a full life. Meet Sarah Hines! She helps you feel better about yourself, prioritize yourself, learn to set boundaries, enjoy life more, and know your worth is not determined by your size! She is my go to when I need a smile as I am scrolling social media and I know you will love her message as much as I do! Conn...

Something all chroncially ill people struggle with is figuring out if their symptoms are their disease, or if they are something else. In this episode I break down how to figure it out, and why it's very important to learn and understand your body! Join the community: Instagram: https://www.instagram.com/teamvasculitis/ Facebook: https://www.facebook.com/groups/teamvasculitis Join the Email List:...

Our lives change so dramatically when we become chronically ill. We just don't have the capacity we used to. Where you might have always been everyone's go to "yes" person happy to jump in and help or save the day for anyone and everyone you knew, now you have to become someone else and if you are dealing with guilt about it, this episode is for you! Join us at Team Vasculitis on Instagram http://...

So what exactly does depression do to you? Well, it can affect how you feel, think, and handle daily activities, such as working, sleeping, and handling self-care… I know you're making the same correlation that I am - wow, that sounds just like my chronic illness! Depression is one of the leading reasons chronically ill patients don't get the care they need. Listen to this episode to find out more...

How often do you stop yourself from accepting or even going after things you want because of what "might" happen? How often do you let yourself believe that you deserve less because of your illness? I get it, I do it too... and yet, you don't actually deserve less. So let's talk about it! Instagram: http://www.instagram.com/teamvasculitis Join the Team Vasculitis Email List: https://teamvasculitis...

I really want to acknowledge that when you're young and you deal with these diseases it is devastating in a way that, although we can come together in understanding with most who have chronic illnesses, is different for people who have lived a full life cannot understand. Instagram: http://www.instagram.com/teamvasculitis Hack Your Health: https://bit.ly/3c3lz1l

Here's a hard truth you need to be warned about and no one really does. You aren't going to be able to fully process what "chronic illness" means when you get your diagnosis. You just aren't. Your brain can't process forever. The forever you face is different than anything else you have faced in your life. Most of the things in your life you either actively choose to stay in the forever, or you ca...

Meet Hannah! IgA Vasculitis Warrior. IgA Vasculitis was formerly known as Henoch-Schönlein purpura. Like so many of us she had to fight for people to believe that something was wrong with her. She was young, health conscious, and fit - so how could she be sick, right? She shares her symptoms, journey, and more. Follow Hannah: Tiktok:  www.tiktok.com/@hannahthaiss   Instagram:  www. Instagram.com/J...

I so badly wanted it to go like this: Get a diagnosis, get the treatment, heal, get in remission, continue on with my life. I think many of us get into that mindset because we don't know any better. But we need to know the truth. So here it is... Team Vasculitis Instagram: http://www.instagram.com/teamvasculitis

Animals may be the best way for us to get support mentally and emotionally. There are studies out there that show evidence that having a pet can help reduce your blood pressure and loneliness. Join the Waitlist: https://bit.ly/3sViLcp Sign up for the email list: https://teamvasculitis.com/team-vasculitis-email Connect with the community: http://www.instagram.com/teamvasculitis  

It has been a long decade since I was diagnosed. It's been a struggle to make it through all of the things. It's been heartbreaking and soul shattering, filled with several identity crises. It's also been joyful and peaceful. It's given me a perspective that allows me to find more fulfillment than I ever did before. I no longer waste much energy wondering or worrying what most people think of me....

I have spent so much time over the past year thinking about you. Trying to figure out what it is that I can do to provide more support and more value to you. So, what can I do to help you? I kept coming back to that question. How can I do more to help you? What can I create to improve your life? Join the community: Http://www.instagram.com/teamvasculitis Join the Chronic Illness Survival Kit Waitl...

Once you have a chronic illness, every single day you face multiple things that remind you that you are not a "normal" or "healthy" person. Sometimes it's the medication you have to take. It could be the supplements you have found help your body function. It might be how much planning you have to do just to get through your day, or the things you don't even try to do because you know what it will...

You might be missing what is actually going on with your body because you're so used to it that you may be experiencing sensations that you aren't registering or conversely, you might be thinking you are experiencing sensations that you actually are NOT feeling. This episode breaks down how you can prevent this issue! Join the Community: http://www.instagram.com/teamvasculitis Check out the websit...

Meet August! This amazing human spends so much of his time spreading not only awareness for the Trans, Asian, and Disabled communities but joy and light too. He has Behcet's Disease and as a Vasculitis warrior he supports others through their process. Connect with August: https://www.instagram.com/withlove_august/ https://www.tiktok.com/@withloveaugust Connect with Team Vasculitis: https://www.ins...

Today we dig into the struggles that all chronically ill people have to face with their mental health. With or without a diagnosis, you face a life change that many around you won't ever understand. You can't meet cultural standards of productivity. You can't show up as a loved one the way you used to. You may not even be able to do any of the things that you used to, and so you face an identity c...

When you're struggling to find balance, we often look to all of the different ways you can help your body heal. The messages of how exercise can help are prevalent... for healthy people. The question is, how safe and healthy is exercise for someone with Vasculitis? Listen to get all the must have information! Join others who get it: http://www.instagram.com/teamvasculitis Get all the information a...

Take note of your after visit summaries and your office visit notes. I go into great detail in this episode about my own case because I want to illustrate on how many levels doctors can get your information wrong. I know how difficult it can be when you have serious issues going on to also keep up with these kinds of things. For all the details listen to today's episode streaming anywhere you list...

Doctors appointments are overwhelming. You have so many questions, and only one small chance to get them answered. If you prepare ahead of time, you an set up a system that makes sure you your doctor is ready with answers for you, and you are ready to hear them. Instagram: http://www.instagram.com/teamvasculitis Website: http://teamvasculitis.com Patreon: http://www.patreon.com/teamvasculitis

The challenge we have to overcome is that we have spent our entire lives, especially if you live in the United States, being told to do more, be more, aspire to more. Then… you get sick, and you can barely do anything. Depending on where you are in your journey, you may not be able to do much of anything and that's where our new education on the dark side of hustle culture starts. Connect at: http...

WE AS A COMMUNITY should have a voice so the things we need are researched and that's where groups like the Vasculitis Foundation could increase how they support us exponentially by INCLUDING us.   Your thoughts. Your journey. We, as a community, need to know your truth. No matter how THEY see it. From onset due to vaccination. To sexism and ableism from our medical staff. To medical gaslighting a...

Meet Melinda!!! Her story is similar to mine - she went through trials as a mom with chronic illness and was raising kids with disabilities. Then she realized there was no support for her - for us. So, she decided to change that by creating it herself!!! I love what she's doing! Her mission and her message are SO important. Follow Melinda at: https://www.instagram.com/heymomme http://www.heymomme....