Team Vasculitis: Thriving through Life with Chronic Illness

Boundaries are VITAL for your mental, emotional and physical health - chronic illness or not. Today I dive into why you need boundaries and easy ways to implement them. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find our community, and feel a little less alone in the...

  Meet Chantel! After realizing that she was holding herself back from things she wanted, she decided to take action and learn how to take control of her money and her life. In today's interview she gets vulnerable AND shares some amazing insights as to how to get started and ways to maximize your financial potential. Links: www.chantelcoaches.com www.instagram.com/chantel.laughlin   Please don't...

You aren't going to want to miss this episode! Holly is a cancer survivor AND auto immune warrior who spent most of her life as a top tier over achiever and has had to learn to thrive through life no matter how much it throws at you... and through that process she discovered the power to take control of her life and her happiness! Here's where you can find Holly: Website:  https://academy.pinkfort...

I know the pain of realizing people you believed were part of your inner circle separating themselves from you. They don't want to see what you share online. The reality of what you're going through makes them feel a certain way. Some people won't want to see or hear it. Some people will walk away. Some people will unfriend and unfollow… and it sucks and it hurts… and, it's also okay. Episode 179...

A breakdown of what Giant Cell Arteritis (GCA) and what you need to know as a patient as well as insight from patients on life with GCA.   Here's what you'll find in this episode: What is Giant Cell Arteritis (GCA)?  Who gets Giant Cell Arteritis? What Causes Giant Cell Arteritis? What are the Symptoms of Giant Cell Arteritis? How is Giant Cell Arteritis Diagnosed? How is Giant Cell Arteritis Trea...

A breakdown of what Behcet's Disease and what you need to know as a patient as well as insight from patients on life with Behcet's. Here's what you'll find in this episode: What is Behcet's? What are the classic symptoms of Behcet's? How is Behcet's Diagnosed? What Causes Behcet's? Who gets Behcet's? How is Behcet's Treated? Side Effects from Medications Life with Vasculitis Patient to Patient Cat...

A breakdown of what Cutaneous Small-Vessel Vasculitis (CSVV) and what you need to know as a patient as well as insight from patients on life with CSVV. Here's what you'll find in this episode: What is Cutaneous Small-Vessel Vasculitis? History of Cutaneous Small-Vessel Vasculitis? What are the symptoms and signs of Cutaneous Small-Vessel Vasculitis? How is CSVV Diagnosed? How is CSVV treated? Who...

A breakdown of what Eosinophilic Granulomatosis with Polyangiitis is and what you need to know as a patient as well as insight from patients on life with EGPA. Here's what you'll find in this episode: What is EGPA? What are the symptoms of EGPA? Complications from EGPA How is EGPA Diagnosed? How is EGPA treated? Side effects from the medications Can EGPA come back? Life with Vasculitis Patient to...

A breakdown of what Cryoglobulinemia and what you need to know as a patient as well as insight from patients on life with Cryoglobulinemia. Here's what you'll find in this episode: What is Cryoglobulinemia? What are the symptoms of Cryoglobulinemia What Causes Cryoglobulinemia? How is Cryoglobulinemia treated? Life with Vasculitis Patient to Patient Please don't forget to click that subscibe butto...

It can be so easy to want to just go all in with a new friend who "gets it" when for so long you have felt alone in your rare disease or chronic illness journey. Today I talk about why you need to avoid the "too close too soon" trap and how to do that! You can find Team Vasculitis at: http://www.teamvasculitis.com Please don't forget to click that subscibe button whereever you listen to the podcas...

Meet Lauren! A Vasculitis warrior who has managed her career at a large corporation, with two daughters, under the age of 5 at the time of diagnosis, AND a rare disease that caused permanent damage to organs as she sought answers. Watch her talk here: https://rumble.com/v2nz4m8-navigating-a-career-and-motherhood-with-a-chronic-illness.html Please don't forget to click that subscibe button whereeve...

Today's episode is a special one! Today for the 2nd Annual Team Vasculitis International Vasculitis Awareness Day Symposium Kayla shares with you her journey with Vasculitis, POTS, Fibromyalgia and more... and not only how fitness helps her every day, but how it actually takes much of her pain away. Follow Kayla at: https://www.instagram.com/autoimmune_fitwarriorsoul   Please don't forget to click...

A breakdown of what Cogan's Syndrome and what you need to know as a patient as well as insight from patients on life with Cogan's. Here's what you'll find in this episode: What is Cogan's Syndrome? Who gets Cogan's Syndrome? What are the symptoms of Cogan's Syndrome? How is Cogan's SyndromeDiagnosed? How is Cogan's Syndrome treated? Side Effects from Medication Life with Vasculitis Patient to Pati...

A breakdown of what Aortitis and what you need to know as a patient as well as insight from patients on life with Aortitis. Here's what you'll find in this episode: What is Aortitis? What causes Aortitis? Who gets Aortitis? What are the symptoms? How is Aortitis Diagnosed? How is Aortitis treated? Side Effects from Medications Your Medical Team Life with Vasculitis Patient to Patient Please don't...

Meet Lucy! After fighting for anyone to take her seriously, because she was "too young" to be sick, Lucy had to learn how to manage life with Takaysau's Arteritis, being a young mom, and advocating for herself. Now, she uses one of her strongest tools - nutrition - to help others live healthier lives. Read her blog post on the Anti-Inflammatory Diet here Follow Lucy: Instagram @ _heal_thy_self__ F...

A breakdown of what Anti-GBM/Goodpasture's Syndrome and what you need to know as a patient as well as insight from patients on life with Goodpasture's. Here's what you'll find in this episode: What is Goodpasture's? What causes Goodpasture's? What are the symptoms? How is Goodpasture's Diagnosed? How is Goodpasture's treated? What are Your chances of getting better Life with Vasculitis Patient to...

A breakdown of what Central Nervous System Vasculitis and what you need to know as a patient as well as insight from patients on life with CNS/PACNS. Here's what you'll find in this episode: What is CNS? What are the symptoms of CNS? What causes CNS? How is CNS Diagnosed? How is CNS treated? Side effects from the medications Life with Vasculitis Patient to Patient Please don't forget to click that...

I get asked so often "What is Vasculitis?" So today - if you're listening to this in real time - it is May 2023 and that means it's Vasculitis Awareness month! In honor of that I thought I would kick the month off with an overview of what this family of diseases is. In today's episode: What is Vasculitis? Who gets Vasculitis? What are the symptoms of Vasculitis? What are the types of Vasculitis? H...

Cold can be healing! Have you ever utilized heat or cold for your pain or for your health? Cold water therapy is the practice of using water that's around 59°F (15°C) to treat health conditions or stimulate health benefits. It usually involves submerging your body in cold water for a short period of time, usually between 30 seconds to a few minutes. There are definitely benefits to cold therapy… u...

The longer you struggle with your health - physical or mental, the more of a struggle it becomes because it starts to influence more and more aspects of your life. So the best thing you can do is to face it head on and do it with a gameplan. Management is essential to your ability to function. So… Here is what I suggest you focus on to go from overwhelmed by all of these aspects of your life, to m...

I felt so alone. I felt really lost. I felt completely scared. I didn't know what was happening, or how to totally manage it. I was losing friends and had loved ones even attacking me because I wasn't getting better, or showing up for them the way I used to be able to. Even the people I told how sick I was, didn't understand. They interpreted it as - you have a diagnosis and had treatment, why are...

One of the biggest struggles the chronic illness community struggles with is the harsh realization that doctors will lie and won't care and won't help the vast majority of the time. Yes, seriously… the vast majority of the time. Today I share my three favorite lies. Here's the Reel I mention: https://fb.watch/jH7JV6pi1h/ Please don't forget to click that subscibe button whereever you listen to the...

When it comes to living with a chronic illness it can feel as though you're living in a completely different reality than the rest of the world around you. Loved ones you were once in such alignment with, no longer understand what you're going through… sometimes they even say things like they don't really know who you are anymore. They're dismayed at how to support you and interact with you. They...

My family moved across the country - and one of the biggest reasons was to be closer to different care for my rare disease. After we had been treated poorly, ignored, attacked, and dismissed by multiple medical facilities in California I had only the smallest glimmer of hope that things could be different... Today I share with you what happened when I visited University of North Carolina's Vasculi...

One of the challenges you face as a chronically ill patient is figuring out how to best care for and support your body. For most of us it doesn't take long to discover that clinical medicine is only one piece of the puzzle. I talk alot about functional medicine because I truly believe that so much more can and should be done to support your health and your body holistically, but that in no way mea...