Retina UK

This webinar was broadcast live on Thursday 25 January 2024. It is available in video format on our YouTube channel: https://youtu.be/3kTVF8SoA0w . With more treatments coming through the development pipeline, we are all hopeful that more of those living with inherited sight loss will be offered the opportunity to take part in clinical trials in the years to come. But what’s it like to be a partic...

The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: ⁠RetinaUK.org.uk/get-involved/mailing-list/⁠ . Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit  ⁠⁠RetinaUK.org.uk/get-i...

In this last episode of Blindingly Chatty, Laura Tyler is interviewed by Paula McGrath about her internship at Retina UK, her journey before it, and all that she’s gained from her time in the organisation. Laura worked as a Communications Intern at Retina UK from February - November 2023.

In this month’s edition of Blindingly Chatty, Laura Tyler and Mark Pampel follow on from the subject of musical instruments and discuss composition, improvisation and performance. Mark tells us how he got into music, along with giving some tips for those who are thinking of taking music to that next level.

This webinar was broadcast live on Thursday 7 December 2023. It is available in video format on our YouTube channel: https://youtu.be/x7ZyVxmla7I Nikolas is a bioinformatician, who uses computer power to tackle medical research challenges. He will be talking about his project to develop AI that will identify the genetic cause of an inherited retinal conditions from scans, without the need for a ge...

This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2023 (Issue 181). You can download a copy in PDF and Word format on the Retina UK website:  ⁠RetinaUK.org.uk/resources⁠ . Contents in this edition are as follows: Track 2: Reflecting back and looking forward (Tina Garvey) Track 3: Harnessing the power of AI Track 4: Searching for the cause of Charles Bonnet Syndrome Track...

A video version of this Webinar is available on our YouTube channel: https://youtu.be/0s1C3kXnXWc Join us for a brief overview of the Government’s Access to Work scheme, learn how it could support you at work, and hear the experiences of a number of people with inherited sight loss who receive an Access to Work grant. We will be joined by Josh Freehan, Head of Internships at TPT. Josh has worked c...

The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: https://retinauk.org.uk/get-involved/mailing-list/ . Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit  ⁠RetinaUK.org.uk/...

The Blind Poet, Dave Steele, talks candidly about his diagnosis, his poetry and his optimistic mindset. https://www.theblindpoet.net/

This podcast covers the most important professionals who work with the sight loss community, along with their abbreviations and what they do to improve people’s lives.

We were joined for this popular ‘Ask the expert’ session by Samantha de Silva, a consultant ophthalmic surgeon at Oxford Universities Hospital Trust. She answered a wide variety of questions relating to inherited retinal dystrophies. If you would prefer to watch a video of the Webinar, it is available on our YouTube Channel: https://youtu.be/f_1UEV7M8jQ

The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit  ⁠RetinaUK.org.uk/get-involved/donate/⁠  to sign up, or, if you prefer, call us on 01280 821334.

The difference we made in 2022

E-newsletter August 2023

On this episode Laura Tyler, Yanan Yu, and Steve Golden talk about their experiences with learning and playing instruments, and how people with sight loss can play and learn no matter their level of vision.

This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2023 (Issue 180). You can download a copy in PDF and Word format on the Retina UK website:  RetinaUK.org.uk/resources . Contents in this edition are as follows: Track 2: The best days of the year (Tina Garvey) Track 3: Articles for the Blind Track 4: Your newsletter, your choice of formats Track 5: Your feedback matters T...

In this episode Laura and Mark talk about their dreams and how they see the world in sleep. Mark is living with retinitis pigmentosa so his sight has deteriorated over his life, whereas Laura lost her sight at a very young age. They also briefly cover Charles Bonnet Syndrome (CBS).

Welcome to the 46th Retina UK Annual Conference where we come together for knowledge sharing, support, and empowerment within the inherited sight loss community. Whether you are attending online or in person this year, thank you for joining us. We have a packed programme for you today. This conference aims to foster a collaborative environment, bridging the gap between cutting-edge research and th...

Welcome to the fourth Retina UK Professional Conference where we come together to support you in your work with the inherited sight loss community. Working in partnership we aim to equip you with the knowledge you need to make the biggest difference for your service users. We are pleased to offer CPD accreditation for today's Conference. It is available for all attendees. A full video version...

Retina UK E-newsletter June 2023

This leaflet is available in audio, PDF and Word formats. If you would like to access the leaflet in one of the other formats, please visit RetinaUK.org.uk/resource/leaflet/

Have you ever really thought about how you use your  sensations after sight loss? Does your sense of humor relate to your ability to tell a joke or hear a joke? Find the answers to these questions and more in our ‘Blindingly Chatty’ podcast from Laura and Mark.

This event is free to attend and will be CPD-accredited. Attend in-person in London and network with colleagues, or online. Highlights include: Experience of diagnosis/points of impact for those living with inherited sight loss: Dr Jasleen Jolly, Anglia Ruskin University Sight loss pathway: A collaborative approach: Robert Cooper, Strategic Engagement Lead NHS, RNIB Learning from lived experience:...

Book now to attend the Retina UK annual conference in London, or online, on Saturday, 24 June. The event is free to attend and highlights will include: Retina UK vision of treatments for all - Gene therapy – Augmentation, editing, and silencing: Prof Tara Moore, Ulster University. - The potential of stem cell treatments: Prof Lyle Armstrong, Newcastle University. - Practical example of gene therap...

The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit  RetinaUK.org.uk/get-involved/donate/  to sign up, or, if you prefer, call us on 01280 821334.