Retina UK

Many people with inherited retinal dystrophies (IRDs) ask what they can do to protect their remaining vision and maintain good eye health. In this informative webinar, we'll explore practical steps you can take to support your sight and make the most of the vision you have. Led by Louise Gow, Head of Eye Health, Optometry and Low Vision at the RNIB, this session will cover the importance of re...

In this episode of the Retina UK Podcast, we sit down with Tilly Dowler, known to many on social media as @the_blind_stylist . Living with stargardt disease, Tilly uses her platforms to share honest insights into life with sight loss while challenging common misconceptions about visual impairment. We discuss her diagnosis, her journey to becoming more confident about her sight loss, and how she bu...

Our monthly e-Newsletter featuring the latest updates from Retina UK.

Professor Robin Ali, Director of the Centre for Gene Therapy & Regenerative Medicine, KCL.

Tina Garvey, Chief Executive, Retina UK.

Stories from some of our fantastic fundraisers. Jess Mortlock, Interim Director of Income Development. Tam Sanford and Lisa Sanford, who have a child living with inherited sight loss.

Our panel of experts share their professional and personal experience to bridge the gap between cutting-edge innovation, including AI, and everyday reality. Barrie Lane, Tech Advisor at Beacon Centre. Keith Dear, Tech Advisor at Sight for Surrey. Mark Baxter, Information and Support Coordinator, Retina UK. Anna Holloway and Ellie Dowdy, Retina UK Tech Peer Support Group volunteers.

Tina Garvey, Chief Executive, Retina UK. Professor Martin McKibbin, Consultant Ophthalmologist, University of Leeds. James Moore, who is living with inherited sight loss. Bhavna Tailor, Chief Executive, Stargardts Connected and Ethan Tailor, who is living with inherited sight loss.

A panel with representatives from biotechnology companies Sepul Bio, Alkeus and AAVantgarde.

Tina Garvey, Chief Executive, Retina UK.

Dr Henry Stennett, Senior Research Coordinator, Retina UK, Mark Baxter, Information and Support Coordinator, Retina UK. James Moore, who is living with sight loss

A panel session with members of our community. Paula McGrath, Deputy Chief Executive, Retina UK

Professor Susan Downes, Consultant Ophthalmologist Oxford Eye Hospital and Honorary Clinical Senior Lecturer at Oxford University. Dr Amanda Salisbury, Consultant Clinical Oncologist at Oxford University Hospitals NHS Trust. Clare Abbott, Senior Eye Clinical Liaison Officer

Our panel of experts share their professional and personal experience to bridge the gap between cutting-edge innovation, including AI, and everyday reality. Barrie Lane, Tech Advisor at Beacon Centre. Keith Dear, Tech Advisor at Sight for Surrey. Mark Baxter, Information and Support Coordinator, Retina UK. Anna Holloway and Ellie Dowdy, Retina UK Tech Peer Support Group volunteers.

Tina Garvey, Chief Executive Retina UK

Our monthly e-Newsletter featuring the latest updates from Retina UK.

More information about our Professionals' Conference 2026 can be found on our website: ⁠RetinaUK.org.uk/event/professionals-conference/

More information about our Annual Conference 2026 can be found on our website: ⁠RetinaUK.org.uk/event/annual-conference/

This is the audio edition of the Retina UK Newsletter, Look Forward - Autumn 2026 (Issue 191). You can download a copy in PDF and Word format on the Retina UK website:  ⁠⁠https://retinauk.org.uk/resources⁠⁠ . Contents in this edition are as follows: We're counting the days until our conferences Free CPD-accredited conference for professionals Retina UK Annual Conference Nutrition and inherited...

In this session, our speakers will explore what it means to navigate early adulthood with a visual impairment, offering  insights into key areas of life including  hobbies, friendships, travel, employment and being involved with Retina UK . This is a opportunity to hear real stories, learn from lived experiences, and gain practical perspectives on building independence, maintaining connections, an...

Find out more about the difference we made in 2025. This report is also available in PDF and plain text (Word) formats on the Retina UK website: ⁠RetinaUK.org.uk/resource/impact-report-2025/

In this episode of Meet the Professionals, Eve speaks with Professor Marcela Votruba, Professor of Ophthalmology at Cardiff University and Consultant Ophthalmologist at University Hospital Wales, where she leads a specialist genetic eye clinic. Together, they explore the vital role ophthalmologists play in diagnosing and supporting people living with inherited retinal diseases. Marcela explains th...

Our monthly e-Newsletter featuring the latest updates from Retina UK.

Our latest Meet the Professionals podcast is here, and this month we’re joined by Danielle Wise, a Qualified Teacher of Multi Sensory Impairment (QTMSI). Danielle supports children and adults with both sight and hearing loss, helping them communicate, learn, and navigate the world with confidence. In this episode, we explore what MSI really means, how support is tailored to each person, and why ea...

The latest E-Newsletter from Retina UK.