Retina UK

Our latest Meet the Professionals podcast is here, and this month we’re joined by Danielle Wise, a Qualified Teacher of Multi Sensory Impairment (QTMSI). Danielle supports children and adults with both sight and hearing loss, helping them communicate, learn, and navigate the world with confidence. In this episode, we explore what MSI really means, how support is tailored to each person, and why ea...

The latest E-Newsletter from Retina UK.

This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2026 (Issue 190). You can download a copy in PDF and Word format on the Retina UK website:  ⁠https://retinauk.org.uk/resources⁠ . Contents in this edition are as follows: Conference invitation - Tina Garvey Hats off to our incredible volunteers - Tina Garvey Tickets are selling fast for our Gala Dinner Finding connection...

In the latest episode of our Meet the Professionals podcast, we speak with Louise Gow, a low vision specialist and the Head of Eye Health, Optometry and Low Vision at RNIB. Louise has dedicated her career to helping people make the most of their remaining vision and ensuring that low vision services across the UK are effective, accessible and person‑centred. During the conversation, Louise explain...

In this episode of Meet the Professionals , Lauren speaks with Richard Bounds, Vision Rehabilitation Specialist and CEO of the Rehabilitation Workers Professional Network (RWPN). Richard shares his journey into the profession, explains the vital role rehabilitation specialists play in supporting people with sight loss, and explores how RWPN champions and strengthens the workforce behind this servi...

Understanding what happens during an optician appointment can make a real difference for people living with inherited sight loss. In this webinar, taking place on  Wednesday 22 April at 7pm on Zoom , we’ll explore the vital role opticians play - from early detection and regular monitoring to low‑vision support and onward referrals. We’re delighted to be joined by Ashish Chokshi, Principal Optometr...

In the latest episode of Meet the Professionals , we sit down with Kate, an d Eye Clinic Liaison Officer (ECLO), to explore the vital role ECLOs play in supporting people through every stage of their sight loss journey. From helping individuals navigate the emotional impact of diagnosis to offering practical guidance on registration, benefits, and local services, ECLOs are a crucial bridge between...

The latest e-newsletter from Retina UK.

In this episode of Meet the Professionals , Lauren speaks with Richard Bounds, Vision Rehabilitation Specialist and CEO of the Rehabilitation Workers Professional Network (RWPN). Richard shares his journey into the profession, explains the vital role rehabilitation specialists play in supporting people with sight loss, and explores how RWPN champions and strengthens the workforce behind this servi...

The latest e-newsletter from Retina UK.

This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2026 (Issue 189). You can download a copy in PDF and Word format on the Retina UK website:  https://retinauk.org.uk/resources .Contents in this edition are as follows: A heartfelt thank you for standing with us (Tina Garvey) Staying connected: Small changes, big impact Join us for the grand finale to our 50th anniversary...

In this opening episode of our Meet the Professionals series, Lauren speaks with Sian, a Genetic Counsellor supporting people living with inherited retinal conditions. Together, they unpack what genetic counselling involves, how it can help individuals and families understand their diagnosis, and what to expect from the genetic testing process. Sian discusses her background, the emotional and prac...

In “Steps Through the Sand: stories from the Retina UK Sahara Trek”, you’ll hear firsthand from some of our amazing trekkers who took on this once-in-a-lifetime challenge – trekking across the vast Sahara Desert to raise vital funds and awareness for people affected by inherited sight loss. Our speakers share their personal stories, memorable moments, and the highs and lows of life in the desert,...

The latest e-newsletter from Retina UK.

In this Retina UK podcast, Research Development Manager Kate Arkell is joined by Laura Taylor, Research Optometrist with the Oxford Eye Research Group, and Randa Li, Ophthalmologist at Moorfields Eye Hospital, to explain the wide range of tests used in the diagnosis and monitoring of inherited retinal diseases (IRDs). Across the discussion, Laura and Randa address common misconceptions, practical...

Joining us for an "Ask the Expert" session is Professor Marcela Votruba, Professor of Ophthalmology at Cardiff University and consultant at University Hospital Wales where she runs a genetic eye clinic. During the session, participants had the opportunity to ask questions submitted in advance as well as engage in a live Q&A. The discussion covered a wide range of topics, from persona...

The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit https://retinauk.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821442

In this special episode of the Retina UK Podcast, Lauren is joined by actress and BBC Lifeline spokesperson Louisa Lytton to talk about the recent BBC Lifeline Appeal in support of Retina UK. Louisa opens up about her personal connection to inherited sight loss, what inspired her to champion the appeal, and the moments during filming that stayed with her. Together, Lauren and Louisa explore why ra...

This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2025 (Issue 188). You can download a copy in PDF and Word format on the Retina UK website:  ⁠⁠⁠⁠⁠⁠⁠RetinaUK.org.uk/resources⁠⁠⁠⁠⁠⁠⁠ . Contents in this edition are as follows: A fantastic start to our Anniversary year (Tina Garvey) Keep laughing An incredible couple of days! Research news round up Take on a challenge and h...

Findings from our survey of over 600 people living with inherited sight loss. June 2025 Copies of this report in plain text and PDF formats can be found on the Retina UK website: RetinaUK.org.uk/resource/retina-uk-sight-loss-survey/

In this episode we are joined by two of our fantastic fundraising team members; Joe, our Community and Events Coordinator and James, our Head of Income Generation - to give us a sneak peek at some of the exciting events and appeals we have coming up over the next year. We have lots going on as we continue to celebrate our 50th year at Retina UK, and there is something for everyone!

The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit https://retinauk.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821442

Retina UK is delighted to be hosting a webinar with British Blind Sport. This session will highlight how sport and physical activity can play a powerful role in boosting health, confidence and wellbeing for people living with sight loss. You’ll also hear from British Blind Sport about who they are, the support they offer, and the wide range of opportunities available through their membership, even...

Professor Julie Silvestri

Community members share their experiences: Employment Sport and leisure Mobility and travel Day-to-day living