Retina UK

How this new guide and Retina UK can help you to access information, support and advice to help you live your best life. Helen Doyle (RNIB), Denise Rawden (Retina UK), Bhavini Makwana (BAME Vision)

Practical advice on how you can offer inclusive services for people with inherited sight loss. Stephen Kill, Rebecca Lunness & Joanne Kennedy (SeeAbility), Terri Balon (RNIB), Bhavini Makwana (BAME Vision)

Exploring the outcomes of an in- depth study on the impact of retinitis pigmentosa (RP) on patients and family members. Matias Segovia (Oxford Eye Hospital), Kate Arkell (Retina UK)

Our panel of lived experience volunteers and service users explain the positive impact peer-to-peer support has had on their lives. Paula McGrath (Retina UK) leads a panel session

How we can enable families to get the information, support and advice they need to live their best lives at all stages of their sight loss journey. Helen Doyle (RNIB), Denise Rawden (Retina UK), Bhavini Makwana (BAME Vision)

This leaflet is available in audio, PDF and Word formats. If you would like to access the leaflet in one of the other formats, please visit ⁠ RetinaUK.org.uk/resource/profs-leaflet/

The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www. RetinaUK.org.uk/regular-giving/ to sign up, or, if your prefer, call us on 01208 821334.

If you would prefer to download a copy of the programme in PDF or Word (plain text), please visit: ⁠RetinaUK.org.uk/event/annual-conference/

If you would prefer to download a copy of the programme in PDF or Word (plain text), please visit: RetinaUK.org.uk/event/professionals-conference/

This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2024 (Issue 183). You can download a copy in PDF and Word format on the Retina UK website:  ⁠⁠⁠RetinaUK.org.uk/resources⁠⁠⁠ . Contents in this edition are as follows: TRACK 2: Our Annual Conference is heading north (Tina Garvey) TRACK 3: Our ever-popular Annual Conference heads north TRACK 4: What’s On TRACK 5: Supporting...

Join Research Intern Aysha in conversation with Research Development Manager Kate and Communications Manager Jane as they take us through the history of the charity, why we are called Retina UK and what conditions we support. Don't miss out on this informative podcast!

Hosted by Retina UK’s James Clarke and Aysha Ahmed, this session is in conversation with 3 young adults, who have turned challenges into triumphs. Listen to their gripping journeys and exciting plans for the future. Discover the power of peer support and connect with a community that understands. Guest Speakers: Karolina Pakenaite:  An inspiring adventurer and PhD student aiming to be the first de...

Listen to Matthew Carr, Special Projects Lead at Retina UK as we discuss accessible voting during the general election. Please find resources mentioned in this episode below: Call the Helpline:  +44 0300 111 4000 Email the Helpline:  helpline@RetinaUK.org.uk RNIB: https://www.rnib.org.uk/get-involved/support-a-campaign/voting-and-elections-what-you-need-to-know/ Accepted forms of ID: Accepted form...

The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www. RetinaUK.org.uk/regular-giving/ to sign up, or, if your prefer, call us on 01208 821334.

During Loneliness Awareness Week, we're hosting a special webinar to address the challenges faced by individuals with sight loss when it comes to travel and mobility. Research by RNIB has highlighted the critical need for enabling greater fulfilment and freedom through travel, with a significant impact on quality of life. According to their findings, 59% of respondents felt that exploring diff...

Did you know May is National Walking Month? As part of Mental Health Awareness Week, we're exploring the power of movement. As the weather turns warmer and we are happier venturing out a little more, we look at the activities that some of our communities are getting involved with.  Getting out in the fresh air is good for sole, in fact 'movement' is the theme of this year's Mental...

Have some questions about the Big Give Kind2Mind campaign? Listen to our Head of Fundraising Jo, as she discusses more about the Big Give. From how to donate to why this campaign is a game changer for us.

The latest e-Newsletter from Retain UK. Please consider donating to Retina UK through a monthly or quartely direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www. RetinaUK.org.uk/regular-giving to sign up, or, if you prefer, call us on 01280 821334.

Join Research Development Manager, Kate Arkell as she speaks to our latest research grantees about their projects. PhD studentship:  Dr Matteo Rizzi , UCL Institute of Ophthalmology Investigating photopsia and photophobia in Stargardt disease. PhD studentship:  Chloe Brotherton , Edinburgh University Understanding why different RPGR gene mutations can lead to different diagnosis. PhD studentship: ...

The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: Join our mailing list - Retina UK

Join the fun and support a great cause. Our Weekly Lottery has now arrived. This podcast aims to answer any questions you may have and encourage you to take part. RetinaUK.org.uk/lottery

This webinar was broadcast live on Thursday 21 March 2024. It is available in video format on our YouTube channel: https://youtu.be/oF5DP6XUsXk Have you ever been tempted to take part in the TCS London Marathon? In 2022 the TCS London Marathon raised £58.3 million for charity so it’s a vital source of income. Our Events and Community Fundraising Manager, James Clarke, talks to three of our 2024 ru...

This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2024 (Issue 182). You can download a copy in PDF and Word format on the Retina UK website:  ⁠⁠RetinaUK.org.uk/resources⁠⁠ . The short piano music at the beginning of this recording is a tribute to Norman Pampel FCA for his much acclaimed role as honorary treasurer of the British Retinitis Pigmentosa Society for many years...

The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: ⁠⁠RetinaUK.org.uk/get-involved/mailing-list/⁠⁠ .

Cataracts occur fairly frequently and at a relatively early age within the Retina UK community of people with inherited retinal conditions. A question that comes up over and over again is whether or not to have cataract surgery. People seem to come across conflicting advice from medical professionals, and there is understandably a lot of concern around whether the potential benefits outweigh any p...