Remember Me

Caroline shares her journey with her mother, Margaret, a beloved family physician, who was diagnosed with Frontotemporal Degeneration (FTD) at age 59. Caroline opens up about what this journey has been like, grieving her mother and best friend while she is still living, and also managing the 800 mile distance between them. We spend a good deal of this episode talking about transitioning a loved on...

It's World FTD Awareness Week so we decided to do something special! This episode contains excerpts of stories of Frontotemporal Dementia (FTD) previously told on Remember Me. We collaged this episode together to share a snapshot of some of the first signs of FTD, the journey of receiving the diagnosis, and the heartbreaking realization that this disease has no treatment or cure. The featured stor...

Shelley shares her journey with her mother, Mary, who was diagnosed with Primary Progressive Aphasia in her 50s, and died suddenly 6 years later. This is a heartbreaking story but Shelley is a wonderful storyteller - funny, witty and no doubt someone who accepts the good. One of our favorite parts was getting into all the feelings of being mom's while going through this journey with our parents. ...

Back to our normal format this week with our very first story told from a mother's perspective. Dawn shares her journey with her daughter, Kara, 32, who was misdiagnosed with postpartum depression and psychosis before finally receiving the FTD diagnosis.  Listen to this heartbreaking tale told by an extraordinary, strong and loving mother, our new friend, Dawn. Let us know what you think of the ep...

In the last episode of our Grief to Goodness Series, we talk to Patti LaFleur, care-partner to her mother Linda, who is living with dementia. Patti tells us all about her mindset of channeling positivity and love into her role as her mother's caregiver, or "care-partner" as she calls it. She explains how her experience and training as a Kindergarten teacher helped her in this role. In this episode...

In the second episode of our Grief to Goodness Series, we talk to siblings and creators of RememBar Brain Food, Matthew and Rachel. Matthew and Rachel tell us all about their incredible dad John, and his journey with early Alzheimers disease. They share all about how they came to explore the importance of diet and its connection to brain health and how it inspired the creation of RememBar . These...

In the first episode of our Grief to Goodness Series, we talk to Ed Park, the creator of NeuroReserve. Ed opens up about his father Raymond's journey with Lewy Body Dementia and Parkinsons and shares how that experience inspired him to quit his job in pharmaceuticals and create a product to improve long-term brain health.  Let us know what you think of this series by commenting on the episode art...

Maria and Rachael check-in and open up about how they're feeling 9 & 10 months after losing Lia and Frank. They also share the latest RM news + info on the upcoming mini series "Grief to Goodness."   Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast . Notes: * Join Re-Members Only at www.remembermeftd.com/joinro * Support: You can suppor...

This week we speak with Sam about her father Mike's journey with FTD, and the amazing father he was before the disease.  Let us know what you think of the episode by commenting on the episode art on instagram @remembermepodcast Notes   --- Join Re-Members Only at www.remembermeftd.com/joinro   --- Support: You can support our podcast by buying us a coffee, shopping our merch store, leaving us an a...

Remember Me Turns 1! Can you believe it? Thank YOU for all of your love and support as we build RM. In this special episode, we checked-in from some of your favorite guests from Season 1 and 2. And at the end Rachael and I share our letters to our parents.  This podcast is dedicated to Amalia "Lia" Kent, on what would be her 57th Birthday. We love you, Lia.   Get In Touch : Follow us on instagram...

This week we speak with an anonymous listener who shares their journey of undergoing genetic testing for Frontotemporal Dementia (FTD). Tip: We recommend listening to Expert Chat: Genetics & FTD with Diane Lucente , MS, LCGC, Manager of Genetic Counseling at world renown Massachusetts General Hospital Frontotemporal Disorders Unit. Let us know what you think of the episode by commenting on the...

For our second episode of Season 3, we hear from Jackie. Jackie shares her perspective of her mother Tammy's Frontotemporal Dementia diagnosis. Tammy’s story of being misdiagnosed and then officially diagnosed during the COVID pandemic - is absolutely fascinating. As is the life and journey of the fabulous, fierce Tammy. Jackie is so vulnerable, open and honest - sharing the not so perfect mother/...

WE'RE BACK! And our Season 3 Premiere is a follow-up to our first-ever episode "Frank". This time we hear from Rachael's mother, Susie. She shares her perspective of Frank's journey with Frontotemporal Dementia (FTD), and opens up about the tough decisions she had to make. The second half of the episode is (of course) filled with amazing stories of who Frank was before dementia. This one is guaran...

In our Season 2 finale, we speak with our new friend Mitra. Mitra tells us all about the FTD journey she is currently on with her father Behrooz. Mitra's road to learning her father was ill actually started with her own health crisis, and thus began her search of what was wrong with Behrooz. Mitra is a wonderful storyteller, and shares all about the fascinating life that Behrooz lived before his F...

Rachael and Maria sit down for the third and final "side chat" of the season. They discuss the big milestones of the last few months, their dreams and plans for the future of Remember Me AND what it's been like to push through and produce the podcast after losing Lia and Frankie. We'll be on a break after next week until Monday, July 12th. In the meantime, catch up on old episodes and follow us on...

Heather shares the story of her father, Ed, who she cares for at home alongside her mother. In this episode we really tackle all the feelings around watching a parent live with this disease. Heather is wonderfully vulnerable and we loved having raw and honest conversation. We also loved learning about wonderful Ed -before FTD- all about his art, his teaching, and his love for his friends and famil...

Abrar shares the story of his father, Shakeel. This is a episode filled with beautiful memories and an inspiring story of a family and community that worked together to support each other and love each other through tragedy. Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals...

Laurie Klier, Certified Dementia Practitioner, specializing in senior advocacy and compassionate care initiatives, chats with us all about how to advocate for your loved one living in a long term care facility. She also tells us how she got into her work and the inspiration behind her heart centered business Nana's Books . More resources on this topic will be shared in this week's newsletter, so b...

Nancy's story is told by her daughter, Olivia. Nancy was an American who moved to Spain in her 20s and married and raised her family there - all while also becoming a blossoming entrepreneur.  Olivia shares how she discovered her mother had FTD, and her experience caring for her mother while going back and forth from the US to Spain. --- Remember Me is a podcast created by two moms who became fast...

Our long awaited episode is finally here! It's time to talk about Genetics.  We had the honor of speaking with Diane Lucente, MS, LCGC, Manager of Genetic Counseling at world renown Massachusetts General Hospital Frontotemporal Disorders Unit.  We cover the basics - and Diane gives us a real science lesson - so feel free to take out a pen and paper for some notes. Diane answers a few listener ques...

Sisters Joanne and Susan share their experience caring for their mother who had both FTD and ALS. They share beautiful insight on how they cope with their waves of grief and how they continue to keep Sylvia's memory alive. --- Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individua...

This is the second half of our interview with Sheryl - Before you listen, we recommend you listen to Sheryl, Pt 1 (Season 2, Episode 8) if you haven't already.  Sheryl is our first ever guest who is living with FTD. She was diagnosed with FTD in 2013, and is one of few FTD patients who can communicate what they are experiencing with this devastating disease. This is part two of our fascinating con...

Lois' story, as told by her daughter Anne Marie.  Anne Marie does an incredible job describing her feelings around grief - and we dive into our questions about who our parents really were outside of being parents. We hope you enjoy this open and honest conversation... Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (...

In this side chat, we are recording for the FIRST TIME in the SAME ROOM! We talk all about our adventures in Denver, CO. --- Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hop...

Carol shares the story of her father Heitor. Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____ The Remember Me Podcast + Community...