Remember Me

As a follow up to our recap of Day 2, we interviewed Dr. Howie Rosen to learn more about MRIs and how they're used in the ALLFTD Study and in diagnosing FTD. Dr. Howie Rosen, is a behavioral neurologist and holds the Dorothy Kirsten French Foundation Endowed Professorship for Parkinsonian and Other Neurodegenerative Disorders.  He is an investigator on multiple federal and state-funded research gr...

It's MRI Day! Our FTD Research mini-series continues! As you know at this point in the mini-series -- we participated in the ALLFTD Study -- Rachael as the participant, and Maria as the study partner... and today's episode recaps our Day 2: The MRI. A long day, but we had a lot of laughs. Everything is an adventure with us, so be sure to listen! Want to learn more about ALLFTD? Visit allftd.org Be...

As a follow up to our recap of Day 1, we interviewed Steve Smith to learn more about Neuropsych testing. Steve explains what it’s like to administer these tests, what they’re looking for during testing and how this intensive battery aids in distinguishing an FTD diagnosis. Steve Smith is a Senior Program Coordinator at the Mayo Clinic with 12 years of experience in research and neuropsychological...

It's finally here! Our FTD Research Mini Series.  We participated in the ALLFTD Study -- Rachael as the participant, and Maria as the study partner... and today's episode recaps our Day 1. It was filled with Consent Forms, Blood Work and Neuropsych Testing... and also a recap of our little adventures. Want to learn more about ALLFTD? Visit allftd.org Be sure to connect with us on instagram @rememb...

Today's the day we tell you some big news! And afterward, ALLFTD Study Program Directors Leah Forsberg, Ph. D. and Hilary Heuer, Ph. D. dive into some basics on FTD research - what does it look like? Who can participate? You'll learn all about the difference between observational studies and clinical trials... and get a window into some exciting work on the horizon. Listen + let us know what you t...

Today's episode is brought to you by The Algernon Project . The Algernon Project founders Ben and Keri Allen walk us through the long and hard fought journey of receiving a Frontotemporal Dementia (FTD) diagnosis for Keri's father, Mark. They explain how this heartbreaking experience of constant misdiagnosis motivated them to explore an algorithm to assist radiologists in spotting subtle brain atr...

Today's story is told from the sibling perspective of the FTD journey and it's full of confusion, sorrow - but also sweet sisterly love.  Today, we hear from Brianna, founder of Waverles , as she lovingly tells the story of her older sister, Daria. Daria's progression was severe and swift, leaving a family in shock of what had just happened - and the complexity of the global pandemic on top of it...

This weeks episode, featuring Betsy Hall - founder and CEO of For Their Thoughts , tells the story of Mary. Described by Betsy being the “mom who knew what you needed before you did,” Mary prided herself on being the Mom with a capital M. This family’s journey has a pretty big twist and Betsy so eloquently describes it. You don’t want to miss this one. When you listen to this episode, let us know...

The episode we've been waiting for. Today we dive into this season's (very popular) theme: Trauma. We do this the help of incredible expert, psychologist, and friend of the podcast, Dr. Mekel Harris, Ph. D. Dr. Mekel helps answer:  What is trauma? How does our body respond to trauma? And most importantly, how do we cope? We found this to be fascinating and insightful, and we can't wait to hear wha...

Our 1st ever in-person interview!  Stacy tells our listeners about her sweet dad Rusty in todays episode. We get a sneak peek in to the life of a leading movie and television marketing exec that loved his girls fiercely. Lewy body Dementia slowly stole his loving personality and ability to live independently. We are so happy to have met Stacy and connect deeply with her love of her sweet Dad. Stac...

Your favorite ladies are back for side chat after Maria made the trip cross country to spend the weekend in La-La-Land. This episode is a candid recap of all the things the Remember Me ladies did, including a trip up the golden coast to the magical town of Santa Barbara. Laughs, tears, and so so much work. The big dreams are starting to take shape, you guys! Eeeee!!! Tune in and listen to this sea...

Today's episode features actor and Filmmaker Katie Prentiss .  We connected through learning about Front Porches , a film Katie created based loosely on her experience with her mother's Frontotemporal Dementia (FTD) journey. Today's episode may feel like you're listening in to a conversation between old friends (aren't the best kind of podcasts like that, though?)... as we instantly connected with...

Today's episode features an expert physician on Frontotemporal Dementia (FTD): Dr. Brad Dickerson. In this episode we cover: The science of FTD, how it is different from Alzheimer's, updates on research, and more. Brad Dickerson, MD is Professor of Neurology at Harvard Medical School and Tom Rickles Chair in Progressive Aphasia Research, Leader of the Neuroimaging Core of the MGH Alzheimer’s Disea...

Today's episode features Rachael and Maria's insta-friend Libby.  Libby shares her mother's very sudden and swift journey with FTD -- with her diagnosis only coming  just months before her passing. Libby so captivatingly walking us through the story step by step -- and shares how difficult it was to be in her 20s suddenly in charge of making important decisions for her mother who could no longer e...

Today's episode features Maria's friend Bernie from her days in support group. Bernie shares the story of his incredible wife Karen. Bernie's love for Karen made this a perfect Valentine's week episode... and Bernie has a lot to share about his learnings from being a long-time caregiver.  Listen to learn about the amazing Karen - devoted mother, innovative nurse, and loving wife of 44 years. When...

Kim, devoted wife and mother tells her husband, Jeff’s short and tragic journey with FTD + ALS. Kim openly depicts her trauma in such a relatable and honest way and vulnerably describes the way she fought for answers. Kim’s strength and perseverance shines through her story as does her love for her late husband. Although Kim’s story is surrounded by outside loss, we applaud her for looking for the...

Today's episode features Dr. Sami Barmada, an Associate Professor of Neurology at The University of Michigan whose research is focused on solutions to treat FTD and ALS.  In this episode we cover: the connection between FTD and ALS, the current status of research, ways to support research and more. This interview was facilitated by Target ALS .  Learn more about remember me at www.remembermeftd.co...

Stephanie shares the story of her mom Elaine's long journey with FTD. Stephanie walks us through being a young woman (and an only child) in her 20s desperately looking for answers for her mother's behavior.  Stephanie is an award-winning Social Worker and Psychotherapist and owner of Compassion in Caregiving in Toronto, Ontario. In this episode Stephanie brings her unique experience as a therapist...

This story, told by Shay, beautifully outlines the devastation FTD (or Pick's disease, as she refers to it) causes. Shay was in elementary school when her sweet mom, Mrs. Hast began to exhibit symptoms. The journey is full of tenderness and pain and Shay so eloquently describes the dance between the two. The story unfolds but the rawness continues. Shay takes us through darkness and hurt but also...

Welcome Back, Happy New Year + OMG, YOU GUYS, it's SEASON 4!! Listen now to learn a big theme of the season... in this episode we set the scene for what's in store. xx, R+M After you listen, let us know what you think by commenting on the episode art on instagram @remembermepodcast --- Want more Remember Me? Join our Re-Members Only Space for extra podcasts, events + more at www.remembermeftd.com/...

In our Season 3 finale, we finally hear the story of the couple behind the Remember Me cover art.  Maria's father Gary shares his perspective of Lia's journey with FTD-ALS... and their beautiful life and love story.  Gary shares his experience as a full-time caregiver, how he maximized his time with Lia with his "best summa eva"... and how he is now coping with life after losing Lia. This is one f...

Our much anticipated interview with singer-songwriter, and wonderful human being, Parker McKay. Parker won over the hearts of many this fall as a contestant on NBC's The Voice, where she was chosen to be a member of Kelly Clarkson's team. Parker revealed on the show that weeks before leaving for taping, her mother Tracey had died from complications of Frontotemporal Dementia (FTD) at age 57.  We f...

This week, we chat with Shari about her mother's relatively new diagnosis of Primary Progressive Aphasia and Vascular Dementia.  Shari is SO open about her feelings during this journey - the frustration, the guilt, and the grief...and ugh, we love it when people are just so vulnerable and honest... because we know it helps all of you (and it helps us too!). One of the biggest things we took away f...

This week, we proudly present an interview with Lauren Miller Rogen, Filmmaker, Alzheimers Advocate, co-founder of HFC , and now friend of Remember Me. Lauren openly shares her mother Adele's journey with early onset Alzheimers disease... and she shares the journey with such honesty, vulnerability and love. She talks about what it was like to try and start her life in Los Angeles while her conflic...

Stephanie shares her husband Paul's current journey with Frontotemporal Degeneration (FTD). Stephanie is so beautifully honest about some of the lesser spoken about parts of the journey and shares what it's like to have her once incredibly supportive and loving partner change so drastically. We loved learning about who Paul truly is - an accomplished and celebrated mechanical engineer, a loving, s...