Remember Me

For our Season 12 finale, we’re bringing you a conversation especially close to home. Maria and Rachael sit down with Maria’s dad, Gary, and his wife, Meg, for a deeply personal conversation about caregiving, grief, and life after loss. After both losing their spouses to Frontotemporal Dementia, Gary and Meg found love again—showing us that heartbreak and hope can somehow coexist. This episode is...

Today’s episode is one of deep love, steadfast care, and the kind of devotion that quietly changes you. This week, we sit with Meg as she shares the story of her husband, Bob—a laid-back soul who knew what mattered most in life. Though they had known each other since childhood, life brought them back together years later at a high school reunion, where friendship turned into a love story. Bob’s jo...

This episode is made up of your voices —listener-submitted advice, caregiving hacks, and the real-life tips that have helped you get through the days (and the nights). The small things, the practical things, the “why didn’t anyone tell me this sooner?” kind of things. From navigating behaviors, to finding moments of relief, to the ways you’ve learned to care—for them and for yourself—this is wisdo...

This week, we sit with Kim as she shares the story of her life with Ike—the love at the center of it all, and the long, complicated road of FTD they’ve walked together. You can feel that love in every moment of this conversation—steady, enduring, and deeply human—as Kim speaks with honesty and courage about what it means to lose someone in pieces. This episode holds so much of what  Remember Me  i...

This week, we sit with Amy as she shares the quiet, enduring love she built with Jeff—before, during, and beyond his diagnosis of Frontotemporal Dementia (FTD). It’s a story of tenderness and patience, of navigating subtle changes, and the long, often winding road to understanding what was really happening. Amy brings us into a life rooted in intention—a partnership marked by gentleness, humor, an...

We're back from our mid-season break with a story of a young couple - Erin and Bob. Erin shares the journey to an FTD diagnosis after many misdiagnosis including young-onset Parkinsons.  Thank you Erin, for sharing your story with us.  Support the show + get more bonus content including a bonus episode with Erin on PATREON: www.patreon.com/remembermecommunity Today's SPONSOR - PROGRANULIN INFORMAT...

In our last episode before the mid-season break, Shane, takes to the mic , and both of us were eager to hear his story with his late wife, Faye. This episode was extremely powerful to listen to as the love and the pain are both present. It’s a beautiful love story of self preservation, of letting go, of listening to your gut and leaning in to that love… that sweet, sweet love. Thanks for being so...

Today you'll meet Susan and her late wife, Barbara. Susan joined us all the way from Mexico, where we saw her beautiful Milagro wall as she spoke so vulnerably about her love story with Barbara. Susan has a way of telling her story with so much tenderness and adoration that we could feel the beauty of their relationship across the miles. This story also so delicately discusses genetic FTD, and...

Karen sits down with us for this week's episode and the conversation took right off. Karen spoke openly, albeit delicately, about the changes she noted in her husband, Doug and how the family roles have shifted and morphed alongside Doug’s disease. A beautiful love story that highlights love, resilience and strength. --- A big thank you to our listeners, our supporters, our Patreons and our gu...

Today we welcome Michael as he shares his journey with his wife Maureen. Maureen was diagnosed with FTD after a misdiagnosis of psychiatric disorders and Lewy body Dementia due to her symptoms of hallucinations. Michael walks us through his experiences navigating caring for his changing wife - and the grief and love woven throughout. Thank you, Michael for sharing your story with us. --- A big tha...

We are excited to share this weeks guest, Elin with all of you. During our conversation, Elin openly shared her feelings and her confusion as her husband, Larry’s, FTD began to set in. With a child at home, Elin shares the trials she encountered, the love that persists and the beautiful grief that remains. We loved chatting with Elin and we know you will enjoy hearing her perspective. Mentioned in...

Welcome to Season 12. We are so happy you’re back and if you’re joining us for the first time, welcome in. This season, our stories are all being shared from the spouses perspective and we are so honored to welcome our first guest, Catherine. Listening to the story of Al, Catherine's late husband, we were able to explore aspects of aggravation, hard decisions, and vulnerable topics (we discuss wha...

Our season 11 finale - a chat with just us - reflecting on the season, our journey of building RM + our latest project: The Remember Me Foundation. We talk about the nitty gritty of building Remember Me - while grieving, and healing, and mothering.. and our realization that "this is what it's all about." Thank you to our incredible guests this season - our SPONSORS (!) Psilera, Progr...

Get ready—comedian  Kelsey Cook  joins us for a powerful Real Talk episode all about  Frontotemporal Dementia (FTD), caregiving, grief, and finding a way forward  when life feels impossibly heavy. Kelsey opens up about her mom’s FTD journey and shares honest, heartfelt insights on love, loss, resilience, and why humor matters even in the hardest moments. We adored connecting with Kelsey and hearin...

Allison Lindauer, PhD, APRN joins us to tackle the challenges of navigating behavioral changes caused by Frontotemporal Degeneration (FTD). We talk about some behavior management strategies and the importance of seeking support early and prioritizing your own well-being as a caregiver. Let us know what you think when you listen. - R+M Allison Lindauer is a nationally certified nurse practitioner,...

Emma Heming Willis is here! Powerhouse FTD advocate, loving wife and care partner to her husband Bruce, devoted mama to her two young daughters - entrepreneur and co-founder of Make Time Wellness and now a NYT bestselling author of the perfectly titled book The Unexpected Journey . Emma's here to real talk with us about this journey. Let us know what you think when you listen and a big thank y...

We’re tackling the question - Should I get genetic testing? We have the incredible return guest - Erynn Gordon, CGC, program manager at Progranulin Information Navigator . We also brought on some incredible advocates in the FTD Community - Annika from Cure MAPT FTD , Jackie & Wanda from CureGRN and Michael from End the Legacy to share their personal experiences and thought processes around gen...

Today we talk about 'the end' - our experiences, our fears + how peaceful it ended up being. We call in our friend Katie Duncan, nurse practitioner, educator and founder of Death Care Coach . and she so gently explains what happens to the body in the final days, hours + minutes. And above all letting us know that the body knows exactly what to do. Help us de-stigmatize the conversation aro...

We talk about the type of grief we feel like people don't understand: Anticipatory Grief. Losing someone bit by bit, and always waiting for the next change, the next disappointment - and the 'end'...Let us know what you think when you listen. xx-r+m You can now watch us on ⁠YOUTUBE⁠ ! Special thanks to Psilera for supporting our work at RM! Want to support the podcast + get more conten...

One of the hardest parts of the wreckage that FTD leaves in its wake is the effect it has on families. In today's episode, we open up about the dynamics that have shifted and changed in our families and friendships - and what we've learned through it all. Listen with an open heart + mind as we dive in. Let us know what you think when you listen, and if you'd like you can now WATCH US O...

We got robbed. And we want to talk about it. The ways we coped - the ways we didn't. Where we found joy, and where we didn't. The awkwardness of trying to relate to others. And in the end, Rach gives us the perfect Rachaelism related to sandwich caregiving. Let us know what you think when you listen, and if you'd like you can now WATCH US ON YOUTUBE ! Want to support the podcast + get...

Welcome to Season 11 - we're reflecting on 5 years of this crazy journey -- meeting by chance, losing our parents, building Remember Me, learning about FTD, healing, research, hope and resilience from amazing people in our community, experts + more. We'll share some of the key themes of the last 5 years, but in a deeper way...and with our own personal stories. We're calling it "Re...

Surprise! Coming to you a few weeks before our Season 11 launch with a BONUS episode to celebrate World FTD Awareness Week. We chatted with Dr. Ryan Darby, director of the  Frontotemporal Dementia Clinic  in the Department of Neurology at Vanderbilt University Medical Center. He gave us on updates in FTD research - how to get involved & how our advocacy moves research forward. A VERY special t...

In our Season 10 finale, Alyssa describes the FTD journey with her father, Tommy - starting from her perspective at 11 years-old. She weaves us through her memories of her father's strange behavior - and the long road to finding answers. This story covers so much about family dynamics - but also what a healing journey can look like. And the unbelievable things that happen in life that we just...

Dr. Adam a professor of Interpersonal & Family Communication (and host of one of Maria's favorite podcasts The Sister Wives Professor ) is here for what may be our favorite expert chat of all time. An open + honest conversation about life, family + grief. We talk a lot about family estrangement, family roles, what it means for someone to "be the glue" and so much more. Thank you,...