Tashana and Pierre Dees
Rayana’s Voice: A Rett Syndrome Journey”
Rayana’s Voice: A Rett Syndrome Journey Where Care Meets Science & Stories
Author
Tashana and Pierre Dees
Category
Podcast website
Latest episode
Nov 12, 2025
Where to listen?
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Episodes
Different Country, Same Courage: Living with Rett syndrome in Norway- Part 2 12.11.2025 1:11:58
Send a text From Phoenix to Norway, love and resilience speak the same language. Tashana Dees talks with the parents of a 10-year-old girl living with Rett Syndrome about diagnosis, daily life, faith, and global advocacy-reminding us that courage knows no borders Join us on skool: skool.com/rayanas-voice-pod Support the show I would like to thank the following people because without them, this wo...
Different Country, Same Courage: Living with Rett syndrome in Norway- Part 1 06.11.2025 49:02
Send a text From Phoenix to Norway, love and resilience speak the same language. Tashana Dees talks with the parents of a 10-year-old girl living with Rett Syndrome about diagnosis, daily life, faith, and global advocacy-reminding us that courage knows no borders Join us on skool: skool.com/rayanas-voice-pod Support the show I would like to thank the following people because without them, this wo...
"Through My Sister's Eyes" : A Sibling's Perspective on Disability and Strength 25.10.2025 27:42
Send a text In this special episode of Rayana’s Voice , I sit down with my younger sister — the youngest in our family — to explore what it’s really like growing up with an older sister who has a disability. We’ll talk about early memories, everyday life, how our perspectives were shaped, and what siblinghood means in this context. We’ll also weave in timely news and policy updates around disabili...
Breaking Barriers-Accessible Healthcare for Special Needs 15.10.2025 23:17
Send a text 🎙️ Episode 3 – Breaking Barriers: Accessible Healthcare for Special Needs In this episode, host Tashana Dees, founder of Rayana’s Voice Podcast and New Birth Diagnostics Laboratory, explores the systemic barriers that families of individuals with Rett syndrome and other developmental disabilities face in accessing healthcare. Drawing on her experiences raising her daughter Rayana, Tash...
Rett 101: What Families Should Know 08.10.2025 25:01
Send a text In this heartfelt and empowering episode of Rayana's Voice: A Rett Syndrome Journey, host Tashana Dees opens up about what families need to know after receiving a Rett Syndrome diagnosis. Through her personal experience as Rayana's mom, Tashana breaks down the basics of Rett in simple, compassionate language- what it means, how it impacts everyday life, and what hope looks li...
Episode 1: Living with Rett Syndrome – A Mother’s Journey 01.10.2025 23:42
Send a text In our first official episode, we share the story of living with Rett syndrome through the eyes of a mother and advocate. We dive into what Rett syndrome is, how it connects to the MECP2 gene, and why this gene plays such a crucial role in the challenges families face. From understanding the science to experiencing the day-to-day realities, this episode blends education with personal r...
Rayana's Voice: Rett Syndrome Journey Trailer 15.09.2025 0:51
Send a text 🎙️ Rayana’s Voice: A Rett Syndrome Journey This powerful podcast shares the inspiring story of Rayana, a young girl living with Rett Syndrome, and the family who refuses to let her voice go unheard. Through heartfelt conversations, personal reflections, and expert insights, Rayana’s Voice sheds light on the daily challenges, small victories, and unwavering hope that define life with Re...
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