Tashana and Pierre Dees

Rayana’s Voice: A Rett Syndrome Journey”

Arts EN ↓ 7 Folgen

Rayana’s Voice: A Rett Syndrome Journey  Where Care Meets Science & Stories

Besuch unbedingt die Website des Podcasts und unterstütze die Macher: rayanasvoice.buzzsprout.com

Autor

Tashana and Pierre Dees

Kategorie

Arts

Podcast-Website

rayanasvoice.buzzsprout.com

Neueste Folge

12. Nov 2025

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Different Country, Same Courage: Living with Rett syndrome in Norway- Part 2 12.11.2025

Send a text From Phoenix to Norway, love and resilience speak the same language. Tashana Dees talks with the parents of a 10-year-old girl living with Rett Syndrome about diagnosis, daily life, faith, and global advocacy-reminding us that courage knows no borders  Join us on skool: skool.com/rayanas-voice-pod Support the show I would like to thank the following people because without them, this wo...

Different Country, Same Courage: Living with Rett syndrome in Norway- Part 1 06.11.2025

Send a text From Phoenix to Norway, love and resilience speak the same language. Tashana Dees talks with the parents of a 10-year-old girl living with Rett Syndrome about diagnosis, daily life, faith, and global advocacy-reminding us that courage knows no borders  Join us on skool: skool.com/rayanas-voice-pod Support the show I would like to thank the following people because without them, this wo...

"Through My Sister's Eyes" : A Sibling's Perspective on Disability and Strength 25.10.2025

Send a text In this special episode of Rayana’s Voice , I sit down with my younger sister — the youngest in our family — to explore what it’s really like growing up with an older sister who has a disability. We’ll talk about early memories, everyday life, how our perspectives were shaped, and what siblinghood means in this context. We’ll also weave in timely news and policy updates around disabili...

Breaking Barriers-Accessible Healthcare for Special Needs 15.10.2025

Send a text 🎙️ Episode 3 – Breaking Barriers: Accessible Healthcare for Special Needs In this episode, host Tashana Dees, founder of Rayana’s Voice Podcast and New Birth Diagnostics Laboratory, explores the systemic barriers that families of individuals with Rett syndrome and other developmental disabilities face in accessing healthcare. Drawing on her experiences raising her daughter Rayana, Tash...

Rett 101: What Families Should Know 08.10.2025

Send a text In this heartfelt and empowering episode of Rayana's Voice: A Rett Syndrome Journey, host Tashana Dees opens up about what families need to know after receiving a Rett Syndrome diagnosis. Through her personal experience as Rayana's mom, Tashana breaks down the basics of Rett in simple, compassionate language- what it means, how it impacts everyday life, and what hope looks li...

Episode 1: Living with Rett Syndrome – A Mother’s Journey 01.10.2025

Send a text In our first official episode, we share the story of living with Rett syndrome through the eyes of a mother and advocate. We dive into what Rett syndrome is, how it connects to the MECP2 gene, and why this gene plays such a crucial role in the challenges families face. From understanding the science to experiencing the day-to-day realities, this episode blends education with personal r...

Rayana's Voice: Rett Syndrome Journey Trailer 15.09.2025

Send a text 🎙️ Rayana’s Voice: A Rett Syndrome Journey This powerful podcast shares the inspiring story of Rayana, a young girl living with Rett Syndrome, and the family who refuses to let her voice go unheard. Through heartfelt conversations, personal reflections, and expert insights, Rayana’s Voice sheds light on the daily challenges, small victories, and unwavering hope that define life with Re...

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