Powerhouse Podcast

Introducing a special episode of the Powerhouse Podcast: Making Sense of Mito - FBXL4-Associated Mitochondrial Disease. This special edition episode spotlights researchers and the years of scientific work to understand FBXL4 alongside the stories and perspectives of parents of children impacted by FBXL4-associated mitochondrial disease. Helping to Make Sense of Mito are our co-hosts: two researche...

Our Powerhouse Podcast for October features Morgan Crowley, DC, a chiropractor from Michigan, and Diego Santos, a medical student at Geisinger Commonwealth School of Medicine and Researcher at CHOP. Both of these incredible panelists have been training, fundraising, and spreading awareness on UMDF's #TeamActivate for the Bank of America Chicago Marathon on Sunday, October 12 -- all in service to o...

We'd proud to introduce you to Making Sense of Mito - FBXL4-Associated Mitochondrial Disease. In this new episode (dropping soon), Dr. Keri-Lyn Kozul, PhD and Hannah Pletcher, researchers from Wash U St. Louis, and Susan Geoghegan of Apricity Hope Foundation team up to weave the science and the patient journeys together into the story of FBXL4, an ultra rare mitochondrial disease. Listen in as we...

In this episode, we celebrate the career of David Whiteman, BM, BCh, FAAP, FACMG, currently a Principal Consultant at Blue Lobster Discovery. With 30 years of experience in academic medicine as a specialist in genetics and metabolics and 20 years of experience in drug development and pharmaceutics, Dr. Whiteman has dedicated his career to the care of patients and treatment of rare diseases, includ...

On this November's Powerhouse Podcast episode, we're proud to feature runners from our 2024 UMDF Team Activate who fundraised and ran in the Bank of America Chicago Marathon.   Listen in as Micah, Lisa, and Aaron share with us their training tips, race day peaks and valleys, and their experiences putting their miles toward the mission of UMDF.   If you're interested in going the distance toward tr...

This month, we meet with Olivia Chambers, a college athlete at the University of Northern Iowa. She has faced many challenges due to multiple mtDNA deletions, which have primarily impacted her eyesight. Olivia, 2024 Paralympic gold and silver medalist, joins us to talk about her passion for distance swimming, being a Paralympian, the onset of mitochondrial disease for her at age 16, and life with...

On this special edition of the Powerhouse Podcast, Miranda Franco, Senior Policy Advisor for Holland & Knight, joins us for a recap of new movements in mito-related legislation and the ways we could use your help in governmental advocacy for the mitochondrial disease patient community. Take action at umdf.org/advocacy.

This latest episode of the Powerhouse Podcast is all about sharing your story and raising mito awareness. For this special edition Powerhouse, we had amazing talks with:  Lindzi Scharf, Mito Mom, Journalist and founder of Retaility.com Linda Ramsey, Mito Mom, UMDF Support Ambassador, and 2024 Energy Award Winner Nikki Huggan, Mito Mom, UMDF Support Ambassador, and Vice-Chair of PA's Families to th...

Join us for the Powerhouse Podcast this month featuring Leslie Kirby, co-founder of Run4Raley, as the Kirby family is heading into their 17th year of their fundraising event in Philo, IL. Leslie shares about the work they've done as a tribute to their daughters, Raley and Aubree, at their local hospital and in fundraising for UMDF to help other families like them. Learn more about Run4Raley and Ho...

At the beginning of this Mother's Day Special Episode of the Powerhouse, UMDF's Cassie Franklin and Kara Strittmatter give a quick overview of exciting things to expect at #MitoMed 2024 in Cleveland. Then, we meet our special guest for this episode, Becca Johnson -- mito mom to Vera, caregiver, teacher, wearer of many hats and a true POWERHOUSE. Becca shares important insights on living for experi...

In this latest episode, join UMDF's Brian Harman and Dr. Philip Yeske in a talk with guests, Todd Lacey from the UMDF Board of Trustees and Dan DiPietro, Co-Founder of Pierrepont Therapeutics. On the advent of The Mito Fund's inaugural investment in Pierrepont's enzyme replacement therapy for patients with MNGIE, they share insight on the potentially game-changing research investment and new strat...

On the March 2024 Powerhouse Podcast featuring Dr. Divakar Mithal, MD, PhD, from Lurie Children's Hospital and Northwestern University in Chicago, we discuss his journey toward mitochondrial medicine, embracing a legacy of empathy, mentoring the next generation, and mito-centrism.

On this special episode of the Powerhouse Podcast, we're honored to host Heart Mom and Mito Mom, Heather Gatcombe, MD. This is truly a patient-family story with heart--perfect for #HeartMonth . Listen as we talk about navigating the complications of mitochondrial disease and heart transplant.