PKD Chronicles: Navigating Life with Polycystic Kidney Disease

In this episode, listeners will gain insights into the benefits of preemptive kidney transplants and how they can significantly improve kidney health. Learn how taking a proactive approach to transplantation can help avoid late-stage interventions and dialysis, leading to a better quality of life. We'll discuss the critical timing of transplant conversations and the essential role nephrologists pl...

PKD affects far more than the kidneys. In our latest episode, we'll explore common side effects, like PKD belly and aneurysms, as well as other complications that can impact daily life. Through expert insights and personal stories, we highlight the challenges these complications can present and share strategies for managing them. Listen now to learn how PKD shows up beyond the kidneys and what you...

In this episode, we explore essential everyday lifestyle tips designed to help those living with PKD optimize their health and well-being. From staying active and hydrated to nourishing your body with balanced meals and protecting your sleep, we break down practical, evidence‑informed strategies that support long‑term health and well‑being in a way that's both realistic and empowering.  Whether yo...

In this episode, we journey into the world of nutrition and cooking, exploring what it truly means to nourish our families well. We begin by unpacking general nutrition guidelines, drawing insights from current research on the role diet may play in managing PKD, and explaining what is both evidence-based and safe. Then, we roll up our sleeves and head into the kitchen to explore both the joys and...

What does family planning look like with PKD? In this episode, we'll cover the essential information every PKD patient should know before, during, and after pregnancy.   We'll share expert insights on managing PKD during pregnancy, navigating childbirth, and handling postnatal care. Plus, you'll discover helpful resources and support networks designed to assist patients and overcome the unique cha...

Genetic testing is transforming how we understand and manage polycystic kidney disease (PKD). In our latest episode of PKD Chronicles , we dive deep into the science and significance of genetic testing for PKD patients. Discover why genetic testing is a crucial step in understanding and managing PKD. Explore how genetic insights are shaping personalized treatment strategies, and what you need to k...

Unravel the story behind tolvaptan, a medication revolutionizing the treatment landscape for polycystic kidney disease (PKD), in this episode of PKD Chronicles . We'll give a brief of the history of this drug. Also, learn how tolvaptan works and how it specifically targets the underlying causes of PKD . Then, we will explore the nuances of using tolvaptan in PKD treatment, including its effectiven...

In this episode, listeners are invited to explore the world of clinical trial participation and registry involvement in PKD research. Diving into the significance of these initiatives, the episode sheds light on why participation is crucial for advancing scientific understanding and developing effective treatments for PKD . Additionally, it addresses common concerns and misconceptions surrounding...

Listeners are invited to delve into the intricacies of Total Kidney Volume (TKV) and its role in tracking the progression of PKD. Discover how TKV is measured, what it signifies for disease progression, and its implications for treatment decisions. The episode explores treatments that impact TKV measurements and offers guidance on how patients and caregivers can effectively communicate with their...

In this episode, we continue our conversation with Lisa Smallwood Belk and Alix Piccirilli, on how PKD ha s impact ed their lives and families.   In p art two , Lisa and Alix dive into practical, actionable ways people with PKD and their loved ones can make a difference, including:   Connecting with the PKD community online   Participating in clinical trials that are both valuable and rewarding  ...

This episode speaks directly to young people living with PKD, addressing the profound emotional challenges that come with the territory. From dealing with a new diagnosis to navigating feelings of loss and uncertainty, we tackle the mental health aspects of PKD head-on. Join us for honest conversations about grief, resilience, and the mental hurdles unique to young adults on their PKD journey. Thr...