Patient PrepRheum Podcast

In our second episode, Naomi chats with Julie Norris, who lives in rural Victoria and whose life has been profoundly shaped by resilience, compassion and advocacy. Living with lupus for more than 34 years, she has navigated the daily challenges of a chronic illness while raising her son as a single parent. Julie shares her challenging diagnosis journey and emphasizes the importance of self-efficac...

In our first episode, host Naomi Creek discusses all things lupus with Professor Eric Morand, a Sir John Monash Distinguished Professor, a physician-scientist and Dean of the Sub-Faculty of Clinical and Molecular Medicine at Monash University. He is a clinical rheumatologist specialising in systemic lupus erythematosus (SLE) and is Head of the Monash Health Rheumatology Unit. Professor Morand prov...

Naomi and her guests discuss ways to manage axSpA in daily life in this third episode of the season. Janet Millner is an experienced physiotherapist and a valued member of the rheumatology team at the Royal Hobart Hospital in Tasmania. She has special interests in the management of spondyloarthritis and persisting musculoskeletal pain. Janet’s clinical role includes supporting people with co...

In episode 2 of this season, Naomi and her guests discuss the comorbidities associated with axial spondyloarthritis (axSpA). Dr Arupam Raman is a rheumatologist at South by Southwest Specialists in Gledswood Hills, NSW. She also holds a Master of Medicine (Internal Medicine) from the University of Sydney, further strengthening her expertise in managing complex conditions and delivering evidence-ba...

In this episode, host Naomi Creek and her guests discuss the early stages of Axial Spondyloarthritis (axSpA). Cherie Cleland (70) lives with a non-specific form on axSpA. She has tried numerous treatments over the years and has developed other health conditions including inflammatory bowel disease and thyroid, kidney and heart issues. Cherie and her husband love travelling and cycling. Shayne Van...

In our third episode, Naomi is chatting with Simone Bye from New South Wales, who lives with psoriatic arthritis. Simone was diagnosed in 2018 and is a mum of two young children. She says the hardest part of her journey has been trialling and medically failing so many treatments, which has made it difficult to be the parent she wants to be for her kids. Despite these challenges, she is doing her b...

In this episode, Naomi is joined by two patients. Kay Boucker is from New South Wales and was diagnosed with psoriatic arthritis in 2013. Kay lived with psoriasis for many years before experiencing other symptoms like fatigue, tendon pain and uveitis. She said it took her GP a long time to be convinced about her PsA symptoms but she was finally referred to a rheumatologist. Kay also lives with typ...

In this episode, we talk with Dr Premarani Sinnathurai, a specialist in the Rheumatology Department at Royal North Shore Hospital and Clinical Senior Lecturer at the University of Sydney. She was awarded her PhD from the University of Sydney in 2019 on Comorbidity and Patient-Centred Health Outcomes in Psoriatic Arthritis. Her research focuses on the role of comorbidity and adiposity on outcomes i...

In this episode, we’ll be talking about methotrexate and clarifying how it is used in rheumatology settings. Methotrexate is one of the main medications used to slow or stop the progression of autoimmune arthritis and reduce disease activity.   We’ll hear from Janine Fisher, a patient who has lived with rheumatoid arthritis for 31 years. Janine shares her journey with methotrexate, starting with h...

Learn more about the medication Methotrexate in this short audio guide that accompanies  Episode 4: Methotrexate - Management, Myths and Milestones . The guide gives an overview of Methotrexate and delves deeper into how the medication works, how it is used and its side effects. See omnystudio.com/listener for privacy information.

This is an audio guide about patient and doctor communication brought to you by CreakyJoints Australia. Be sure to go to the CreakyJoints Australia website, and join for free to keep updated on all of our resources. TRANSCRIPT This is an audio guide about Patient and Doctor Communication, brought to you by Global Healthy Australia. Whilst many patients have had positive experiences working with th...

This is an audio guide about the approval and sale of therapeutic goods in Australia, brought to you by CreakyJoints Australia.  Be sure to go to the CreakyJoints Australia website and join for free to keep updated on all of our resources. TRANSCRIPT This audio guide is about the approval and sale of therapeutic goods in Australia. It is brought to you by CreakyJoints Australia. Before therap...

This is an audio guide about biosimilar medications, brought to you by CreakyJoints Australia. Be sure to go to CreakyJoints Australia website, and join for free to keep updated on all of our resources. TRANSCRIPT Audio Guide 1: Biosimilar Medications   This is an audio guide about biosimilar medications, brought to you by CreakyJoints Australia. A biosimilar medication (also known as a &ldqu...

In our third episode, Naomi learns some top tips from fellow patient Sarah Clark about having good communication with your doctor. Sarah tells of her rocky start with her initial diagnosis and early treatment until she found a specialist who really listened to her.  Rheumatologist, Dr David Liew shares some wonderful insights and what helps him provide the best care possible to his patie...

In episode 2, Naomi talks with Janine Monty, who lives with multiple autoimmune conditions. Janine shares why having access to a large range of affordable medicine is key to her being able to manage her everyday life. Having to take 17 different medications, not all on the Pharmaceutical Benefits Scheme (PBS), Janine explains just how crucial the PBS is for her. We are also joined by Rheumatologis...

In our premiere episode, we’ll be talking about biologic medicines and biosimilars.  These are medicines that are used to slow or stop the progression of autoimmune arthritis and reduce disease activity when conventional tablet-form medications aren’t working well enough for you. We’ll hear from Ann Laherty-Hunt, a patient who was diagnosed with Rheumatoid Arthritis in 2012...

Patient PrepRheum is a new podcast series hosted by Naomi Creek, who has lived with Rheumatoid Arthritis for nearly 40 years. Naomi speaks with fellow patients and renowned doctors to explore important and often-misunderstood aspects of living with autoimmune arthritis and related conditions in Australia. Feel empowered as you listen to interesting, relevant topics that will further your understan...