Patient POV

Hello Hello! I'm Jess (insta: jess_and_elda) and this is Patient POV! Today we chatted with Alyssa (@chronicallyfulfilledlife) who shares her story with Endometriosis and Fibromyalgia. She shares her tips and tricks on energy saving and chats about how she  helps chronic illness warriors learn how to manage & save their spoons (energy), advocate for themselves, learn how to make mindset sh...

Hello Hello! I'm Jess (insta: jess_and_elda) and this is Patient POV! Today we chatted with Susan (@the.chronic.wanderer) who shares her story with Crohn's, IBS, IC, hEDS, migraines, and pelvic pain. Recommendations Line for procedure anxiety: “Can you please tell me what you are going to do before you touch me” Have an ongoing note on your phone about questions, thoughts, and concerns so...

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!  Today we chatted with Shannon (@chronicpainhacker) who shares her story with Fibromyalgia, Guillain-Barre Syndrome, FND, Mental Health, and Dysautonomia.  Things that have helped her: Divide your day in half with a nap in the middle to help with fatigue Guided meditation and breathwork.  Light therapy when you first wake up in...

Say, “Hello” to Amy (@in16yearsofendo). She is sharing her experience with endometriosis and having gone 16 years undiagnosed! She has a podcast called In Sixteen Years of Endometriosis, and she is the author of Finding Peace with a Devastating Disease    Recommendations: Find her links: https://linktr.ee/in16yearsofendo Finding Peace with a Devastating Disease: https://amzn.to/414mi7M Podcast rec...

Say, “Hello” to Kyra (@have.endo.will.travel). She is sharing her experience with stage 4 endometriosis, chronic fatigue, mental health, and more!  Recommendations: Advice: Keep a copy of everything (even if you can’t understand it) and keep as much information on yourself as you can (ex: track period or pain).  Phrasing to doctor: Is this something you can help me with or is it something I need t...

Say, “Hello” to Chelsea (@gettingthebetterofendo) who is sharing her story of endometriosis and mental health!!

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!  Today we chatted with Kisha, a public health nurse with POTS. She created her instagram page as a way of explaining what life is like with a chronic illness for her family and now it extends to those who have chronic health conditions or their loved ones! Notes from our talk: Everyday is different and everyday is hard, but we n...

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!  Today we chatted with Lexi, a fellow spoonie and disability advocate, who shares her journey with Neuromyelitis Optica (NMO), long covid, dysautonomia, and anxiety. Things that have helped her: Support system - in person (Mom and fiancée), social media (connecting with people who can relate) ​​ You need to advocate for yourself...

Say, “Hello” to Caitlin (@chronicles.ofcait) who has hypermobile ehlers danlos, functional neurological disorder, and hip dysplasia. She is learning how to adapt to her new “normal” After diagnosis. Caitlin talks about the UK healthcare system and services available, her support system, and coping mechanisms in her daily life such as: 1. Write and release it through journaling. 2. Therapy for chro...

Say, “Hello” to Bev @unwellunlimitedly. She is diagnosed with endometriosis, adenomyosis, IIH, and a form of myopathy. After long wait times and frequently being dismissed Bev has become more confident in what she is feeling, feels more empowered to advocate for herself, and to champion improvements for the healthcare system, specifically for people with physical and mental health illnesses. Copin...

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!  Today, I had the chance to chat with Sarah who shared her experience of living with POTS, Fibromyalgia and ME/CFS.  She has her own podcast: Be "POTS"itive! - with Sarah Reid where she gets real about having a chronic illness in her 20s and can be found on instagram @be_potsitive  You can also purchase chronic illness...

Introducing me!! Just a little in sight on my story and why I am starting this podcast!! You can also listen on Spotify!

Patient POV: Podcast by Jess Hay to empower and support those of us with chronic health conditions!