Not Defined by Endo

Have you ever felt like your prayers were met with silence? Like God wasn’t listening, even when your heart ached for an answer? Welcome to our series, 'Strength despite the pain', where we explore stories of women who went through pain and suffering in the Bible. In today’s episode of Not Defined by Endo , we dive into the powerful story of Hannah, a woman who knew the pain of waiting, longing, a...

Hello and welcome to this first episode of 'Endo University,'. This is a short lightening podcast season where I'll be sharing a lot of information on all things Endometriosis.  Today, we're delving into the fundamentals with a focus on 'What does Endometriosis look like?'    Articles & References: Kennedy S, Bergqvist A, Chapron C, D'Hooghe T, Dunselman G, Greb R, et al. ESHRE guideline for t...

Welcome to our 'Endo Research Unveiled: Seeking Answers' series on Not Defined by Endo Podcast. Today’s conversation is with Dr Anita Sharma and Courtney Omrod. Dr. Anita is a General Practitioner based in Manchester, United Kingdom and a national campaigner on women’s health. Courtney is an endometriosis warrior and advocate making a difference in this space. We hear a lot about the work they hav...

Welcome to our 'Endo Research Unveiled: Seeking Answers' series on Not Defined by Endo Podcast. Today’s conversation is with Dr Barbara Guinn, a Reader in Biomedical Sciences at the University of Hull. As well as teaching the undergraduate and postgraduate degree courses in the Centre for Biomedicine, Hull York Medical School, Barbara also supervises MSc, MD and PhD students in their research. Bar...

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today’s conversation is with Tihesia Bennet. Tihesia is a 24-year-old incoming Junior Doctor. She was inspired to create her sexual and reproductive health awareness page, She Talks , after she was diagnosed with superficial endometriosis in 2020. Join me as we listen to Tihesia’s story. Don't forget to share, rate, and su...

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today’s conversation is with Tanya. Tanya is a 30-year-old endometriosis advocate from London. She was suffering from endometriosis for eight years before she was diagnosed and underwent extensive surgery. She now lives life with an ileostomy bag on her stomach because of endometriosis and how much damage it had done to he...

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today, we carry on listening to Kailey and Betsy’s stories and how they have overcome all they have been through in their diagnoses of endometriosis and infertility. If you didn’t listen to Part 1, please click on the previous episode to do so. Kailey & Betsy host the Not Cha Momma Podcast where they talk about endometrios...

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today’s episode is with lovely Kailey Lee and Betsy Austin. Kailey & Betsy host the Not Cha Momma Podcast where they talk about endometriosis, adenomyosis, infertility, & childlessness in their 30s. I particularly love how they talk about being child-free, and not child LESS. And the very important message that not having...

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today’s conversation is with Stephanie Moss. Stephanie is an Endometriosis advocate, Infertility warrior, Trauma survivor, and a third-year Medical Student pursuing her Medical Doctorate (M.D.) at Rush Medical College in Chicago. She has a passion for trauma-informed care and advocating for those disenfranchised in society...

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today’s episode is with Amy Corfeli, a powerhouse and amazing advocate in the world of Endometriosis and chronic illness. Amy has endometriosis and has also been diagnosed with IC, fibro, Mast cell activation syndrome, and Small Intestine Bacterial Overgrowth. She was diagnosed with endo at thirty-three, sixteen years afte...

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today's episode is with Nicole Marriott, a warrior who lives with Endometriosis, Adenomyosis, and PCOS. Nicole set up her Instagram account @endo.of.an.era to raise awareness and break the stigmas and taboos surrounding chronic conditions, infertility, and menstruating. After a 20-year journey to diagnosis and a nearly 10-...

Today’s episode is with Ana G. Herrera, founder of Hormone University, an educational platform with the mission to improve hormone health through accessible knowledge and to advocate for social impact in our communities. Ana suffered from  stage IV Endometriosis for years and went through excruciating PMS pain, infertility, and five surgeries, the last one ending in a full  hysterectomy  and a col...

Today’s episode is with  Dr. Allyson Shrikhande, a  board certified Physical Medicine and Rehabilitation  specialist and the Chief Medical Officer of Pelvic Rehabilitation Medicine.  Allyson is a leading expert on pelvic health who works with expert gynecologists, urologists, physiatrists, and interventional pain physicians, and also specialists in pelvic floor physical therapy , kinetics, and mov...

Welcome to today's episode of Not Defined by Endo Podcast! Today’s episode is with Manju Bangalore, the founder and executive director of Operation Period, a grassroots, youth-led nonprofit dedicated to creating a world where menstruation holds no one back. They fight for menstrual freedom through art, advocacy, education, community engagement, and direct aid. Manju started this organisation after...

Welcome to today's episode of Not Defined by Endo Podcast! Today’s episode is with Kelly Newton, who founded BP3 Underwear in 2019. Kelly founded BP3 as a result of her issues with bladder incontinence as she entered menopause. We know that many young women with Endometriosis, Interstitial cystitis, and even those in postpartum also have bladder issues, and Kelly soon realized that all of these wo...

Welcome to today's episode of Not Defined by Endo Podcast! Today’s episode is with Jodie Hughes, the founder of the charity Endometriosis South Coast in the UK, and a Ph. D. student studying how endometriosis differs in different sample groups of people. Jodie’s endometriosis story begins at the tender age of 11, and like many of us, she has had to navigate a behemoth healthcare system, advocating...

Welcome to today's episode of Not Defined by Endo Podcast! Today, we are speaking with Valentina Milanova, founder of Daye, a female health research and development company on a mission to bridge the gender gap in product innovation. They have created pain-relieving tampons infused with CBD which are not only effective but also sustainable. Join me today as we listen to the incredible journey of D...

Welcome to today's episode of Not Defined by Endo Podcast! Today, we are speaking with Anna Brightman, founder of UpCircle Beauty. UpCircle Beauty is a natural sustainable skincare company that repurposes would-be waste ingredients to create award-winning skincare and beauty products that are uplifting for the skin. Anyone that knows me knows how important sustainable living is to me, especially l...

Welcome to episode 7 and the final episode of Endo 101! What an amazing educational few weeks it has been! Today, we are going to discuss a case study on a woman who was diagnosed with Endometriosis and the treatment route that her doctors took, all hypothetical. We want you to know that even if you or someone you know has been diagnosed with Endometriosis, you do not remain without hope. There ar...

Welcome to episode 6 of Endo 101! Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow...

Welcome to episode 5 of Endo 101! Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow...

Welcome to episode 4 of Endo 101! Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow...

Welcome to episode 3 of Endo 101. Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow...

Welcome to episode 2 of Endo 101. Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow...

Endo 101 is a mini-series that seeks to inform and educate on the enigma that is Endometriosis. My purpose in this mini-series is to talk about all the aspects of endometriosis, right from proper definition to treatment methods and even myths that are pandered about the disease. I am so privileged to be joined today by Mr. Thomas Bainton, the Endometriosis Fellow and a senior registrar in obstetri...