NETWise

If you’re dealing with NETs, you likely have encountered fatigue in various forms. The spectrum of fatigue spans from temporary and inconvenient to persistent and debilitating. It can be a source of frustration, stress, and, at times, a feeling of isolation, as it may not be readily apparent to others. Despite its prevalence, fatigue often takes a backseat to the primary cancer concerns. How...

One of the things that sets neuroendocrine tumors apart from other kinds of cancer is that they can occur almost anywhere in the body. Those different locations — or primary sites — can mean the NET takes on different characteristics, and requires different kinds of treatment. In previous episodes of this show, we’ve talked about lung NETs, pancreatic NETs, small bowel NETs, and...

In this episode, we’re talking in depth about one of the most exciting and widely discussed treatments for NETs: PRRT. This is a revised version of an episode that originally released in 2020. A lot has happened since then in the development of nuclear medicine treatments like PRRT, and we’re excited to bring you information that is updated and current. A special thank you to Dr. Courtney Lawhn He...

We hear a lot about the need for diversity and inclusion in health care, and we know there is a need for more diversity in NET clinical trials. In looking at the issue of race and medicine there are four major factors that influence health outcomes and that deserve scientific investigation. First, is your genes and your specific ancestry. Second is epigenetics, which is the study of how your behav...

This is an updated NETWise episode. A special thank you to Dr. Aman Chauhan for his expert knowledge and help with this special NETWise update. Did you know that about 1 in 4 NETs develop in the lungs? Lung NETs are often overlooked, less frequently discussed, and more misunderstood than NETs that begin in the pancreas or GI tract. It can be frustrating for individuals and families living with a l...

This is a revised version of an episode that first aired in December of 2020, where we focused on diagnosis and treatment of NETs that start in the most common site: the small intestine. A special thank you to Dr. Mark Lewis for his expert knowledge and help with this special NETWise update. Did you know that 12% of gastrointestinal (GI) NETs are found in the small bowel? The small bowel, or the s...

This episode of NETWise expands our series looking at all possible NET primary sites, with a conversation about one of the very rarest forms of NETs – those that originate in the female reproductive organs. https://netrf.org/wp-content/uploads/2023/03/NETWise-EP-24-Ready5-JB.mp3 After the episode, test your knowledge by taking the LACNETS quiz here Download a transcript of this episode here NET ex...

As we end our mini-series about adjusting to the new normal of your life with NETs, we wanted to take an episode to highlight one of the most emotionally challenging situations that might confront a person who is newly diagnosed — learning you have cancer while you are raising children. Parenting is already one of the most challenging and emotionally fraught things anyone can do, and then ad...

In the last episode of NETWise, we talked about a moment of transition – the time right after someone receives a diagnosis of NETs and the feelings of grief that can follow. This episode discusses the next part of the journey- how to navigate through the emotions, symptoms, and treatments of NETs while one continues to manage life responsibilities and relationships while living with NETs. This epi...

Nos complace ofrecer este podcast NETs 101 en español. We are pleased to offer this NETs 101 podcast in spanish. https://netrf.org/wp-content/uploads/2022/11/NETWise-en-Espanol-Ep1-Ready2-1.mp3 https://netrf.org/wp-content/uploads/2022/11/compressed-NETWise-en-Espaol-Ep1-Ready3-WIT.mp3 The post NETWise Episodio 1: Lo que Necesita Saber Sobre los NETs appeared first on NETRF .

A NET cancer diagnosis can affect the emotional health of patients, families, and caregivers. In this episode, we’re going to do something a little different. We have spent a lot of time in this series talking about the science of NETs, but a NET cancer journey is not just about biology. The NET journey can be an intensely emotional experience and learning to deal with the emotions can be just as...

Episode 20 is part two of our deeper understanding into NET research. Advancing NET research is the core of our mission at NETRF, and it’s a crucial need. This episode of NETWise will take a closer look at how scientists do the research that we hope will yield the next generation of effective treatments for NETs. This episode will also look specifically at the vital role NETRF plays in this proces...

Episode 19 is the first of two episodes that will discuss a topic near and dear to us here at NETRF: NET research. Advancing NET research is the core of our mission, and it’s a crucial need, because NETs are extremely complicated cancers and there is still a lot the medical community needs to learn about them.  How do scientists do research, from beginning to end? And what are some of the cha...

While most neuroendocrine tumors are low-grade and slow growing, there are some that are high-grade and very aggressive.  These high-grade NETs are treated very differently.  In the newest episode of NETWise, we turn the spotlight on high-grade NETs, talk with NET physicians about the treatment challenges, and hear from a patient and caregiver about dealing with the diagnosis. Liste...

The liver is very often the first and most significant site of neuroendocrine tumor metastasis and for many people, managing the disease in the liver is the most challenging part of their NET journey. In this episode of NETWise, we’re going to focus on an organ that is almost never a NET primary site, but nevertheless is crucially important to many people with NETs: the liver.  First, you’ll...

They say “you are what you eat”, and that can be a real challenge for people with neuroendocrine tumors. In this episode of NETWise, we’re going to look at all the ways that NETs interact with nutrition–how having a NET can affect your body’s ability to use nutrients properly, and how what you choose to eat can help or hurt your NET treatment and quality of life. Learn about how neuroendocrine tum...

When you’re fighting cancer, treating your tumors is only part of the care you need to continue living your best life. Caring for you as a person – mind, body, and spirit – is the focus of a dedicated team of interdisciplinary professionals who have a lot to offer people with neuroendocrine tumors. Just don’t be scared of the “P” word!  Palliative care addresses...

Pheochromocytomas and paragangliomas are rare neuroendocrine tumors that occur inside or outside the adrenal glands. Affecting approximately 1 in 3,000 people, pheochromocytomas and paragangliomas are unique tumors in that they can produce excessive amounts of “fight or flight” hormones that can cause over 100 different signs and symptoms. The symptoms can come and go and without warning but if le...

Understanding the Relationship Between NETs and Genetics What role do genetics play in neuroendocrine tumors (NETs)? Is genetic screening right for you? Should you have your family members screened for a hereditary gene? In this episode of NETWise, we will explore the relationship between NETs and DNA and explain why your genetic code might hold important implications for treatment strategies, pro...

Caregivers Share the Burden of a NET Diagnosis A diagnosis of neuroendocrine cancer impacts the person who receives the diagnosis, as well as those they love.  A spouse, child, or friend may take on the role of caregiver—a partner to the patient on the NET journey and advocate for their loved one.  It’s a job they did not anticipate or prepare for. This episode of NETWise focuses on caregivers to...

Unique challenges for young people with NETs Facing a diagnosis of neuroendocrine cancer, when you are a teenager or young adult, presents unique medical, social, financial, and even fertility challenges. How do you navigate the healthcare system? Who do you tell about your illness and when? Will you be able to have a career? Can you have children? In this episode, hear from NET experts Dr. Jaydir...

Did you know that there are more treatments for pancreatic NETs (PNETs) than for other types of NETs? While there are more options, treatment for PNETs needs to be individualized since these tumors can vary significantly in stage, grade, and their ability to cause hormonal symptoms.  PNETs are complex because the pancreas plays an essential role in our bodies’ functions.   If you or...

Did you know that about 1 in 4 NETs develop in the lungs? Lung NETs are often overlooked, less frequently discussed, and more misunderstood than NETs that begin in the pancreas or GI tract. It can be frustrating for individuals and families living with a lung NET to find useful information or the right health care professional to work with. This special episode of NETWise covers all things Lung NE...

New Ways to Detect and Treat NETs  What are clinical trials? In this episode of NETWise, discover how new ideas in NET detection and treatment are moving from the laboratory to the bedside. You’ll learn about the different stages of research and how promising drug compounds progress through them. You will also learn how clinical trials determine whether new or improved treatments are safe and effe...

Using Virtual Appointments to Care for NET Patients In this special episode of NETWise, we learn how COVID-19 is forcing our health care systems to make sweeping operational changes. Amid lockdown and stay-at-home orders, NET specialists are switching to telemedicine visits as a new option. The increased use of telemedicine over the past few months is creating new opportunities for NET patients. W...