MS Understood

Today on the MS Understood Podcast we chat with Katie Silverthorne. She shares about the relief of finally getting a diagnosis, how travelling made it clear to her as to the best ways to look after herself, how deciding to work for herself was a game changer, and so much more. Thank you so much for listening to today's episode of MS Understood. You can find Katie on Instagram at @ms_is_my_superpow...

Today on the MS Understood Podcast we chat with Kim Croxford. She shares about relapses soon after pregnancy, deciding to have another child, about going blind for 3 months, how stress is the biggest impact on her MS symptoms, explained the difference between a new attack and a flare and so much more. Thank you so much for listening to today's episode of MS Understood. You can find Kim on Instagra...

Today on the MS Understood Podcast we chat with Clare Wilkin. She shares about breast feeding and pregnancy while taking medication for her MS, managing the psychological side around the uncertainty of MS and how she hasn't yet talked to her kids about her diagnosis. Thank you so much for listening to today's episode of MS Understood. You can find me @Clare. Reilly or @MSUnderstoodPodcast. The bes...

Today on the MS Understood Podcast we chat with Lindsey Holcomb. She shares about how how she used her art to help heal emotionally after her diagnosis, she talks about her amazing project Colors of MS, how she takes an MRI of peoples brains and turns it into a colourful interpretation and how you can get involved. Links mentioned: My Colors of MS Initiative Doctor Gretchen The Neuro Studio Thank...

Today on the MS Understood Podcast we chat with comedian, actor, writer, screen writing teacher and MS advocate Tim Ferguson. He shares about using MS as your gimmick, why he accepted of his MS, how he gets by day to day, why he decided to disclose his diagnosis to the world, why people should employ with with disabilities and so much more. Links mentioned: Tim Ferguson's Book Carry A Big Stick Ep...

Today on the MS Understood Podcast we chat with Amanda Campbell who shares her positivity on Instagram at AmandaCampbell_Speaker and her Sports Kinesiology business at Bendlikebamboo. She shares about changing her career because of her diagnosis, on eating good food, she shares the supports she uses and how she manages her changing symptoms, and so much more. Thank you so much for listening to tod...

Today on the MS Understood Podcast we chat with Ardra Shephard who shares her MS story through her blog and Instagram Tripping On Air. Today Ardra talks about how bladder and bowl issues effect her, and how they shouldn't be so stigmatised, about why she shares her life so publicly on her blog and Instagram account, about ableism and expectations around love and marriage and the power of media in...

Today on the MS Understood Podcast we chat with Beck Rae who shares her MS story on Instagram at Beck_makes_ms_her_bitch. She shares about coming out with MS, her partner having to moved away three weeks after her diagnosis, living up to expectations. Thank you so much for listening to today's episode of MS Understood. You can find Beck at Beck_Makes_MS_Her_Bitch on Instagram. You can find me @Cla...

Today on MS Understood we chat with Angie Thomas. We chat about being newly married, how she talked to herds about her MS and what she would do differently if she could do her diagnosis over again. Thank you so much for listening to today's episode of MS Understood. You can find me @Clare. Reilly or @MSUnderstoodPodcast. The best thing you can do to support this podcast is click follow on Spotify,...

Today on MS Understood we chat with Marti Hines, Film maker, a ceo and all around phenomenal black women. We chat about living with denial about your diagnosis, loosing friends after finding out you have MS, her incredible but long work days and fertility and MS. Marti is in America, and the internet across the waters was a little temperamental, so there are a few bits where the sound is a little...

Katharine, a musician and mother got her MS diagnosis just before an international move. Today we talk about little adjustments she's had to make to her career, how some days she's not sure if she'll be able to conduct and hold the button correctly, and how she disagrees with the term invisible illness. You can find Katharine on Instagram. You can find me at @clare.reilly or @MSUnderstoodPodcast....

Jen is a mother, a principal at a Buddhist inspired school and feels if she doesn't walk 10 km in a day she's having a lazy one. We go way back, to 2003, where we met when she was directing Wollangarra and was my boss for a year. Now we share Wollangarra and an MS diagnosis. It was crazy to hear how long her diagnosis took and lovely to hear how she's doing now. Find me at @clare.reilly or @MSUnde...

Today on the MS Understood Podcast we chat with Stephen who was diagnosed with Multiple Sclerosis at just 22. His symptoms of MS really are hidden, from the outside you'd never guess Stephen has MS but he lives in constant pain, when sleeping even hurts. He shares his wisdom about using canabis oil, his amazing job that he got because of having MS and why he puts on a positivity mask. Thanks so mu...

Today on the MS Understood Podcast we have Nina from Wheely Good Life on Instagram and Youtube. Nina had been living with Primary Progressive since 2013 and has learnt the best way to have her supports work for her. Today we chat about what Support workers she uses, where she finds them and why that's so important, she talks about why it's so great to use mobility aids and why she loves sharing ti...

Today on MS Understood we have Jillian Kingsford Smith, international journalist, author and MS advocate. We chat about being a the full time job that's healthy human, sharing other peoples stories and the benefit of that, and why Jillian has decided not to be on treatment for her MS. Find Jillian on Instagram - @jwksmith Jillian's books - Take20Stories Get Better Lab podcast

Today on MS Understood we have Catherine Brooks, Mum of two and lawyer, who is now working in the not-for-profit sector. Catherine shares her story, which is closely linked with her Mum's diagnosis story. Being diagnosed at 21 Catherine didn't let having MS hold her back. Today we chat about taking care of yourself, advice on whether or not to disclose to employers and ways to find freedom. Find C...

In todays episode we chat with Emma Giunti, Mum of two young girls, yogi and passionate MS ambassador who is ready to kiss goodbye to MS. Emma was diagnosed 10 years ago and hasn't let her diagnosis get in her way. Links mentioned in episode: Find Emma on Instagram - 31 Red Days Garth McLean Yoga

In this episode Clare shares her diagnosis story, what medication she's taking, some of the therapists and supports she uses, the best thing to have come out of having MS for her and her tip to make MS more understood.

Welcome to MS Understood, a podcast coming soon that'll share weekly interviews with people who are effected by Multiple Sclerosis, be that family members, nurses, doctors or those who have the diagnosis. We all know that MS is a misunderstood disease and that everyone's symptoms are so widely different, and I know that it would have been great to have somewhere to turn after my diagnosis. Here we...