MS Understood

Today on MS understood we chat with Jess who is one half of Rethink MS. We chat about the life changing time of becoming a new mum and then having an MS diagnosis so soon after that. Jess shares how she's navigated the diagnosis process as part of the LGBTQI+ community and the assumptions made by medical professionals. Jess talked about Rethink MS the live stream podcast she and her friend started...

Today on MS understood we chat with Elise from msbreakingbarriers on Instagram. Elise was diagnosed with multiple sclerosis within seven hours of her first symptoms in Athens, Greece. She talked about the huge difference between getting diagnosed in Greece and then having to come home to Australia and get diagnosed again. We talk a lot about medical gaslighting, which is not something that I have...

Today we chat with Annette Evans. As a relatively private person Annette reached out to share story on MS Understood, after listening to the podcast and getting something out of each one. She thought that if she's got so much out of it, then someone might get something from her story. We chat about being a registered nurse and how that impacted her awareness around her diagnosis. We also talked ab...

Today on MS understood we chat with Clarissa Hidalgo. Clarissa received her yoga teacher certification in 2017. She had begun practicing after her diagnosis of Multiple Sclerosis in 2010, and experiencing mobility issues in 2012. After becoming pregnant in 2015 she discovered and fell in love with prenatal yoga. He speciality has become accessible yoga, working with those of all bodies and abiliti...

Today on MS Understood we chat with Marianne Gaul. Marianne reach out to me after I shared Beardo's episode where we talk briefly about medical cannabis. I loved being able to continue the conversation MC and ask all of the questions. She explained the difference between off the street marijuana and medicinal cannabis. We also chatted about Peer Support through MS Connect in our states and how you...

Today on MS Understood we chat with news anchor Katie Collett. She shares about managing her MS symptoms while being a morning news anchor and why she talks about her MS symptoms with her viewers, she talks about what a day looks like for her and how she manages her fatigue, we've both got seven year old boys and we talk about talking with them about our multiple sclerosis. It was such a lovely ch...

Today on MS Understood we chat with MS advocate Kelly Wright. Kelly's mum passed away from a common cold due to weakness caused by her multiple sclerosis, when Kelly was just 16. Even after having lived with it for her life, she still put her symptoms down to a pinched nerve. Kelly moved across the world to manage her temperature sensitive, and wears the highest heals she can because her feet are...

Today on MS Understood we chat with MS advocate Roxy Murray, she's passionate about Black representation in the MS community and sharing incredible style while having a disability and is a podcaster We speak about changing the narrative of what the world sees as an MS patient, Roxy was so passionate about having Black representation that she jumped online and started sharing her story, after being...

Today on MS Understood we chat with acclaimed documentary writer, producer and director with a documentary called Living Proof. Mathew Embry is a passionate advocate for people and families who are living with MS after being diagnosed in 1995 today he's symptom free and living an incredible life after his dad, research scientist, Ashton Embry, developed an effective therapy using nutritional strat...

Today on MS Understood we chat with public speaker, resilience coach, artist and medical advocate Justine Martin. We talk about how her life has done a complete 180 since diagnosis, we speak about how art has changed her life, and so much more. I seriously loved her answer to my "what's been the best thing to happen to you because of your MS?', so make sure to stick around to the end of the episod...

Today on MS Understood we chat with Aaron Monheim. We talk about male incontinence which is something I don't think gets talked about enough, in-fact I don't think there's enough talk in general about men having multiple sclerosis. And on this same topic we also tough on not having knowledge about how the medications can effect male fertility. Aaron goes into some great explanations on HSCT - stem...

Today on MS Understood we chat with Matthew, Beardo, who I met while getting tattooed at Hot Copper Studio in Melbourne. In the studio we bonded over our MS adventures, our meds and I thought his story would be great one to share. He shares about working in active duty military in America, he chats about using meditation and mindfulness and we talk a bit about medical marijuana. NDIS and Multiple...

Today on MS Understood we chat with Anna Snodin, a speech pathologist who had to experience being a patient in the same setting in which she worked. She makes these super cute enamel pins which you should definitely check out. We talk about work, how her hours have changed and she used the services of MS Limited employment services. Anatomical Enamel Pins Find Annie on Instagram @Anatomical_enamel...

Today on MS Understood we chat with Crystal who was diagnosed with MS when she was 11. We chat about what it was like to be diagnosed so young, how she went through college and high school with multiple sclerosis, and how she's found a great community of people living with MS online. Dr Gretchen - The MSing Link IGTV with Dr Gretchen Thank you so much for listening to today's episode of MS Underst...

Today on MS Understood we chat with Yvette who was diagnosed with MS over 25 years ago. We chat a lot about how things have changed in terms of medications and support since then. We talk about what things are really important in life, and how Yvette talked to her kids and now her grand kids about living with MS. We talked about the NDIS and why we deserve the financial support. I found this chat...

Today we chat with Natalia Ancora, we start off straight away chatting about various diets and ways to eat. Natalia chats about her symptoms being brushed off for so many years, she also talks about how coming out with her diagnosis publicly to her almost 70 thousand followers made her feel free and found the her friends were so supportive, and she talks about working for herself with multiple scl...

Today on the MS Understood Podcast we chat with Ashleigh Rose, from The A Rose Collective. Ashleigh is a ray of light who shares her MS story on Instagram and her website pretty candidly. Today she shares her difficult diagnosis story. I think story is really important to share how difficult t can be because the initial diagnosis can be such an overwhelming experience and how it's worth finding th...

Today we chat to Kelly Flemning who shares approachable fashion on Instagram at The Styling Suite by Kelly. In this episode she shares about how she's super into caring for her mental health and how therapy and laughing are key to managing her MS. We chat a lot about getting NDIS funding and how it's expensive have a disability. Kelly talks about working as a stylist and accessible clothes for peo...

Today we chat with Emily Padfield, who I came across on the Netflix show Win the Wilderness. We chat a little about her time on this intensely physical reality show, but there are no spoilers, so head over to Netflix and check Emily out. I was so excited for this chat. Emily lives a very physical life, even now, running a farm with her partner Mark and we chat a bit about that. We speak about how...

Today on the MS Understood Podcast we chat with Rebecca Stonor from @just_eat_plants. She chats about how she has no symptoms now, how she changed her diet quite early in her diagnosis journey, we chat a lot about the Overcoming MS lifestyle If you enjoyed this chat I would also recommend listening to the episode Overcoming Multiple Sclerosis with Ashley Madden. Thank you so much for listening to...

Today on the MS Understood Podcast we chat with Liliana Cuba we chat loosing the ability to dance and how she's found a way to do it, how she's found great ways to manage her brain fog at work, becoming comfortable with using mobility aids and so much more. Multiple Sclerosis, the Great Wake Up Call with Jillian Kingsford-Smith A huge thank you to Monday Distillery for sponsoring this episode, gro...

Today on the MS Understood Podcast we chat with interviewer, teacher, writer and advocate Astrid Edwards. We talked about her chapter in the newly published Growing Up Disabled in Australia. She shares talks about trusting yourself when you know something just isn't right in your body, she offers suggestions about how we can make studying more comfortable for students living with chronic illnesses...

Today on the MS Understood Podcast we chat with the lovely Steph Gaff. She shares talks about dating and telling new partners about having MS, loosing friends after your diagnosis and finding those who really get you. Steph talks with so much joy about her up coming wedding and her now husband being the best things to come from her diagnosis. Thank you so much for listening to today's episode of M...

Today on the MS Understood Podcast we chat with the Ashley Madden. She shares how the first few years of her diagnosis were so rough, how she learnt about additional ways to manage her MS, how her diagnosis changed the course of her life, her beautiful new cookbook, The Plant-Based Cookbook which I am very excited to get my hands on and so much more. Rise Shine Cook The Plant-Based Cookbook: Vegan...

Today on the MS Understood Podcast we chat with Deb Boutzetis. She shares about the day that is etched into her mind forever, grief in giving up for career, finding the right time to talk to her kids about her having MS, using essential oils to support her MS symptoms and so much more. Links mentioned: MS Understood Episode 4 with Jillian Kingsford Smith Thank you so much for listening to today's...