Movers and Shakers: a podcast about life with Parkinson's

We try not to shy away from the less cheerful topics here on Movers & Shakers, and this week we're once again looking at depression. We're joined in the pub by a top expert – Professor Dag Aarsland – to look at how depression affects Parkies, whether there's something specific about the condition that causes it, and what responses are available. As ever, this is a candid chat that gets to the...

Let there be light! Well, certain types of light, at least. That's what we're discussing down at the Movers and Shakers Arms today, where the gang are joined by Professor Glen Jeffery , an expert in the use of light therapies. Why are some lights – like infrared – good for us, whilst others – like UV – are bad? How does light impact on our mitochondria? And, most importantly, what does any of this...

Over the summer months, we at Movers & Shakers HQ ran a competition: the local group who acquired the most signatures towards the Parky Charter petition would get their own special episode. And here it is, with the superstars from the Bexhill and Battle area, who acquired a whopping 573 signatures! Three of them joined the Movers & Shakers in the pub, and we also speak to the TikTok poet w...

There are few great anxiety inducers for Parkies than the prospect of having a fall. Squeezed into the Notting Hill pub – having dodged bustling waiters, stray chair legs and a labyrinthine tangle of cables – the Movers & Shakers are joined by two experts, Laura Douglas from Neuro Heroes and the University of Exeter's Dr Will Young , to discuss the reality of falls. Are people with Parkinson's...

On today's Movers & Shakers, we're putting down our pints and rolling a joint talking about how cannabis could be an important part of Parkinson's treatment. Subject to stigma over its use, have we been ignoring the therapeutic qualities of the plant? To discuss this, we talk to Professor Mike Barnes, a world expert in medical cannabis, and hear from many of our listeners who have dabbled with...

Can you hide your Parkinson's? And should you? Those are the questions we're tackling today, as we're joined in the pub by Rob Burley, a former BBC producer and author of Why Is This Lying Bastard Lying to Me? , a book about the lost art of the political interview. After his PD diagnosis, Rob went on television and found himself subjected to unfortunate social media feedback. Do we always know whe...

This week, we're issuing a special episode to remember the life of John Stapleton, who died last week. We were privileged to have John join us in the pub earlier this year to discuss his life, career and PD journey. From getting pecked off our screen's by Rod Hull's intemperate Emu to making a film about his diagnosis with his award-winning documentarian son Nick, John led an extraordinary life. I...

Parkinsonism is the term used to refer to a group of conditions – like multiple system atrophy (MSA), progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and Lewy Body Dementia – which resemble Parkinson's in some of their symptoms. To discuss these sibling conditions, the Movers & Shakers are joined at the pub by guests from across the spectrum who share their stories – ofte...

The Movers and Shakers are back in the pub after a relaxing summer. Oh, who are we kidding? It's been a frantic struggle to get the #ParkyCharter petition to 100k signatories but we – which is to say: you – did it! Now we're kicking off the new series with a look at Gillian's big news. She's had the brand new produodopa pump installed. But is it the blessing its champions suggest? Or do the downsi...

Our final profile of this summer series has a very particular set of skills... Jagdeep Aujla is a London-born karate champion and martial arts enthusiast who, since his Parkinson's diagnosis, has established the Dopamine Warriors Boxing Club. Jagdeep joins the Movers & Shakers in the pub and shows all the resilience you'd expect from the Bruce Lee of PD – but also some cheering optimism about...

Our profile this week is of a Parky on a mission: Alison Anderson who is, as you listen to this episode, cycling across America to raise money for Cure Parkinson's. This isn't Alison's first marathon bike ride, she's previously zoomed across Southeast Asia, raising money and awareness. An inspiration for both her athletic endeavour and fundraising prowess, Alison is living, cycling proof that Park...

This Wednesday, our titanic campaign to reach 100,000 signatures on the Parky Charter petition reached its climax. After a marathon effort involving Gillian commandeering EasyJet planes, the Judge haranguing cricket-goers at Lords, and an unexpected segue into TikTok virality, that target was reached. To celebrate, we gathered 80% of the Movers & Shakers at Gillian's to raise a glass of bubbly...

In a long and varied career, John Caulcutt has worn many hats: rock musician, stockbroker, marketing man, bobsled champion, fundraising extraordinaire, and, since 2019, parky. He joins us for this, the latest in our summer interview series, to discuss a life well-lived and how he ended up a prolific philanthropist who believes that a breakthrough for PD could be just around the corner... Don't for...

This summer we'll be interviewing a handful of interesting people who are living with Parkinson's. First up: the novelist Linda Grant. Linda started life as a journalist before becoming acclaimed fiction writer who won the Women's Prize in 2000 for her novel When I Lived in Modern Times , and was shortlisted for the Booker Prize in 2008 for The Clothes on Their Backs . Here, she talks for the firs...

Earlier this month, the Movers and Shakers descended on Brighton in order to drum up enthusiasm for our petition. We're looking for 100,000 signatures in order to guarantee that our Parky Charter – a list of demands/requests that would improve Parkinson's care – gets a debate in Parliament. On this special episode (during our summer break) we report back from the (very rainy) seaside, and catch-up...

As a special extra, to round out this fifth season of Movers and Shakers , the show is coming to you live from Henley! Away from the pub (and with a live audience) the gang talk about their Parkinson's progress and are joined by a couple of special guests, representing the local area and giving you a glimpse inside Paul's brain... Don't forget to sign the Parky Charter petition by going to ParkyPe...

This week saw the first substantial debate in the UK Parliament on the subject of Parkinson's – and it was initiated by an enterprising Scottish MP, Graeme Downie, off the back of the Movers and Shakers' Parky Charter. So, for this emergency episode, Gillian and Mark report live from Parliament, introducing some highlights from the debate, and speaking to Graeme and his office manager, the inimita...

In this, the last episode in our current series, the Movers & Shakers have gathered at the Notting Hill pub with (most of) their spouses, to talk about how to navigate a relationship after the diagnosis. With the able assistance of a relationship expert, Gillian and Mike, Mark and Jo, Paul and Julie, Nick and Liz, and Rory – riding solo – talk through the ups and downs of coupledom in the wake...

Travelling with Parkinson's shouldn't be a nightmare – but often it is. From long lines at the airport to the constant battle for a seat on the Tube, how can people with Parkinson's navigate the frenetic world of travel? On this episode, the Movers and Shakers gather at the pub to consider their experiences – good and bad – and whether there's the chance to reinvent the way that companies and the...

On this very special episode of Movers and Shakers , the gang head out of the Notting Hill pub to take, once again, to Downing Street. But handing over the latest petition is only the start of an action packed day – from there, it's on to the Houses of Parliament to convene with hundreds of Parkies for The Big Sing! This episode is a little journey through the day, as we speak to people who made t...

Each time we, the Movers and Shakers, convene at the pub for a recording session, we follow it up with an anarchic planning session, where we analyse the episodes that been recently broadcast and debate what should be featured on future instalments. This week, we're leaving the microphones running during this meeting to give you the inside scoop on how the podcast is made, and a little preview of...

There's no doubting the ability of music to uplift the soul – but could it also help to manage the symptoms of Parkinson's? That's what the Movers and Shakers are discussing today in the Notting Hill pub, as they're joined by musical experts, including a man who whistled for Monty Python's The Life of Brian and a Welsh samba band (who have brought their drums all the way to W11). Whether it's a co...

It's said that the most consistent symptom of Parkinson's isn't the tremor, but constipation. Could this rather inconvenient truth reveal a relationship between our gut microbiome and development of the disease? To help with this deep-dive into the gut, the Movers & Shakers are joined by a gastroenterologist, a professor of microbiome, and the creator of a probiotic for gut health. Tune in, an...

A recent spate of Parkinson's related headlines – from miracle pumps to worm-based solutions – have had the Movers and Shakers questioning exactly how the condition is portrayed in the media. Are we getting a good balance between raising the salience of the diseases ill effects, on the one hand, and inspiring hope on the other? To discuss this, the (rather depleted) team in the pub are joined by a...

Do you know what mitochondria are? Don't worry, neither did the Movers & Shakers until they gathered two top experts with them at the Notting Hill pub in order to probe this line of enquiry. Could "aberrant" (as the Judge is prone to call them) mitochondria be responsible for Parkinson's? And, if so, are there possible therapies that might impact the development of the disease, and, if not cur...