Clive Phillips

Making the Most of Now

Health EN ↓ 30 episodes

The podcast brings together the Multifocal Motor Neuropathy community to discuss this rare neurological condition and related ones. We talk to medical experts, patients and their supporters in the hope of informing and inspiring.

Author

Clive Phillips

Episodes

Claire Schulz Bergman - ALS Patient - Always Living Stronger 25.06.2023 1:07:51

A conversation with Claire Schulz Bergman who after an initial MMN diagnosis was diagnosed late last year with ALS. In our chat Claire talks about her response to receiving a terminal diagnosis and about the amazing work she is doing to raise funds for ALS research To learn more about her campaign go to https://donate.mn.als.org/team/495344

David Savage - MMN Patient - Bikepacker and fundraiser extraordinaire 24.05.2023 1:02:16

Conversation with New Zealand based Englishman David Savage who recently completed an epic 16 day self supported bike packing ride exploring his limits and raising funds for MMN research.

Brenda Perales - MMN Patient & Advocate 12.04.2023 1:14:42

In this episode I chat to Brenda Perales, MMN patient, advocate and member of the Board of the GBS/CIDP Foundation International. A truly inspiring woman, in a candid conversation Brenda shares the ups and downs of her MMN story and talks about the incredible work she does to support others in the Multifocal Motor Neuropathy community each and every day. To learn more about the GBS/CIDP Foundati...

Edward Gent - MMN Patient - An Englishman in New York 21.03.2023 1:00:36

Conversation with Edward Gent who was diagnosed with Multifocal Motor Neuropathy in 2018 about his diagnosis, life with MMN and his recent #rideformmn fundraising challenge.

Dr Gareth Parry - Mr MMN 04.02.2023 54:10

In the first episode of the podcast I chat to the neurologist Dr Gareth Parry. Gareth is the man who first described MMN in the early 80's. A global expert and member of the GBS/CIDP Foundation's Global Advisory Board Dr Parry is a font of knowledge when it comes to Multifocal Motor Neuropathy and related conditions. In this conversation we discuss everything from diagnosis to treatment...