Lymphoma Voices

Two of our volunteers Penny and Mark join Carly, Volunteering Development Manager, to share life as a Lymphoma Action volunteer and how their volunteering makes a difference for people affected by lymphoma and their own personal experience of lymphoma.

Shortly after 28-year-old Nia had moved to the UK from the USA, she discovered a lump in her neck. Here she talks about her diagnosis of Hodgkin lymphoma, how healthcare differs in the UK compared with the USA, chemotherapy, radiotherapy and ways she coped with treatment. 

Katie was diagnosed with Waldenström’s macroglobulinaemia (WM) - a type of lymphoma. When she was being considered for treatment for her lymphoma, she was offered the opportunity to join a clinical trial. In this podcast, Katie describes her diagnosis, her treatment journey, and the decisions behind accepting treatment through a clinical trial.

Advanced Nurse Practitioner Charlotte Bloodworth explains what relapsing in lymphoma means, strategies for treating and managing relapse, and support strategies for coping with concerns around relapse.

Lord Menzies Campbell, Patron of Lymphoma Action, talks to the Charity's Chief Executive, Ropinder Gill, about his esteemed and varied career, how some of his greatest achievements have been since his diagnosis of non-Hodgkin lymphoma in 2002 and the important role that charities play when influencing policy and decision makers to ensure better health outcomes for those affected by cancer.

Dr Bridget Wilkins, Consultant Haematopathologist, takes us through the fascinating topic of pathology: what it is and the part it plays in the diagnosis and management of lymphoma. This podcast also gives an insight into this important role within the multidisciplinary team, supporting individuals with lymphoma.

Scotland sevens international rugby union player and Team GB member, Robbie Fergusson, and Lymphoma Action volunteer Mike Taylor both reflect on their experiences with lymphoma. Robbie talks about the impact of his Hodgkin lymphoma diagnosis on his career at the time, his recovery post-treatment and his experience of taking part in the Tokyo 2020 Olympics. 

Palliative Care Consultant and NHS England National Clinical Director for Enhanced Supportive Care, Dr Dan Monnery talks about the principles of enhanced supportive care (ESC), the benefits to this approach and how it differs from other types of care, and his wish that ESC be offered to everyone receiving a cancer diagnosis.

Poet, author and illustrator Giles Andreae reflects on his lymphoma experience. He talks about an extraordinary initial diagnosis (3:32), his determination to preserve his fertility (8:43) and his treatment for Hodgkin lymphoma (19:36). He explains why he only wants to write about love and happiness (32:00) and how a later cancer diagnosis was even more challenging (33:30). 

In this podcast, Bridgerton and Derry Girls star Jamie Beamish talks about his experience of Hodgkin lymphoma, the impact his diagnosis had on his career at the time and the stem cell transplant he received as part of his treatment.  

In this podcast, Emma talks to us about her experience of supporting her sister, Sarah, who has a diagnosis of lymphoma.

In this podcast, sisters Sarah and Emma talk to us about Sarah's diagnosis of lymphoma in 2020, and the emotional challenges of supporting a loved one at a distance.

Angela Waind talks to us about emotional wellbeing and mental health, the links with physical health, and strategies to help support positive mental wellbeing.

In this podcast, consultant haematologist Dr Graham Collins talks to Lymphoma Action's Anne Hook about why he feels that lymphoma is so interesting.

Dr Sarah Jarvis joins Stephen Scowcroft from Lymphoma Action in a discussion about lymphoma, the fifth most common cancer in the UK.