Long Covid Podcast

Episode 59 of the Long Covid Podcast is a chat with the fabulous Vikki Jones, personal trainer, dietitian, wellness coach and former international athlete. Vikki is suffering with Long Covid and has developed a passion for breathing and helping others going through the "longhaul experience" We chat through all sorts of things from her own experiences, the collective trauma we all suffer...

Episode 58 of the Long Covid Podcast is a chat with Fiona Jones, Co-lead of the LISTEN trial which is funded by the NIHR and is currently recruiting in parts of England & Wales. We chat about the 2 parts of the trial, how it's been set up and the benefit of their patient involvement both for the researchers & the the patients themselves. Home (listentrial.co.uk) What do people with lo...

Episode 57 of the Long Covid Podcast is a chat with Dr Sanjay Gupta, a doctor who has been specialising in the treatment of PoTS since before Long Covid. We chat about the influx of PoTS patients since Covid began, how he got into treating these patients as well as what his treatment recommendations would be (some of which can be done from home ourselves). Youtube channel   PoTS Specialist website...

Episode 56 of the Long Covid Podcast is a chat with Johanna Rayl who has recovered from Long Covid. We chat through her initial illness, how this progressed and then how she recovered. We also chat through some things she learned along the way and useful tips with the benefit of hindsight. (Transcript now available - sorry for the delay) CFS Unravelled ANS rewire Curable app Johanna's 8 piece...

Episode 55 of the Long Covid Podcast is a chat with Dr Jacob Teitelbaum, Chronic Fatigue Specialist and author of "From Fatigued to Fantastic". We chat about post-viral illness and many of the things that can be done to help people to recover. There's lots of inspiring & useful information here (transcript now live - sorry for the slight delay)   Cures A-Z app on Google Play or...

Episode 54 of the Long Covid Podcast is a chat with Elizabeth Dreicer, CEO of Consuli. We chat a load about what Consuli does, and the study into Long Covid & immunology with La Jolla Institute of Immunology. It's a fascinating discussion so really interesting to everyone! Consuli.net Consuli Long Covid Study Information La Jolla Institute for Immunology ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~...

Episode 53 of the Long Covid Podcast is a chat with Dr Deepak Ravindran, a pain specialist and lead of the Long Covid Service in Berkshire. We chat about what causes pain in Long Covid (& the crossovers with other conditions) as well as some strategies of how to help. Deepak also gives some insight from his work with the Long Covid Clinic which is really fascinating and will he helpful to ever...

Episode 52 of the Long Covid Podcast is a chat with Dr Margaret Koziel, Chief Medical Officer of Axcella Therapeutics. Earlier this year I spoke to Margaret (& Bill, CEO) about AXA1125, a drug they are developing to help people with Long Covid. When we spoke before, they were just heading into Clinical Trials for AXA1125, and Margaret is here to tell us about the exciting results from that tri...

Episode 51 of the Long Covid Podcast is a chat with Darren Brown, Chair of Long Covid Physio. Darren talks about what disability means and can look like for different people. Measuring disability can be so difficult and he discusses some possible better ways of doing it. This is a fascinating short follow-up to episode 47 (which is absolutely worth a listen too) Links: 1) Website  2) About Long CO...

Episode 50 of the Long Covid Podcast is a chat with Chrissi Kelly, founder of the UK charity AbScent, a charity which helps people with smell & taste loss or change. We chat about the charity, how it can help people as well as some helpful tips for those experiencing this symptom. Abscent website AbScent Network Youtube channel Huel (UK) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~...

Episode 49 of the Long Covid Podcast is a chat with Dr Adrian Baker & Leanne about wild swimming. Adrian, a GP in Nairn in north-east Scotland, is an avid wild swimmer as well as having also had Long Covid and recovered from it. Leanne, also from Nairn, has had her life completely transformed by wild swimming and hearing her story is incredibly inspiring for anyone listening. We chat through b...

Episode 48 of the Long Covid Podcast is a chat with Saskia Mulder, a nurse living with Long Covid. We chat through some of her experiences, some of the things that have helped her in her journey and about mental health (& the importance of seeking help). We also chat a load about her trip to South Africa to see "Doctor Jaco", a load about microclots & the treatment that followed....

Episode 47 of the Long Covid Podcast is a chat with the fabulous Darren Brown, Chair of Long Covid Physio. We talk about what Long Covid Physio is and how it came into being as well as some of the fabulous resources that are on their website. We also talk a load about the Long Covid Physio International Forum, which is a fantastic looking event coming up on 9-10th September this year. A link to re...

Episode 46 of the Long Covid Podcast is a chat with patient advocate, researcher & author Gez Medinger who many of you will know from his wonderful YouTube videos on Long Covid. We chat around his experiences of Long Covid, how this led him down a bit of a rabbit hole and the book which has come out of it! It was great fun chatting and hopefully we've come up with something useful for you...

Episode 45 of the Long Covid Podcast is a chat with endocrinology wizard Keith Littlewood about hormones, the thyroid & how this could all link in with the Long Covid puzzle. We chat through all things thyroid, why it can be so complicated and what to look out for (as well as what could be done to help). We also chat around loads of other stuff - it was super interesting for me, so I hope ther...

Episode 44 of the Long Covid Podcast welcomes back Moira Newiss, Nutritional Therapist, to talk a bit more in depth about how we make our energy. If you haven't already, I highly recommend listening to episode 21 where Moira talks a lot about different foods. In this episode we dive a little deeper into some of the mechanisms as well as what we can do to support them and journey back towards...

Episode 43 of the Long Covid Podcast is a chat with Dr Mohammad Bashashati, Clinician Scientist & Internist  and Senior GI Fellow at Texas Tech University Health Sciences Center in El Paso, Texas. We chat about GI issues in both acute and Long Covid, and the huge numbers of people who present with these issues, despite it being a topic that isn't talked about enough. We chat about DGBI (d...

Episode 42 of the Long Covid Podcast is a chat with Dr Alison Twycross, founder of Long Covid Nurses & Midwives UK. We chat through her experiences with Covid & then Long Covid as well as her work in employment and specifically with nurses & midwives. There are a lot of employers who are treating their staff well, but sadly there seem to be more that aren't and we chat about some...

Episode 41 of the Long Covid Podcast is a chat with Joachim Gerlach about Vedicinals-9 - a nutraceutical developed to help Covid and Long Covid. We chat about how this differs to pharmaceuticals and a bit about how it was developed. We also chat a little about the Long Covid Foundation (link below) and what it is hoping to achieve. Vedicinals Website   (can be ordered from here - also lots of info...

Episode 40 of the Long Covid Podcast is a chat with the wonderful Dr Boon Lim. We talk about the heart and how it's connected to the rest of the body, what can go wrong when something like Long Covid affects the body and how we can help ourselves and get better (what more could we want?!) I have already listened to this episode several times myself and actually felt instantly slightly better...

Episode 39 of the Long Covid Podcast is a chat with Lynn Laidlaw & Tracy Ibbotson who are very involved in research involvement and PPI (Patient & Public Involvement) but they have had very different journeys to this point. We chat through some of their experiences, why it is really worthwhile to get involved and how this might be possible in different ways. If you'd like to know more...

Episode 38 of the Long Covid Podcast is a chat with Dr Tina Peers who is a leading expert in MCAS - Mast Cell Activation Syndrome, a little known condition which seems to be intertwined with Long Covid. As people with Long Covid struggle to learn about the condition, Dr Peers shares her knowledge about MCAS, some treatment/management options and some of the experiences she has had with it. We also...

Episode 37 of the Long Covid Podcast is a chat with Dr Asad Khan who has become well-known among the Long Covid communities. Asad caught Covid whilst working as a respiratory doctor on Covid wards, and has since developed Long Covid. We chat through this experiences as well as what he has done in terms of treatments & managing symptoms. There is loads of really useful stuff in here - it was a...

Episode 36 of the Long Covid Podcast is a chat with Dr Mark Faghy about the work he and his team are doing to support rehabilitation for Long Covid, based at the university of Derby. The project has many arms and he explains all the different bits they are looking into, and how important listening to the patient voice is. Although all things take time - it's good that Mark & his team are...

Episode 35 of the Long Covid Podcast is a chat with Dr. Margaret Koziel, Chief Medical Officer and Bill Hinshaw, CEO from Axcella Therapeutics. Axcella Therapeutics is a biotech company based in Boston and they are currently working in collaboration with Oxford University on a clinical trial testing the impact of Long Covid on overall mitochondrial function, particularly the ongoing fatigue and br...