Long Covid Podcast

Episode 70 of the Long Covid Podcast is a chat with the fabulous Lorrie Rivers. Lorrie has herself recovered from Me/CFS as well as Long Covid & Fibromyalgia and is helping others to do the same. Lorrie has been helping people manage their illnesses for years and has seen a lot of success stories, but feels she has made a break-through recently which she is really excited to share. Useful link...

Episode 69 of the Long Covid Podcast is a chat with Fiona Lowenstein, Journalist, writer, Long Covid Advocate and now author/editor of "The Long Covid Survival Guide". We chat through Fiona's early experiences of Covid & Long Covid which led them to create the Body Politic support group which is such a lifeline to so many. We also discuss the book and the idea behind it, as well...

Episode 68 of the Long Covid Podcast is a chat with Dr David Saperstein from the Center of Complex Neurology, EDS & PoTS based in Phoenix, Arizona. Dr Saperstein has been working with complex conditions for over 20 years and is now also helping those with Long Covid and post-vaccine symptoms. This is a fascinating discussion about approaches to diagnoses & treatment, how certain conditions...

Episode 67 of the Long Covid Podcast is a chat with two wonderful people from the Decode ME genetics study – Professor Chris Ponting who is the lead on the study, and Andy Devereux-Cooke, co-founder of the Science for ME forum and also an investigator (PPI) on the DecodeME Management Group. We discuss the study itself as well as some of the background behind it. If you are interested in signing up...

Episode 66 of the Long Covid Podcast is a chat with the fabulous Lauren Stiles, President & co-founder of Dysautonomia Internation. Lauren describes herself as a "very high functioning sick person" and has so much amazing knowledge to impart about all forms of Dysautonomia itself, as well as the diagnostic journeys that many of us find ourselves on. This was a hugely enjoyable conver...

Episode 65 of the Long Covid Podcast is a wonderful collection of creativity inspired by Long Covid, from children to adults and all across the world. It's an inspiring listen as these talented people tell their own stories and perform their own work. If you're inspired - please get in touch - I always love to hear from you and do join the FB group - link below. Long Covid Choir - "...

Episode 64 of the Long Covid Podcast is some personal reflections on the last 6 months and this year. Things I've learned, and what has helped me. Of course, I am not a medical professional, and this is not advice. I'm not recovered yet, but have seen some improvement. Always very happy to hear from you - what's helped you and how are you doing? My Vedicinals blog Food Intolerance t...

Episode 63 of the Long Covid Podcast is a chat with Dr Michael Bagnell, Functional Neurologist & Chiropractic Physician based in Miami, Florida. We talk about all things Long Covid and the brain - what's causing things to go wrong and how to fix them! Useful links below. www.bagnellbraincenter.com https://www.bagnellbraincenter.com/online-forms.html "Persistent Brainstem Dysfunction...

Episode 62 of the Long Covid Podcast is a chat with the wonderful Professor Nisreen Alwan. We chat about her experiences with Long Covid as a first-waver, her ability to work and what made this possible. We also talk about social media, her experience of researching Long Covid as well as some thoughts about changes that should happen going forward. TED talk Message me! (I can't reply to these...

Episode 61 of the Long Covid Podcast is a chat with Rosie & Colin Pidgeon. Rosie has had Long Covid for a little over a year after catching it at school. Rosie talks through her symptoms & what has helped; and Colin, her wonderfully supportive Dad, describes how he's adjusted his & his family's life to help support Rosie.  Rosie is also a really talented artist, and is curati...

Episode 60 of the Long Covid Podcast is a chat with Reema Ahmad who has Long Covid following a 2020 infection but has had a difficult route to diagnosis. We chat through a lot of her experiences and what she has learned from them, things that have helped her and lessons learned. This is a really frank and honest discussion and will hopefully make a lot of people feel validated and heard. Reema&apo...

Episode 59 of the Long Covid Podcast is a chat with the fabulous Vikki Jones, personal trainer, dietitian, wellness coach and former international athlete. Vikki is suffering with Long Covid and has developed a passion for breathing and helping others going through the "longhaul experience" We chat through all sorts of things from her own experiences, the collective trauma we all suffer...

Episode 58 of the Long Covid Podcast is a chat with Fiona Jones, Co-lead of the LISTEN trial which is funded by the NIHR and is currently recruiting in parts of England & Wales. We chat about the 2 parts of the trial, how it's been set up and the benefit of their patient involvement both for the researchers & the the patients themselves. Home (listentrial.co.uk) What do people with lo...

Episode 57 of the Long Covid Podcast is a chat with Dr Sanjay Gupta, a doctor who has been specialising in the treatment of PoTS since before Long Covid. We chat about the influx of PoTS patients since Covid began, how he got into treating these patients as well as what his treatment recommendations would be (some of which can be done from home ourselves). Youtube channel   PoTS Specialist website...

Episode 56 of the Long Covid Podcast is a chat with Johanna Rayl who has recovered from Long Covid. We chat through her initial illness, how this progressed and then how she recovered. We also chat through some things she learned along the way and useful tips with the benefit of hindsight. (Transcript now available - sorry for the delay) CFS Unravelled ANS rewire Curable app Johanna's 8 piece...

Episode 55 of the Long Covid Podcast is a chat with Dr Jacob Teitelbaum, Chronic Fatigue Specialist and author of "From Fatigued to Fantastic". We chat about post-viral illness and many of the things that can be done to help people to recover. There's lots of inspiring & useful information here (transcript now live - sorry for the slight delay)   Cures A-Z app on Google Play or...

Episode 54 of the Long Covid Podcast is a chat with Elizabeth Dreicer, CEO of Consuli. We chat a load about what Consuli does, and the study into Long Covid & immunology with La Jolla Institute of Immunology. It's a fascinating discussion so really interesting to everyone! Consuli.net Consuli Long Covid Study Information La Jolla Institute for Immunology ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~...

Episode 53 of the Long Covid Podcast is a chat with Dr Deepak Ravindran, a pain specialist and lead of the Long Covid Service in Berkshire. We chat about what causes pain in Long Covid (& the crossovers with other conditions) as well as some strategies of how to help. Deepak also gives some insight from his work with the Long Covid Clinic which is really fascinating and will he helpful to ever...

Episode 52 of the Long Covid Podcast is a chat with Dr Margaret Koziel, Chief Medical Officer of Axcella Therapeutics. Earlier this year I spoke to Margaret (& Bill, CEO) about AXA1125, a drug they are developing to help people with Long Covid. When we spoke before, they were just heading into Clinical Trials for AXA1125, and Margaret is here to tell us about the exciting results from that tri...

Episode 51 of the Long Covid Podcast is a chat with Darren Brown, Chair of Long Covid Physio. Darren talks about what disability means and can look like for different people. Measuring disability can be so difficult and he discusses some possible better ways of doing it. This is a fascinating short follow-up to episode 47 (which is absolutely worth a listen too) Links: 1) Website  2) About Long CO...

Episode 50 of the Long Covid Podcast is a chat with Chrissi Kelly, founder of the UK charity AbScent, a charity which helps people with smell & taste loss or change. We chat about the charity, how it can help people as well as some helpful tips for those experiencing this symptom. Abscent website AbScent Network Youtube channel Huel (UK) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~...

Episode 49 of the Long Covid Podcast is a chat with Dr Adrian Baker & Leanne about wild swimming. Adrian, a GP in Nairn in north-east Scotland, is an avid wild swimmer as well as having also had Long Covid and recovered from it. Leanne, also from Nairn, has had her life completely transformed by wild swimming and hearing her story is incredibly inspiring for anyone listening. We chat through b...

Episode 48 of the Long Covid Podcast is a chat with Saskia Mulder, a nurse living with Long Covid. We chat through some of her experiences, some of the things that have helped her in her journey and about mental health (& the importance of seeking help). We also chat a load about her trip to South Africa to see "Doctor Jaco", a load about microclots & the treatment that followed....

Episode 47 of the Long Covid Podcast is a chat with the fabulous Darren Brown, Chair of Long Covid Physio. We talk about what Long Covid Physio is and how it came into being as well as some of the fabulous resources that are on their website. We also talk a load about the Long Covid Physio International Forum, which is a fantastic looking event coming up on 9-10th September this year. A link to re...

Episode 46 of the Long Covid Podcast is a chat with patient advocate, researcher & author Gez Medinger who many of you will know from his wonderful YouTube videos on Long Covid. We chat around his experiences of Long Covid, how this led him down a bit of a rabbit hole and the book which has come out of it! It was great fun chatting and hopefully we've come up with something useful for you...