Long Covid Podcast

Episode 84 of the Long Covid Podcast is a chat with Caroline Pover and puts a bit of a spotlight on the issue of vaccine injuries. Although we don't know the full story, the vax injured seem to be close cousins of Long Covid and an issue all too often swept under the carpet. Caroline tells her story and shares a few things that have helped her. Caroline Pover website UKCV Family website &quot...

Episode 83 of the Long Covid Podcast is a chat with Ryan Prior, journalist, producer, author & advocate. Ryan chats about his experiences with ME and how he saw the wave of Long Covid coming long before many of us did. We chat about his thoughts on many aspects of Long Covid & chronic illness in general, as well as his new book - The Long Haul. Buy "The Long Haul" Ryan's web...

Episode 82 of the Long Covid Podcast is a chat with the fabulous Dr Jay T Wiles, who is a Clinical health physiologist specialising in sports performance and holistic & integrative health. He is also board certified in biofeedback and heart rate variability biofeedback which is what we're going to be covering in this episode. We chat about what HRV actually is - and then how to apply it t...

Episode 81 of the Long Covid Podcast is a chat with Dr Liza DiLeo Thomas who is a Patient Experience Professional and also has Long Covid. Liza has also worked as an emergency medicine  physician in New Orleans.  We chat about how she has learned more about her role through experiencing an "invisible disability" such as Long Covid; seeing things through the eyes of a patient as well as a...

Episode 80 of the Long Covid Podcast is a chat with Dr Anjali Agarwal, consultant Physiotherpist, lifestyle consultant , EDS Hypermobility-specialised Physio, Advocacy Co-Director of long covid physio & women's health specialist. We dig deep into the relationship between EDS, Long Covid, PoTS & MCAS - it's fascinating to hear how all these things can fit together - as well as wha...

Episode 79 of the Long Covid Podcast is a chat with Michael Towers, creator of Chronic Fatigue Superhero - a series of comics depicting life with a chronic illness. We discuss the character as well as the immense amount of work that goes into making a book when you have a chronic illness. Follow Michael on Instagram Buy the book Message me! (I can't reply to these messages) For more informatio...

Episode 78 of the Long Covid Podcast is a chat with Dr Lucy Gahan, Long-hauler, Clinical Psychologist and a published author! We discuss what she has learned from her experiences and how this led her to write her book "Breaking Free from Long Covid - reclaiming life and the things that matter" - I think the title speaks for itself! Lucy's book "Breaking Free from Long Covid&quo...

Episode 77 of the Long Covid Podcast is a chat with the wonderful Suzy Bolt about the fears around reinfection, or indeed infection of any kind. This is something that is a huge concern for me, and I know for many others. Suzy gives loads of really good advice - and her own experiences - around this, so I hope you're able to take as much away from it as I did. Links: 360MindBodySoul The Fern...

Episode 76 of the Long Covid Podcast is a chat with Dr Robert Groysman about the work he has been doing treating Long Covid with the Stellate Ganglion Block. We discuss what the block is and how it can be really successful in helping people.  Facebook Treatment Group YouTube Channel Dr Groysman's website Dr Groysman in NewsMax Dr Groysman in a Houston Magazine Message me! (I can't reply t...

Episode 75 of the Long Covid Podcast is Jackie's reflections on 3 years of Long Covid, and why there is cause for positivity. Despite the many mistakes, this is reflections on a search for answers and "hacking" your way through to see improvement. This is not medical advice! Message me! (I can't reply to these messages) Support the show ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~...

Episode 74 of the Long Covid Podcast is a chat with Dr Walter Koroshetz, Director of the National Institute of Neurological Disorders & Stroke, part of the National Institute of Health in the US. We chat through the RECOVER Initiative which is a huge study looking into all aspects of Long Covid, and also talk a little about ME/CFS research done by Dr Avindra Nath. Links: https://www.ninds.nih....

In episode 73 of the Long Covid Podcast I chat with the fabulous Dr William Li, who is a Physician, Scientist, president and medical director of the Angiogenesis Foundation, and bestselling author of “Eat to Beat Your Diet: Burn Fat, Heal Your Metabolism, and Live Longer”. Dr. Li is leading research into COVID-19 and Long Covid which is what brings him to the Long Covid Podcast! We chat through so...

Episode 72 of the Long Covid Podcast is a chat with Professor Amitava Banerjee about the STIMULATE-ICP study which he is co-lead of. We chat a load about the different "arms" of the study itself, how it has been developed and the role of patient involvement. We also chat about how you might be able to get involved in different parts of the study. Link to website: https://stimulate-icp.or...

Episode 71 of the Long Covid Podcast is a chat with Nic Wray from Tinnitus UK (formerly the British Tinnitus Association) about all things Tinnitus. We chat about possible triggers, the ups and downs, what can be done about it and research that is ongoing into the condition. This episode ties in with Tinnitus Week which is this week - February 6-10 2023. More information in the episode, or the lin...

Episode 70 of the Long Covid Podcast is a chat with the fabulous Lorrie Rivers. Lorrie has herself recovered from Me/CFS as well as Long Covid & Fibromyalgia and is helping others to do the same. Lorrie has been helping people manage their illnesses for years and has seen a lot of success stories, but feels she has made a break-through recently which she is really excited to share. Useful link...

Episode 69 of the Long Covid Podcast is a chat with Fiona Lowenstein, Journalist, writer, Long Covid Advocate and now author/editor of "The Long Covid Survival Guide". We chat through Fiona's early experiences of Covid & Long Covid which led them to create the Body Politic support group which is such a lifeline to so many. We also discuss the book and the idea behind it, as well...

Episode 68 of the Long Covid Podcast is a chat with Dr David Saperstein from the Center of Complex Neurology, EDS & PoTS based in Phoenix, Arizona. Dr Saperstein has been working with complex conditions for over 20 years and is now also helping those with Long Covid and post-vaccine symptoms. This is a fascinating discussion about approaches to diagnoses & treatment, how certain conditions...

Episode 67 of the Long Covid Podcast is a chat with two wonderful people from the Decode ME genetics study – Professor Chris Ponting who is the lead on the study, and Andy Devereux-Cooke, co-founder of the Science for ME forum and also an investigator (PPI) on the DecodeME Management Group. We discuss the study itself as well as some of the background behind it. If you are interested in signing up...

Episode 66 of the Long Covid Podcast is a chat with the fabulous Lauren Stiles, President & co-founder of Dysautonomia Internation. Lauren describes herself as a "very high functioning sick person" and has so much amazing knowledge to impart about all forms of Dysautonomia itself, as well as the diagnostic journeys that many of us find ourselves on. This was a hugely enjoyable conver...

Episode 65 of the Long Covid Podcast is a wonderful collection of creativity inspired by Long Covid, from children to adults and all across the world. It's an inspiring listen as these talented people tell their own stories and perform their own work. If you're inspired - please get in touch - I always love to hear from you and do join the FB group - link below. Long Covid Choir - "...

Episode 64 of the Long Covid Podcast is some personal reflections on the last 6 months and this year. Things I've learned, and what has helped me. Of course, I am not a medical professional, and this is not advice. I'm not recovered yet, but have seen some improvement. Always very happy to hear from you - what's helped you and how are you doing? My Vedicinals blog Food Intolerance t...

Episode 63 of the Long Covid Podcast is a chat with Dr Michael Bagnell, Functional Neurologist & Chiropractic Physician based in Miami, Florida. We talk about all things Long Covid and the brain - what's causing things to go wrong and how to fix them! Useful links below. www.bagnellbraincenter.com https://www.bagnellbraincenter.com/online-forms.html "Persistent Brainstem Dysfunction...

Episode 62 of the Long Covid Podcast is a chat with the wonderful Professor Nisreen Alwan. We chat about her experiences with Long Covid as a first-waver, her ability to work and what made this possible. We also talk about social media, her experience of researching Long Covid as well as some thoughts about changes that should happen going forward. TED talk Message me! (I can't reply to these...

Episode 61 of the Long Covid Podcast is a chat with Rosie & Colin Pidgeon. Rosie has had Long Covid for a little over a year after catching it at school. Rosie talks through her symptoms & what has helped; and Colin, her wonderfully supportive Dad, describes how he's adjusted his & his family's life to help support Rosie.  Rosie is also a really talented artist, and is curati...

Episode 60 of the Long Covid Podcast is a chat with Reema Ahmad who has Long Covid following a 2020 infection but has had a difficult route to diagnosis. We chat through a lot of her experiences and what she has learned from them, things that have helped her and lessons learned. This is a really frank and honest discussion and will hopefully make a lot of people feel validated and heard. Reema&apo...