Living with Long covid

Send a text On this episode of the podcast I am talking with Jo Thomas personalised coach. Jo and I talk about holistic health and wellbeing, the importance of the medical model interlinked with emotional and mental health support along with  therapies to achieve personal equilibrium. Jo explains how the autonomic nervous system is effected and how this impacts the body and fatigue. Jo uses her pe...

Send a text This is episode 80! I am so pleased to have my fellow LCNMUK (Long Covid nurses and midwives UK) colleague and friend Kerry join me in this special episode. I am sorry the break I took turned into a longer one then I had intended, but as I am sure you understand that is the reality of living with Long Covid or any long term condition  and elements of general life taking over. I hope yo...

Send a text This is episode 79 of the podcast, I have recorded and brought the podcast to you guys every single week for the last 79 weeks. I am appreciative and grateful to everyone single person who has listened and shared the podcast, I also love receiving the lovely messages and comments from you guys, from all over the world.  I have always said I want to reach, help and support as many peopl...

Send a text Many of you may have seen the news recently, headlines stating Robbie Williams had to stop a gig after only 3 songs; allegedly because he was exhausted and said, it is because he has Long Covid.  The Long Covid community reached out online and showed support and care however shortly after this in a video interview, Robbie Williams allegedly stated he uses Long Covid "as a joke&quo...

Send a text My guest today is Merel who is the choir master for the Long Covid Kids Choir. Merel talks about children with long covid and how they lack support and understanding from the wider society. Merel who lives with Long Covid herself wanted to find a way to support children with Long Covid, she contacted Long Covid Kids Charity to find out how she may be able to help and thereafter the Lon...

Send a text After a run of amazing guests I find myself alone on the podcast today, I wanted to talk about the impact the past, present and future has on every day.  A memory popped up on my social media, a picture of me pre Long Covid.  I looked at the picture and remembered, it  was a beautiful day, the fun I had with a good friend, the good food and drink, the laughs we had, and then I went off...

Send a text In this episode of the podcast I talk with guest Rachel Jessey who is the owner of BeNourished. Rachel has been in clinical practice for 13 years and over the last 3 years has been heavily involved in the long covid space. Rachel talks about how her interest developed in the oral, nasal and gut microbiome, and how her son was effected after being hospitalised with sepsis. Rachel discus...

Send a text In this episode of the podcast I am please to have another great guest join me, Reema Ahmad is a Neuro linguistics programming (NLP), trauma and relationship counsellor and also a life coach. Reema is also an author of the book;  un-parenting: sharing awkward truths with curious kids and a two time guest for Ted talks. Reema has long covid, and talks openly with me on this episode, abo...

Send a text In this episode of the podcast I was lucky enough to chat with  Gez Medinger, I appreciate Gez being a guest on this episode and sharing elements of  his own Long Covid journey and much more. Those who are familiar with Gez will know he has done a great deal for the Long Covid /MECFS community, using his YouTube channel to raise awareness, while participating and leading on research  a...

Send a text On this episode of the podcast I am grateful to welcome guest Dr Sarah Glynne. Many of you have contacted me regarding hormones and the peri menopause/menopause, asking if this is a subject I could cover along with an expert, so I am positive this is going to be a useful and interesting podcast to many of you. Dr Glynne and I discuss the link between covid 19 and hormone imbalance, we...

Send a text In this episode of the podcast I discuss making peace with a long term condition, how do you do that? have I made peace with mine? Why is making peace important, what value does that bring to your life? I discuss my feelings, my anger towards the Government the NHS and the psychologising of Long Covid, and how making peace with a long term condition does not mean accepting those things...

Send a text On this episode of the podcast I discuss my Long Covid treatment and medical professional input from acute covid to the treatment I am having to date. I started treatment 6 months ago and I explain more about this and reflect upon my journey to getting to this point. Like many I have been unable to access any appropriate treatment or medical professional input via the NHS, this does se...

Send a text On this episode of the podcast I discuss rest and restorative rest, what is the difference. Did you know that there are 7 types of rest? I didn't! well, definitely not  pre Long Covid.  I didn't understand what restorative rest was never mind the varying types that we need to maintain equilibrium. I talk about how many of us spend so much time burning energy but not restoring...

Send a text On this episode, I have a lovely guest, Shannon is a secondary school teacher from Perth, Western Australia. Shannon was working in an Australian university when she fell under the government vaccine mandate during the pandemic. Subsequently Shannon had an adverse reaction to the vaccine, and for the last 14 months has been living with vaccine injury induced Long Covid.  Shannon has ha...

Send a text On this episode I am fortunate to have a guest; David Osborn is a health and safety consultant. David specialist area is hazardous substances, he became involved with health and safety concerned with the pandemic in January 2021, in the middle of the second wave, David is involved with the covid public inquiry through being a member of the Covid airborne transmission alliance (CATA). D...

Send a text It is a privilege to have a  guest join me on the podcast; Oonagh Cousins is a professional athlete living with Long Covid. Oonagh made the difficult decision during Christmas 2022 to retire from her rowing career and from her place on the British rowing team.  Oonagh talks openly with me about her journey with Long Covid, the impact of her symptoms and trying to rehab with her old clu...

Send a text On this episode of the podcast I discuss the term "brain fog" and if this is appropriate when talking about neurological impairment in Long Covid. I discuss research and two papers which explain neurological complications with Long Covid and other post viral conditions. Cognitive dysfunction is scary, experiencing the loss of words, forgetting full conversations, moments in y...

Send a text This episode of the podcast was difficult to record. I worked so hard to achieve my nursing qualification with the aim to work and look after patients within the NHS. I had aspirations, aims to continuously develop my nursing knowledge and experience. To deliver optimum care and support to patients and their families. Facing a pandemic may have been unprecedented times however this doe...

Send a text On this episode of the podcast, I had the pleasure of talking with the founder and CEO of The Visible App, Harry Leeming. If you haven’t downloaded the app the link is below, after listening to the podcast I am sure you will want to have this useful tool. Harry explains the app, how it monitors the HRV (heart rate variability) and HR (heart rate) along with self reported information. T...

Send a text In this episode of the podcast I had the honour of speaking with Dr Asad Khan. Dr Khan talks openly about his own experience of Long Covid, the treatment he has had, the gaslighting experienced, subsequent diagnosis of MCAS, POTS and pericarditis. Dr Khan explains the treatments he has had to date and how he has had to travel to access these treatments as we are not undertaking these i...

Send a text On this episode I talk about how I try and see light in the darkest of times. It is often a lonely and scary place to be when we are going through a dark time of our lives. It can be difficult or impossible to come out of that dark place. We can forget, loss is grief and grief has many stages and manifests differently for each person. We also forget that grief is not just the loss of s...

Send a text In today's episode of the podcast I am lucky to have a brilliant guest; Emily Bland is a clinical physiologist and POTS and Fatigue Specialist. Emily and I discuss her own journey with POTS, ME/CFS and endometriosis and how this has led to Emily taking her career path and studying over many years to specialise in this area. Emily is focussed on holistic person centred care and the...

Send a text This episode of the podcast follows on from the last where I talked about Post exertional malaise (PEM), I talk on the subject of crashes. I have found the cycle of crashing and relapsing (boom and bust) very difficult. In the early days I found crashing challenging to deal with or to understand, I have pushed many times causing PEM and crashes. I did not initially understand what was...

Send a text This episode considers PEM/PESE why is it so difficult to understand, manage and avoid? I discuss what PEM/PESE is and how is triggered and what that means to daily life. I have spoken with many people who find they struggle to manage PEM as they can't understand what it is and what it does to the body. I have struggled with this myself as it seems to be able to occur with no reas...

Send a text On this episode of the podcast I am talking about a very simple question, most people ask most days "how are you?" Such a simple 3 little words, so why do they fill me with dread?  Simply put I don't know how to answer this anymore, I feel it is a reflex question that goes, "how are you?,  "I am fine thank you, how are you?" and I am not ok, so I can'...