Lipedema Stories Podcast

Hosts Lisa, Janine and Janaye discuss new research suggesting lipedema may be underdiagnosed in men, share clinic stories, and introduce guest Jessica Johnson. Jessica recounts discovering her diagnosis, deciding on surgery, the recovery process, and how treatment improved her pain, mobility, and mental outlook. The episode covers family experiences, body image struggles, working with trainers, an...

Hosts Lisa and Janee open with recent research highlights — including early studies on GLP‑1 drugs and how to distinguish lipoedema from lymphedema — then welcome Charlotte and her mom to share a personal journey. Charlotte describes her diagnosis, lymphoscintigraphy and ICG imaging, daily bandaging and compression routines, insurance challenges, and surgical options such as liposuction and lympho...

Hosts Lisa and Janae discuss a viral double‑blind study on Pycnogenol (maritime pine bark) that reported improved quality of life, less pain, reduced bruising and leg heaviness, and small changes in body composition for people with lipoedema after 60 days. Guest Patty explains why she’ll start a documented self‑trial beginning January 2, tracking dosage, compression, diet and symptoms daily and sh...

This episode discusses recent research showing higher rates of depression among women with lipedema and explores the psychosocial impact of the condition, including relationships, body image, and sleep. Guest Allie shares her long path to diagnosis, experiences with conservative care and liposuction, improvements in sleep and exercise after surgery, and candid moments about compression garments an...

In this episode of Lipedema Stories, hosts Lisa, Janine, and Janae welcome guest Nikki to discuss her journey from misdiagnosis to receiving lipedema-focused care and surgery. They cover emerging research on vibration plates, Nikki’s experience with gastric bypass and multiple surgeries, hyperbaric therapy, and the emotional and practical challenges of treatment and recovery. Nikki shares how advo...

In this episode the hosts open with a brief research note confirming higher inflammatory markers in women with lipedema, then sit down with guest Leslie, a 50-year-old powerlifter who shares her multi-stage lipedema surgery journey. Leslie describes discovering her diagnosis, choosing surgery with Dr. Amron, dramatic fluid and tissue removal, improvements in pain, mobility and posture, and the pra...

Welcome back to another inspiring episode of Lipoedema Stories, hosted by Lisa, Janine, and Janae. In today's episode, we delve into the intertwined journeys of lymphedema and lipoedema through our special guest, Autumn. Her story of triumph and struggle offers valuable insights into managing these conditions. We start with a significant victory in the lipoedema community: the German Joint Federal...

Hosts dive into a research moment about using waist-to-height ratio over BMI and clarify how metabolic risk compares between women with lipedema and others. They unpack why study comparisons can be misleading and what that means for patients. Guest Patty shares her long road to diagnosis, the frustration with doctors, and the emotional impact of finally being validated. She explains practical step...

A candid conversation with Amy about discovering lipedema after weight loss, navigating confusing providers, and finally finding the right care that led to life-changing surgery and symptom relief. She shares the emotional impact of diagnosis, struggles with chronic dieting and eating disorders, lessons in body positivity for her daughters, and the importance of community and accessible treatment.

In this episode of Lipedema Stories, hosts Lisa, Janine, and Janae talk with Angela about how she discovered lipedema after breast cancer treatment, her path to diagnosis, and the life-changing surgeries and manual lymphatic drainage (MLD) that followed. They discuss the role of fibrosis, conservative treatments, compression, and the emotional impact of living with lipedema. Angela shares practica...

This episode opens with a brief research moment on the origins of Lipedema and then follows Emily’s personal journey: discovering her diagnosis via social media, years of misdiagnosis and struggle, and finally receiving a stage 4 diagnosis. Emily describes the emotional aftermath, the relief and grief, her surgical recovery and physical improvements, the deep support from her husband, and th...

In this episode of Lipedema Stories, hosts Janine and Lisa welcome their friend Diana to share her path to a formal lipedema diagnosis after years of unexplained leg and back pain, heavy ankles, and frustrating weight changes. They discuss recent research linking Ehlers-Danlos and lipedema, Diana’s daily walking routine that helps with pain, the limits of conservative care, insurance barrier...

In this episode of Lipoedema Stories Podcast, the hosts discuss recent research linking lipedema and fibromyalgia and welcome 25-year-old Annalise to share her personal journey. Annalise describes early symptoms, failed weight-loss attempts despite intense training, conservative care like compression, MLD and pump therapy, challenges with insurance, and her decision to pursue surgery with compassi...

Join Lisa, Janine and Jenae as we get to know Lauri and hear her Lipedema story.  Lauri shares how she first noticed her symptoms in her teenage years and how she's sought treatment into her 70's.  Lauri shares the struggles and the strengths she's had through Lipedema and shares some funny stories along the way.

In this episode the lippy lymph ladies present a research moment suggesting radiographic evidence of lymphatic involvement in all women with lipedema, then Teresa shares her personal journey from misdiagnosis to multiple surgeries and meaningful symptom relief. The conversation covers conservative care, insurance advocacy (SPDs, ERISA, single-case agreements), appeals tips, post-op improvements in...

Join Lisa, Janine and Jenae as we share our own stories with Lipedema and Lymphedema.  

Welcome to "Lipedema Stories," a podcast dedicated to exploring the personal journeys of women living with lipedema. Join hosts Lisa, Janine, and Janae, also known as the Lippy Lymph Ladies, as they introduce themselves and reveal the motivation behind the podcast. As trained MLD therapists, these women have a wealth of experience in supporting those with lipedema and lymphedema, shedding light on...