Lewy Body Roller Coaster

This week welcome Tom and Dorie. Both Tom and Dorie discuss the  symptoms Tom had that prompted a doctor visit. Tom shares with us how he overcame denial  after being  diagnosed. They both share with us how they feel about attending the support meetings and all they gain from attending the  meetings. You will come to love them as much as all of us in the support meetings do. Remember...We are doin...

This week we talk about bathroom related issues- specifically peeing and how to help your loved one hit the bowl. We share a lot of great suggestions from listeners and members of our support group pages that we hope will help you or your loved one deal with some Lewy issues around the bathroom. We thank you all for your continued patience during the last months as Podcast Linda navigates life aft...

Welcome back Podcast Family. Curry and Linda have had very busy months and share news about big moves! Curry also shares with us how he has found a new freedom using his Jazzy chair and how it has changed his life for the better. Podcast Linda shares news about a big move coming but, also share some important advice for spouses and caregivers about what to do now and not put off. We thank you all...

This week Curry shares with us about his big move from Texas to Kansas and how all that made him feel. He also shares about his new fun mobile that has him scooting all around his new town...but we share ideas on how to make him and anyone with LBD safer to be out on their own. A shout out to all our supporters Beverly Weber, Lori Reiner, Antonio and Barb Garcia. We are doing this for all of us an...

We shared a link in the fb groups about a new study on how walking patterns differentiate the types of dementia from Medical News Today. We wanted to  share some highlights with you for you to share with your doctors.  The causes of dementia can damage the brain in different ways. Is it possible that these differences may reveal themselves in the way that people walk? A new study that compared wal...

This week, we share information about a specific question someone asked in the group that got a lot of comments..helpful comments! This is the power of our support pages, people feel they can ask anything about living with LBD and so many of our wonderful members share their experiences. A special shout out to Gillian. We also talk a bit about how each of us is feeling and coping. A shout out to a...

Welcome to 2023! This week, Curry shares with us how he has been feeling and a few new symptoms and what he is doing about them. But....I, Podcast Linda, want to talk you all for your patience as I deal with my husband's passing which was so unexpected . It is hard for me to record again, but we want to keep sharing so I will do my best to start recording every week for ya'll. A shout ou...

Welcome back for part 2  I ,(Podcast Linda), share my story on the final weeks of my husband's journey with LBD. It was a very hard episode to record and very emotional as we are sure you all understand. We hope listening to my story helps those still on the journey realize life is too short and we need to do what we want and need to do now and not put anything off. Please accept my apology f...

This week and next, I (Podcast Linda) share my story on the final weeks of my husband's journey with LBD. It was a very hard episode to record and very emotional as we are sure you all understand. We hope listening to my story helps those still on the journey realize life is too short and we need to do what we want and need to do now and not put anything off. Please accept my apology for bein...

Welcome Patti who shares with us what a doula is and how a doula can help those with Lewy Body Dementia. This is a two part recording. Doula Links: lifespandoulas.com/end-of-life-doula-directory inelda.org/find-a-doula/ A shout out to all our supporters including Arlene Roman,Tom Lawson, Dee C,  Sue, Jane Wakeman, Vickie Setterberg, Kristen Medica, Tiffany Hanna, Janice Prochaska, Kara Biller, Don...

Welcome Patti who shares with us what a doula is and how a doula can help those with Lewy Body Dementia. This is a two part recording. Doula Links: lifespandoulas.com/end-of-life-doula-directory inelda.org/find-a-doula/ A shout out to all our supporters including Arlene Roman, Tom Lawson, Dee C,  Sue, Jane Wakeman, Vickie Setterberg, Kristen Medica, Tiffany Hanna, Janice Prochaska, Kara Biller, Do...

Part 2: Welcome back Bonnie Weber as she bravely shares her recent loss of her husband Randy who had LBD. She shares important information on her experience of needing to call  hospice and what she wish she knew and wanted us all to know. I am in awe of her courage and strength through the rapid decline Randy experienced. Please keep her in your thoughts and prayers during this difficult time. Tha...

 Welcome back Bonnie Weber as she bravely shares her recent loss of her husband Randy who had LBD. She shares important information on her experience of needing to call  hospice and what she wish she knew and wanted us all to know. I am in awe of her courage and strength through the rapid decline Randy experienced. Please keep her in your thoughts and prayers during this difficult time. Thank you...

Welcome Back Podcast Family! This week I asked Curry to share with us how he has been feeling over the last several week and how he has coped with each symptom. We also shared some personal stuff about depression and leaning on others especially those you meet in our support zoom meetings or on one of the support pages on FB because everyone living through this journey needs others to lean on. A s...

Podcast Linda taking 2 weeks off for her birthday so enjoy the replay of Lewy Terms Defined part 1 with  Dr. Sara . Just a reminder- we are not giving medical advice, merely sharing our experiences. This week, Sara returns to help us talk about the many terms you may hear that relate to some aspect of Lewy Body Dementia. When you listen, you will hear the technical definition of the terms and then...

Welcome back Anne Scott form across the pond as she shares with us about the two books she wrote for children to better understand what someone with dementia is going through. Sizzling Bacon and Sizzling Bacon and the Bee are available now. We encourage everyone to get them and share with your children and even adults and then donate to a school library. It is among that Anne took her diagnosis an...

Welcome back podcast family….  This week, I let Curry share how he is feeling and how his 90 day doctor appointment went as he shares the hurdles of life with Lewy. A shout out to all out supporters including Vickie Setterberg, Kristen Medica, Tiffany Hanna, Janice Prochaska, Kara Biller, Don Pinkos, Dee Richert, Marcia Treffman, The Geraci's and everyone else who has been with us from day on...

This week, our dear Curry shares with us how Lewy has been causing him some pretty strange symptoms other than messing with his sleep. He is so humble abut sharing his journey with LBD and we hope when he and others share that it helps people feel they are not alone on this journey. We discuss the ups and downs of LBD as we share comments from others having similar problems. A shout out to all out...

Welcome back podcast family! This week we share news of our newest support group meeting scheduled for Saturday's at 6 p.m. CST for ANY caregiver. The link for this support meeting and all other support meetings can be found under announcements on the LBRC podcast page and the Our Journey with Lewy Body page. We also talk about when and how to tell family and friends about a diagnosis as well...

Welcome back the gals from across the pond as they share with us their involvement with Deepness Dementia Media. They also discuss how getting involved is crucial for those who get a dementia diagnosis. A shout out to all out supporters including Melody Engle, Carol McNally, Dee Richert, Marcia Treffman, The Geraci's and everyone else who has been with us from day one. We are doing this for a...

Welcome Anne and Julie from across the pond. This is a part one of two recordings with them. This week, they introduce themselves and share their journeys thus far and how they each did not take their diagnosis sitting down and got involved. Next week, they share with their involvement with Deepness Dementia Media. A shout out to all out supporters including Melody Engle, Carol McNally, Dee Richer...

This was a tough episode for us because one of our member's is dealing with a suicide in his family but we wanted to share how our last zoom support meeting went when this person came in and shared. Please know you are never alone on this journey and we are just a text message away to talk. We can be reached through Facebook messenger any time of the day no matter the hour. If you are in the...

This week, we discuss what you will all read online or be told from doctors on the life expectancy for someone diagnosed but we want you to not listen to numbers. We also wanted to address excessive daytime sleepiness. A shout out to all out supporters including Dee Richert, The Geraci's and everyone else who has been with us from day one. We are doing this for all of us and we thank you from...

This week, we discuss how a diagnosis of LBD causes one to lose friends and family but we hope you take away that many friends and family step up as well. We also discuss again "showtiming" that those with LBD can do that make it difficult for the caregivers and doctors at times. A shout out to Dee Riechert, The Geraci family, Janice Prochaska, Kara Biller and Charles Paolina.  We cannot...

This week, we wanted to do a replay of the episode titled: The Power of Support Groups. We had such a powerful and wonderful support meeting this past Monday that we just felt the need to replay this episode for ya'll again so you can hear from some of the individuals who have been attending one of our zoom meetings. It truly has become a Lewy family and we hope you listen again and join us i...