Lewy Body Roller Coaster

Welcome back. This week, Curry and I share thoughts on times when it is hard for those with Lewy Body Dementia to get words out and what advice we and others have when that happens. Curry also shares with us about his fall he had this past weekend and more advice on dealing with a fall. We talk more about the power of attending a support group on zoom and joining support group pages specifically a...

Welcome back Barry from Pennsylvania- part 2. This week, we asked Barry to share how he turned to a talent of his to help him through the tough days of dealing with Lewy symptoms. While he shared how he was in the early days of diagnosis which was hard to share, now he shares with us some of the positive things that he has been doing to cope when Lewy shows up. A shout out to Dee Riechert, The Ger...

Welcome Barry from Pennsylvania. Being in his early 40's and having trouble getting a diagnosis, he shares with us his journey to diagnosis. He shares with us how he made it through a rough time while trying to get a proper diagnosis and yes..he did consider suicide but he shares with us how he got through that time. It is hard to listen to but we felt it important for him to share with you a...

Welcome AnnMarie and James Hooge from Texas. They share with us their thoughts on attending support groups with other caregivers and others with Lewy Body Dementia. James and Curry also share a little more about their symptoms and how they cope. A shout out to Dee Riechert, The Geraci family, Melissa Morman, Jeanette Clark, Marie Peterson, Krysty Herr, Tyler Wright. We cannot thank you all enough...

Welcome AnnMarie and James Hooge from Texas. They share with us how they coped with the diagnosis  at first but are still living a good life. Many great ideas are shared on how to manage while living with Lewy Body Dementia. A shout out to Dee Riechert, The Geraci family, Melissa Morman, Jeanette Clark, Marie Peterson, Krysty Herr, Tyler Wright. We cannot thank you all enough for helping us help o...

Welcome Julie and Ron Salamone this week. We discussed getting diagnosis, telling family and friends and the power of support groups. Julie shared some encouraging words of wisdom she was given from Ron's doctor after his diagnosis. A shout out to Dee Riechert, The Geraci family, Melissa Morman, Jeanette Clark, Marie Peterson, Krysty Herr, Tyler Wright. We cant thank you all enough for helpin...

Welcome Vickie Setterberg this week as out=r first guest of 2022. Vickie shares her journey form diagnosis to getting involved with the Dementia Friendly America project which shows there is still a lot of good life left after diagnosis. A shout out to those who send supporter funds in memory of our dear Bill Cramer who brought so much light into this world and was taken too soon. And shout out al...

This week, Curry really opens up with us about a few things that he goes through and still stays positive. I also asked him to read one of his first posts from December 2016 which he wrote right after he was diagnosed. Hearing him read it choked me up so get your tissues ready. A shout out to those who send supporter funds in memory of our dear Bill Cramer who brought so much light into this world...

Curry and I share our thoughts on two topics that have been controversial…whether to call It Lewy body dementia or Lewy body disease and posting videos of those with dementia. Podcast Linda has been fighting Covid for the past three weeks but we were able to get an episode done for y'all this week. A shout out to all of our supporters! We couldn't do this without all of ya'll. xo Ty...

This week, we wanted to replay the episode with Bill and Sharon Cramer in honor of Bill who passed last week. We know you will hear the positivity from both Bill and Sharon shared on how to live a good life even with LBD. Bill was positive to the end and even attended one of our zoom meetings recently .. bringing with him that wonderful smile and positive attitude. A shout out to all of our suppor...

We finally got to meet in person and do the podcast together sitting across from one another in same room. There are no words to describe what it is like for someone with LBD to meet another person with LBD. The same holds true for when caregivers meet. Listen as we share our thoughts and feelings on what it was like meeting face to face for the first time and getting to record this episode while...

Podcast Linda was traveling this week so a quick apology for this going live a day late…. This week we discussed how LBD and Parkinson Disease are kissing cousins… and then we shared with our listeners what caregivers could use and will probably never ask for. A shout out to all of our supporters! We couldn't do this without all of ya'll. xo Tyler Wright, Cathy Bazzer, Paula Rice Beiver,...

Welcome back and Happy New Year. Thank you for your patience during December as we spent time with family. It's another year and.....I  wanted to ask Curry how his 2021 year went and for him to share how he feels now so we did a little catching up together. A shout out to all of our supporters! We couldn't do this without all of ya'll. xo Tyler Wright, Cathy Bazzer, Paula Rice Beive...

Welcome back Lewy family.  This week we talk about what it’s like when Lewy gets ahold of you and many stories of how Lewy is misdiagnosed. We hope sharing these stories helps those seeking a diagnosis to better arm themselves with notes to take to the doctor. A shout out to all of our supporters! We couldn't do this without all of ya'll. xo Should you wish to bless us with your support...

Welcome to another one of our fireside chats- just me and Curry. This week we share a post Curry wrote on his page back in February 2017. He is so open and shares how he feels and it helps so many of us understand more about this disease. He then shares with us what he felt about that post 4 years ago as he compares to how he is feeling today. A shout out to all of our supporters! We couldn't...

Welcome our dear friend Marcia from Indianapolis this week. When you attend the Monday, Friday or Saturday's spouses support meetings, you too can meet this sweet woman who always has a way with words to sooth your soul. This week Marcia shares her story with her husband Stephen from diagnosis to sweet treats. It is because of people like Marcia sharing that we can all learn from and with one...

Welcome back Derek S and our Curry as we ask them questions on things that can help caregivers and medical professionals better understand the disease from anxiety, walking issues, fears and ways to help or not help those with with LBD. A shout out to all of our supporters! We couldn't do this without all of ya'll. xo Welcome some of our newest supporters: Judy Pressley, Jane Wakerman, T...

Welcome back Derek one of Curry's good Lewy Buddies who was on one of our first episodes a year ago. We wanted to bring a few first quests back to share how they are a year later as a way to let people with LBD know as Curry always says..."there's still a lot of good life left after a LBD diagnosis". Curry and Derek share about their hallucinations, thoughts to help anyone with...

Welcome Robin from Tennessee this week. Robin shares with us her journey getting her LBD diagnosis only to be told by new doctor she didn't have it then back to the beginning again. She will share with us how she keeps a positive attitude even when it gets hard and Lewy grabs ahold of you. We also wanted her to share about the game nights she started for those who attend the support groups. L...

Welcome Naomi from Dublin, Ireland. She shares with us her journey to get diagnosed and some great advice on coping with a diagnosis of LBD and beyond- lots of holidays! She has such a positive outlook and warmth about her and we are sure you will love her as much as we we do once  you hear her story. A shout out to our new and some past Patreon and Go Fund Me Supporters We couldn't do this p...

Welcome Donna from Minnesota. We just love when Donna and her husband Paul joins the support groups. Donna shares with us Paul's journey to diagnosis and several helpful programs he has done or is doing that could help others including speech therapy, palliative care, and attending support meetings. A shout out to our new and some past Patreon and Go Fund Me Supporters Toby Gorelick and Deb a...

This week we share ideas that could help when moving someone with dementia and some great ideas on things to get that will help not only those with dementia but their caregivers. A shout out to our new and past Patreon and Go Fund Me Supporters We couldn't do this podcast without all of you who support us! Should you wish to bless us with your support you can : Copy and paste link, if needed...

We’re baaaaaaack! What a long month of August we had but are glad to be recording again. This week it’s just me and Curry talking about some topics many discussed and asked about  LBD. We are so thankful to all of our supporters for your patience as we dealt with Covid, a hurricane and a tornado. A shout out to our new and past Patreon and Go Fund Me Supporters We couldn't do this podcast wit...

Sharing one of our two part talks with Lewy Buddies from the first month we started recording to allow us time to  work on a big Lewy Body Dementia Project. As this disease can be such a roller coaster ride with many ups and downs, it’s sometimes good to listen to earlier episodes because you or your loved one may be at a different point in the disease now then when you listened the first time. Th...

As we take this week and next to work on a big Lewy Body Dementia project, we thought we would replay the two episodes from season one that got the most views. We have found many of you say you listen to earlier episodes again since things change so quickly sometimes with Lewy. Support the show