Lewy Body Roller Coaster

Welcome back Podcast Family! This week we are sharing part three where some of those who were able to attend the Lewy Buddy Meet-Up in Caney Kansas on September 14, 2024 share how they felt meeting people they have only seen on zoom. For some, it was the first time they meet another person with Lewy Body Dementia in person. I know you will hear the Lewy Love shared by those who attended in Kansas....

Welcome back Podcast Family! This week we are sharing part two of three where some of those who were able to attend the Lewy Buddy Meet-Up in Caney Kansas on September 14, 2024 share how they felt meeting people they have only seen on zoom. For some, it was the first time they meet another person with Lewy Body Dementia in person. I know you will hear the Lewy Love shared by those who attended in...

Welcome back Podcast Family! This week we are sharing part one of three where some of those who were able to attend the Lewy Buddy Meet-Up in Caney Kansas on September 14, 2024 share how they felt meeting people they have only seen on zoom. For some, it was the first time they meet another person with Lewy Body Dementia in person. I know you will hear the Lewy Love shared by those who attended in...

Welcome back! Curry shares how his summer went with his LBD causing a few hospital stays. He also shares some important information about Hospice and Narcan Nasal Spray. Four years ago we uploaded and published our first episode. It is just crazy that this will be our 138the episode and we are over 60K downloads so thank you all for your continued support and patience. Lewy sure has been a bugger...

Welcome back to part 2 with our friend Ray . In this episode, we tackle the complexities of managing Lewy body dementia, from handling tremors and balance issues to dealing with unique symptoms like a persistent runny nose. Ray shares how activities like Rocksteady Boxing have been transformative for him. We also explore various remedies for those pesky muscle cramps, including some unconventional...

Welcome Ray this week. In this episode, we tackle the complexities of managing Lewy body dementia, from handling tremors and balance issues to dealing with unique symptoms like a persistent runny nose. Ray shares how activities like Rocksteady Boxing have been transformative for him. We also explore various remedies for those pesky muscle cramps, including some unconventional and amusing methods....

 Have you ever wondered about the hidden cognitive risks tied to everyday medical procedures? Listen to our latest episode featuring Jackie Babcock-Brown, who shares her powerful journey with Lewy Body Dementia. Diagnosed at just 55, Jackie recounts how a routine colonoscopy unexpectedly led to severe cognitive complications, unraveling into a sudden and dramatic onset of Lewy Body symptoms. We em...

This week, Curry and I share  about REM Sleep Disorder and the importance of having your loved on video tape your sleep patterns.  This episode also digs into the frustrating journey of finding effective sleep aids, featuring personal experiences with melatonin, Seroquel, Clonazepam, and CPAP machines. We discuss the challenges of distinguishing between dream states and reality, and the impact of...

This week we share comments from question posted in the groups on what you would have wanted the doctor who diagnosed you to tell you about LBD - more than to just get your affairs in order? Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you...

Welcome back to the fold, where the tapestry of human experience is rich and complex, especially when joined by individuals like Carl Ladd, an award-winning educator who's bravely navigating through the turbid waters of Lewy Body Dementia. With laughter and vulnerability, Carl peels back the layers of his life to reveal the onset of severe depression and other debilitating symptoms that came...

Welcome back to the fold, where the tapestry of human experience is rich and complex, especially when joined by individuals like Carl Ladd, an award-winning educator who's bravely navigating through the turbid waters of Lewy Body Dementia. With laughter and vulnerability, Carl peels back the layers of his life to reveal the onset of severe depression and other debilitating symptoms that came...

Welcome back! This week, Curry shares with us about his recent medical it and how he is moving forward with his medicine and health care. Curry shares that the doctor signed him up for hospice and describes all that they are going to do to help him and his wife Linda now. Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get on...

Welcome back everyone! This week, we wanted to share about the Lewy Buddy and Cargiver Meet-Up happening September 14, 2024 in Caney Kansas. Gather 'round the warmth of our virtual fireside, as Linda and I, in a rare moment of quiet reflection, express our heartfelt thanks to you, our dedicated listeners. We're thrilled to extend an invitation to our first annual Lewy Buddies and Caregiv...

Bill from Central Texas never foresaw becoming an expert in resilience and caregiving, but life's unpredictable turns have made him just that. As he opens up about his and Linda's encounters with Lewy Body Dementia, you'll find yourself moved by their tale of love, challenge, and unwavering commitment. Their story is a beacon of inspiration, guiding us through the murky waters of di...

Welcome back to the podcast Sam and Tracie. Sam has LBD and shares his path to diagnosis. Tracie shares some great caregiver tips. Sam shares helpful uplifting ways he deals with his diagnosis and as Curry says...lives his best life. A big shout out to all of our supporters!! Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we ge...

Welcome to the podcast Sam and Tracie. Sam has LBD and shares his path to diagnosis. Tracie shares some great caregiver tips. Sam shares helpful uplifting ways he deals with his diagnosis and as Curry says...lives his best life. A big shout out to all of our supporters!! Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one...

When Miriam Owens bravely faced her diagnosis of Lewy body dementia at 54, it was a stark reminder that our health can take unexpected turns. Her story, rich with challenges and resilience, is the centerpiece of our latest episode, offering insights into the nuances of living with early-onset dementia. Join us as Miriam opens up about the changes she's navigated, the importance of advocating...

Welcome back! This week, it's just the two of us as we share some helpful comments on a few questions raised in the groups.... One of our fireside chats as Curry likes to call them. We discuss show timing versus fluctuations, how to deal with hallucinations and a few other topics. We know everyone can't always see all the facebook comments and questions and some people don't even us...

Part 2 Welcome back to the podcast, Teepa Snow! This time we wanted Teepa to come on and share all she has been up to as well as share all the ways you all can access her information. She discusses her PAC- Positive Approach to Care, her Teepa Talks, YouTube and more. We love partnering with her to bring educational information to you all. Enjoy this two part recording..we were having too much fun...

Welcome back to the podcast, Teepa Snow! This time we wanted Teepa to come on and share all she has been up to as well as share all the ways you all can access her information. She discusses her PAC- Positive Approach to Care, her Teepa Talks, YouTube and more. We love partnering with her to bring educational information to you all. Enjoy this two part recording..we were having too much fun talkin...

Welcome to 2024! This week, it's just Podcast Linda and Curry with a fireside chat. Curry's Lewy symptoms have been pretty bad the last three weeks or so and he wanted to share. We discuss how he has gone over 34 hours without sleep , internal tremors and scary hallucinations.  As always, Curry tries to be as strong as he can be and wants to "ride it out" as he shares he has do...

This week its just Podcast Linda reading a poem written by one of our members, Rick Phelps. Rick wrote this poem in 2016 and gave us permission to share ith our listeners. It really gives insight from someone with LBD and how he and many feel. Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know,...

This week we wanted to take a few minutes to update y'all on how we are doing. Curry's hallucinations have come back but he explains this has happened before and he was overstimulated with many visitors over the last 2-3 weeks so that is one factor that triggered his hallucinations.  One thing he unfortunately got to see that was NOT a hallucination  was the alien trying to come out of P...

Welcome Antionio and Barb G. This week, Antoni and Barb share with us their journey to diagnosis and beyond. They openly share some of Antonio's symptoms and then Antonio shares how he  still lives a good life even with LBD. Very heartwarming interview with two amazing people. Remember...We are doing this for all of us and we thank you from the bottom of our hearts. Should you wish to bless u...

Welcome care partner  Chris Gungor. We get to hear a male care partner's perspective as he cares for his love- Jamie Sue. Chris shares with us Jamie Sue's journey to get diagnosed and how they both manage her symptoms now. He also shares many helpful hints for other caregivers. Remember...We are doing this for all of us and we thank you from the bottom of our hearts. Should you wish to b...