Let's Talk About The POTS life

Dr. Marie-Claire Seeley is a registered nurse, researcher, Founder and Volunteer CEO of the Australian POTS Foundation, and one of the leading voices advancing POTS research, education, and advocacy. In this episode of Let's Talk About the POTS Life , Kelsey sits down with Dr. Seeley to discuss her journey from developing POTS after a post-viral illness in 1993 to helping change the future of...

How do you start trusting your body again after a POTS diagnosis? In this episode, Kelsey and Brit talk about the fear of doing everyday activities when your symptoms feel unpredictable. From weddings and travel to summer events and driving, they discuss practical ways to prepare, pace yourself, and build confidence as your body changes and improves. They also dive into the connection between POTS...

What is the connection between POTS, hypermobile Ehlers-Danlos syndrome (hEDS), and hypermobility? In this episode, I sit down with Dr. Cohen Solomon, board-certified pediatrician, educator, and patient living with hEDS and dysautonomia. We discuss the overlap between POTS, EDS, chronic pain, fatigue, GI symptoms, and why so many patients struggle to find answers. We also talk about recognizing ea...

In this episode of Let’s Talk About The POTS Life, we sit down with Joanna Behm, occupational therapist, dysautonomia advocate, and co-author of The Dysautonomia Workbook. Joanna shares her personal journey to diagnosis, the challenges of living with POTS, MCAS, and hEDS, and the work she does through the Dysautonomia Support Network (DSN) to help others feel more supported and informed. We also t...

If you’ve recently been diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome), it can feel overwhelming figuring out what actually helps. In this episode, we break down what to focus on early and what to avoid. We talk through common mistakes after a POTS diagnosis, including over-relying on water without enough sodium, falling for “electrolyte” products that don’t contain meaningful sal...

GI symptoms, pain clues, and why a consult matters In this episode of Let’s Talk About the POTS Life , we break down the connection between POTS and pelvic floor dysfunction and why it’s often overlooked. We cover common “beige flags” like GI issues (IBS, bloating, constipation/diarrhea cycles, gastroparesis), bladder symptoms (chronic UTIs, straining to pee), and unexplained pelvic or low back pa...

In this episode of Let’s Talk About the POTS Life , we sit down with Veronica, a POTS Life graduate now in our graduate program, to talk about her journey from simply surviving to truly living again. Veronica shares what life looked like when her symptoms were at their worst, navigating frequent episodes, overstimulation, and the day-to-day challenges that made even simple things feel overwhelming...

In this episode of Let’s Talk About The POTS Life , we walk through the philosophy behind the POTS Life treatment program and why it’s structured the way it is. We talk about the importance of a lower-and-slower approach when building exercise tolerance with POTS, how strengthening evolves over time, and why structure and progression matter when navigating dysautonomia. We also discuss how the pro...

In this Q&A episode of Let’s Talk About The POTS Life , we’re answering one of the biggest questions we get: Is The POTS Life Program safe if I have chronic fatigue syndrome, fibromyalgia, EDS, or severe fatigue? We talk through what happens if you’re mostly bedbound, how we modify when symptoms flare, and why starting “low and slow” isn’t just a phrase — it’s the foundation. We also cover: Ho...

What is it really like to love someone living with POTS and dysautonomia? In this episode of Let’s Talk About The POTS Life , my husband Cale shares what it was like watching me navigate years of undiagnosed Postural Orthostatic Tachycardia Syndrome (POTS) — the ER visits, the “normal” test results, the adrenaline dumps at night, and the slow decline that didn’t make sense. We talk openly about wh...

In this episode of Let’s Talk About The POTS Life , Cate shares her experience navigating POTS alongside Chiari malformation, CSF leaks, EDS, and multiple complex complications. What began as headaches and athletic injuries evolved into years of surgeries, overlapping diagnoses, and periods of profound disability. Cate walks us through how her symptoms were missed early on, how deconditioning wors...

In this episode of 'Let's Talk About The POTS Life,' hosts welcome Dr. Poorvi Desai, a hematologist oncologist with a unique perspective on both practicing medicine and being a patient with chronic illnesses. Dr. Desai shares her journey through medical school while managing symptoms of Postural Orthostatic Tachycardia Syndrome (POTS), Ehlers-Danlos Syndrome (EDS), and other related co...

In this episode of 'Let's Talk About the POTS Life,' Arielle shares her compelling journey with Postural Orthostatic Tachycardia Syndrome (POTS). Diagnosed at 12, Arielle recounts her initial symptoms, the challenges of finding the right medical support, and the invaluable role her parents played in her recovery. She discusses her experiences with various treatments, medications, and t...

In this episode of 'Let's Talk about the POTS Life,' the hosts welcome Ashley Schuetz, a dual-certified Family and Psychiatric Mental Health Nurse Practitioner. Ashley shares her journey from cosmetology to the medical field and her extensive experience working in the Pittsburgh Public Schools. The discussion dives into the intersections of mental health and chronic illness, particular...

In this episode of 'Let's Talk About the POTS Life,' the hosts delve into the frequently asked questions surrounding the Tilt Table Test, a crucial diagnostic procedure for POTS (Postural Orthostatic Tachycardia Syndrome). They explain what the test involves, who typically orders it, and its importance in diagnosing POTS. The discussion also covers personal experiences with the test, h...

Welcome to a special holiday edition of 'Let's Talk About the POTS Life.' In this episode, we share essential tips and tricks to navigate the holiday season while managing Postural Orthostatic Tachycardia Syndrome (POTS). We discuss the importance of maintaining routines, prioritizing exercise, staying hydrated, and eating consistent small meals. Additionally, we emphasize the signific...

In this episode of 'Let's Talk About the POTS Life,' Lindsey, a graduate of the POTS Life program, shares her journey from a sudden onset of symptoms to diagnosis and eventual recovery. Diagnosed post-Thanksgiving 2023, Lindsey recounts her struggles with various symptoms, misdiagnoses, and numerous doctor visits before finding the POTS Life program. Lindsey discusses her initial skept...

In this episode of 'Let's Talk about the POTS Life,' the hosts discuss the importance of balancing rest and activity for those living with Postural Orthostatic Tachycardia Syndrome (POTS). The episode highlights why excessive rest can be detrimental and provides practical tips for gradually increasing activity levels. They share real-life examples of patients who have improved their conditions by...

In this episode of 'Let's Talk About the POTS Life,' we dive into the intersection of living with POTS and planning a Disney vacation. The hosts share personal experiences and practical advice for preparing, traveling, and enjoying Disney while managing POTS symptoms. Topics include packing essentials, hydration strategies, handling stress and adrenaline, and ensuring you stay on track with your h...

In this Thanksgiving episode of 'Let's Talk About the POTS Life,' the hosts share practical tips for managing the holiday season while living with POTS. They discuss the importance of eating small, balanced meals throughout the day, staying hydrated, and maintaining a manageable routine. They also highlight the need for moderation, especially when it comes to alcohol, and the value of communicatin...

In this episode of 'Let's Talk About the POTS Life,' the hosts discuss why recumbent exercise is a fundamental part of the POTS Life program. They explain the scientific reasoning and practical benefits behind starting with recumbent biking instead of more traditional forms of exercise. They also discuss how the program can be customized to meet various needs, answer common questions a...

In this episode of  Let’s Talk About The POTS Life , host Dr. Kelsey Botti and Britney sit down with Dr. Erin Nance, an orthopedic hand surgeon based in New York City, better known to her close to 1M followers as  @littlemissdiagnosed . Dr. Nance shares how her personal journey with chronic illness inspired her to raise awareness about commonly misunderstood and misdiagnosed conditions—including ...

In this episode of Let’s Talk About The POTS Life, we sit down with Megan, a nurse and recent POTS Life graduate, to trace her path from years of confusing symptoms and misdiagnoses to clarity, structure, and sustainable progress. Megan shares what it was like to “look fine” on the outside while battling debilitating episodes after routine workouts, how she rebuilt with a low-and-slow plan, and th...

In this episode of 'Let's Talk about the POTS Life,' we welcome Nicole, a POTS Life graduate nearing her one-year post-grad anniversary. Nicole shares her journey, from her initial misdiagnosis and struggles through visits to multiple specialists to her eventual POTS diagnosis. She highlights the role of her mom in finding the right treatment and her gradual improvement through physica...

Welcome to Season 2 of Let's Talk About The POTS Life! In this episode, Kelsey and Brit unpack the “October Slide” — that seasonal dip so many POTS patients feel as temperatures shift. They share personal experiences and practical tools to help you manage symptoms during this time, from hydration and gentle exercise to self-compassion and realistic expectations. Tune in to hear how they naviga...