Let’s talk about epilepsy

PLEASE NOTE: Epilepsy is a highly individualised condition, and each person’s experience can vary significantly. The information, experiences, and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult a qualified healthcare provider for personalised medical advice and support tailore...

In this episode, host Dr Lara Carr is joined by Professor Helen Cross and Tanisha from the Youth Voice Network to talk about epilepsy brain surgery. They explain when surgery might be considered, what the process involves, and how it can change a young person’s life, alongside real reassurance and support for families. NOTICE: Epilepsy is a highly individualised condition. The information, experie...

In this episode, Ree is joined by Milla, a young person with epilepsy, and her brother Harry to talk honestly about sibling experiences. They share what it’s like growing up with epilepsy in the family, the emotional impact on siblings, and why support and understanding matter for everyone. NOTICE: Epilepsy is a highly individualised condition. The information, experiences, and views shared in thi...

In this episode, we introduce Harder to Manage Epilepsy, a new podcast series from Young Epilepsy exploring the challenges faced by children, young people and families living with epilepsies that don’t respond to medication. Around 1 in 3 young people with epilepsy continue to have seizures despite treatment. These epilepsies are often described as harder to manage or drug‑resistant and can come w...

In this episode, we talk about epilepsy and driving, and what it means for young people. Host Ellie is joined by Chris McCarthy and Elina from Young Epilepsy’s Youth Voice Network to explore the realities of learning to drive with epilepsy - from excitement and hope to frustration, disappointment, and finding new routes to independence. We unpack the DVLA rules around driving with epilepsy, includ...

We explore what young people wish they’d known when they were first diagnosed with epilepsy. Host Olivia sits down with Jasmine and Renell from the Youth Voice Network to share honest stories about the moment of diagnosis, the fears and misconceptions they faced, and the journey to independence. They discuss coping strategies, the importance of community, and how to break down stigma. This episode...

We dive into the emotional journey of getting an epilepsy diagnosis. Host Kirsten McHale chats with Professor Mark Richardson, Dr Colin Dunkley, and Spencer from the Youth Voice Network. They talk about the diagnosis process, the challenges families face, and the cool new tech that's changing epilepsy care. This episode is packed with expert advice and real-life stories to help and empower young p...

This episode explores the emotional journey of getting an epilepsy diagnosis for children and young people. Host Kirsten McHale speaks with Sarah, who shares her personal experience as a parent navigating her daughter Lexi’s diagnosis. It’s all about sharing stories and support to help others feel less alone. IMPORTANT: It is important to understand that epilepsy is a highly individualised conditi...

In our first LIVE episode, renowned broadcaster, Edith Bowman hosts a powerful panel discussion with Netflix and Hollyoaks actor Ellie Henry, Fashion PR Hum Fleming, and student Mariam Hussain who share their personal stories of diagnosis, school, work, memory loss, and the importance of support networks.  We also explore the impact of epilepsy on mothers as BBC F1 host Jenny Gow, Dr Laura Cunnane...

In this episode, we break down what seizures are and what they can look like. With help from healthcare professionals and real-life stories, we explain the different types of seizures in a way that’s easy to understand. Whether you’re a young person with epilepsy or a parent or carer, this episode gives you clear, helpful info and expert advice to support you on your journey.   PLEASE NOTE: Managi...

We talk about what it’s really like to be a young person with epilepsy. We look at why some people feel alone, how to find support, and how building a community can help. We also talk about bullying, mental health, and how to get help when you need it.   In this episode: Feeling Alone: Why so many young people with epilepsy feel isolated, and what can help. Building Community: How making friends a...

We look at new medicines that are changing epilepsy treatment. We also talk about medication shortages and share NHS advice for health professionals on how to manage these challenges, especially around medications like Valproate. In this episode: Advances in Epilepsy Medications: Discussion on the most exciting emerging medicines in paediatric epilepsy care and their potential impact on patient ou...

We chat with Sophie Bennett about the MICE project, which focuses on mental health support for children and young people with epilepsy. Sophie, a clinical psychologist and researcher, shares how mental health support can make a big difference. We know that getting an epilepsy diagnosis can be tough, and this episode offers expert info and connection through shared experiences. NOTICE: It is import...

We hear what it’s really like to be part of the Youth Voice Network at Young Epilepsy. Jasmine chats with Milla, who shares their personal story and how being involved has helped them feel more confident and connected. We also explain what the Youth Voice Network is, how it works, and how young people can get involved to make sure their voices are heard and their experiences shape the future of ep...

Moving from children’s to adult healthcare can feel like a big step – but you’re not alone. In this episode, we chat about what this transition really means for young people with epilepsy, share real stories, and give you practical tips to help you feel confident and in control. A special thank you to the sponsors of this episode, Nutricia Ketogenics. Find out more: https://www.nutricia.com/   Ple...

This episode focuses on how epilepsy can affect mental health and wellbeing. We explain why this happens and how young people, parents, and carers can get support. There are also tips for healthcare professionals on how to include mental health care in epilepsy treatment. NOTICE: It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epi...