Into The Invisible

Join Rowan on Into The Invisible as he chats with Tiffany Spencer, an occupational therapist from Western Kids Health. Tiffany our in-house OT, currently on maternity leave, shares valuable insights into how occupational therapy supports kids and teens with invisible conditions like chronic pain and fatigue. Discover practical advice on school accommodations, individualised education plans (IEPs),...

In this episode of 'Into The Invisible,' the hosts discuss functional neurological disorders and shift focus to the personal story of Tim, a 17-year-old diagnosed with Perthes disease. Tim shares his experiences, from the confusing onset of symptoms at age 14, through his diagnosis, and his subsequent physical and mental challenges. He highlights his journey in sports, particularly netball...

In this episode of 'Into The Invisible,' host Rowan and co-host Phoebe Carrington-Jones, a clinical psychologist from Western Kids Health, dive into the complexities of Functional Neurological Disorders (FND). Phoebe, with her experience on the WKH Complex Care Clinic. The episode includes an overview of FND, its symptoms, and the history of its understanding in the medical field. Phoebe a...

In this episode of 'Into The Invisible,' Grace, also known as Gracie, discusses her experiences living with Marfan syndrome and Ehlers Danlos syndrome. As a 15-year-old, Grace opens up about the daily challenges and the misconceptions surrounding her conditions. She recounts her journey from early days of wearing a scoliosis brace and special leggings to the emotional toll of dealing with...

In this episode of 'Into the Invisible,' Matt, a high school student, discusses his experience living with chronic pain and related hypersensitivity and hypermobility. He describes his journey as a rollercoaster and shares how he has learned to manage his condition through acceptance and understanding the correlation between his mental state and his pain. Matt also talks about his involvem...

In this episode of 'Into The Invisible', host Rowan is joined by Charlotte, a high school student living with a hypermobility condition and chronic pain. Recorded in May, this episode raises awareness for Ehlers Danlos Syndrome (EDS) Month. Charlotte discusses how sports like hockey and surfing help her manage both physically and mentally. They delve into the challenges of balancing school...

In this episode of 'Into The Invisible,' we introduce Caitlin, a 24-year-old, who joins the conversation to discuss her experiences of living with juvenile idiopathic arthritis, Ehlers-Danlos Syndrome (EDS), autism, and ADHD. Caitlin shares valuable insights into managing chronic pain and mental health, the importance of nature, and her academic pursuits in conservation and wildlife biolog...

In this episode of 'Into The Invisible,' host Rowan sits down with CJ, who shares their personal journey with Functional Neurological Disorder (FND). From the initial confusion and lack of diagnosis to eventually overcoming mobility challenges, CJ's story is a compelling look at perseverance and resilience. CJ also discusses their experience using mobility aids in school, facing bullying, and find...

Ashish's Journey In this episode, we dive into Ashish's inspiring journey with juvenile arthritis. Diagnosed six years ago, Ashish recounts the challenges of managing an invisible condition from adolescence into adulthood. He discusses the physical and emotional impact, the struggle for a diagnosis, and the mixed emotions following his diagnosis. Through candid stories, Ashish shares how h...

In the debut episode of 'Into The Invisible,' the hosts introduce the podcast dedicated to exploring unseen health conditions. Charlotte, who designed the inclusive logo, explains the thought process behind its creation. We discussed experiences of wanting to be seen and how the podcast aims to provide a platform for sharing stories and information, especially for teenagers and young adult...