InsideSDS

Inside SDS

Health EN ↓ 3 episodes

Please join Nicole and Michelle for our new show, Inside SDS! We are still the same two moms, working to connect patients, families, caregivers, and support members with clinicians, researchers, and knowledgeable professionals dedicated to supporting those with SDS. Shwachman-Diamond Syndrome is a rare disorder that affects only 1 in every 150,000 births. It is characterized by bone marrow failure, pancreatic insufficiency, and skeletal abnormalities. Due to its variable presentation, it is likely underdiagnosed.

Author

InsideSDS

Episodes

Registry Recap with Dr. Kasiani Myers 23.03.2026 59:18

Please join Nicole and Michelle for our new show, Inside SDS! This show featured Dr. Myers, Practicing out of Cincinnati Children's Hospital, she is one of the amazing doctors who works tirelessly for the SDS Registry! The Shwachman-Diamond Syndrome (SDS) Registry is committed to accelerating the pace of discovery for treatments and therapies of SDS. The Registry provides access to clinical expert...

General and Bone Marrow Failure Dentistry with Dr. S. Thikkurissy (Dr. Bobby) 28.10.2025 47:58

Please join Nicole and Michelle for our new show, Inside SDS! We are still the same two moms, working to connect patients, families, caregivers, and support members with clinicians, researchers, and knowledgeable professionals dedicated to supporting those with SDS. This show will feature Dr. S. Thikkurissy (Dr. Bobby), a Pediatric Dentist from Cincinatti Childrens Hospital. Dr. Bobby is a pediatr...

SDS Consensus Input with Dr. Jane Koo 25.08.2025 54:27

We're Back! Please join Nicole and Michelle for our new show, Inside SDS! We are still the same two moms, working to connect patients, families, caregivers, and support members with clinicians, researchers, and knowledgeable professionals dedicated to supporting those with SDS. Our first show features Dr. Jane Koo, a Pediatric Hematologist and Bone Marrow Transplant doctor from Cincinatti Children...