In Sixteen Years of Endometriosis

Updated 10/2023. Continuing our talk on hormones from the previous episode, Amy and Brittany talk about —how stress, gut health, and exercise habits can affect our hormones 🔗Resources🔗 Clickable links at www.insixteenyears.com/episode70 🔗Hormones - from my website ☀️CONNECT WITH AMY☀️ Instagram @in16yearsofendo Website: www.insixteenyears.com Like my show? Please rate it or leave a review! Supp...

Updated 10/2023. Amy and Brittany talk about —the role hormones play in various bodily functions —the basics of steroid and nonsteroid hormones —the importance of ovulation in relation to progesterone and overall health and how to know if you are ovulating 🔗Resources🔗 Clickable links at www.insixteenyears.com/episode69 🔗Hormones - Overview on my website. 🔗Menstruation in Girls and Adolescents:...

Amy talks to Dr. David Redwine about —endometriosis treatments —excision surgery —endometriosis recurrence 🎤WHO IS DR. DAVID REDWINE?🎤 Until his retirement in 2012, Dr. David Redwine headed the world-renowned and award-winning Oregon Institute of Endometriosis at St. Charles Medical Center, Bend, Oregon, treating thousands of people with endometriosis via excision surgery from all across the US,...

Amy speaks with Dr. David Redwine about —why he considers Sampson’s theory of retrograde menstruation the most dangerous theory in the history of medicine —what endo does in the body —obstacles to endometriosis treatment 🎤WHO IS DR. DAVID REDWINE?🎤 Until his retirement in 2012, Dr. David Redwine headed the world-renowned and award-winning Oregon Institute of Endometriosis at St. Charles Medical...

Updated 1/2024. CW: Eating for comfort. Amy and Brittany examine their relationship with food. We talk about: —the general and common practice of “eating our feelings” and using food to soothe our feelings instead of actually being with them —the importance of learning to be with our feelings —some tips for paying attention to food cravings to see if there is actually an “emotional craving” behind...

Updated 1/2024. CW: fear of food, reluctance to eat, being obsessive and controlling with food. Amy and Brittany talk about: —how for many with endo, eating can be a struggle as it may lead to digestive symptoms, constipation, diarrhea, nausea, pain, fatigue, and other horrible symptoms. —how for Amy, eating is one of her biggest challenges and the source of many flares, and that led to her having...

Amy and Brittany speak with Lori Johansson about: —gender and gender identity —ways to be more inclusive in our endometriosis advocacy. 🎤WHO IS LORI JOHANSSON?🎤 Lori is a nonbinary endo advocate with both endo and adeno, and as part of their position at public university, they facilitate a community engaged learning course that incorporates discussion around social identities, intersectionality,...

Updated 9/2023. Amy and Brittany talk about: —keys to relationship success (especially romantic relationships) and what Amy learned from her divorce. —how we are ALL worthy of love —how having endo doesn’t doom a relationship, even if we can’t be intimate with our partner, we need to be taken care of at times, or we have other situations we may find ourselves in. ☀️CONNECT WITH AMY☀️ Instagram @in...

Updated 4/2023. Amy and Brittany talk about our own journeys of searching for peace. —Is it possible to find peace with the pain, the symptoms, and the countless ways endo devastates our lives? —Where we are in terms of acceptance and what benefits it has brought us. —While there is no ‘correct way’ to find peace, we give some ideas on how a person could start, especially if the idea of acceptance...

Amy speaks with Wendy Bingham DPT about —what different cases of endometriosis in animals could mean for the origin of the disease —the association between endometriosis and cardiovascular disease. 🎤WHO IS WENDY BINGHAM DPT?🎤 Wendy is the founder of the non-profit ExtraPelvic Not Rare, which is dedicated to starting conversation about extrapelvic endometriosis, while providing correct, up-to-dat...

Amy speaks with Wendy Bingham DPT about: —why the definition of endometriosis desperately needs an overhaul and the proposed definitions from the scientific community for it. —the problems with the current definition of extrapelvic endo. —the ICD (International Classification of Diseases) codes and why these negatively affect our ability to truly know the statistics of extrapelvic endo 🎤WHO IS WE...

Amy speaks with Heather Guidone about: —excision surgery —the standard of care —obstacles to treatment, and what endo actually does in the body. 🎤WHO IS HEATHER GUIDONE?🎤 Heather Guidone is a Board Certified Patient Advocate, and Program Director of the Center for Endometriosis Care in Atlanta, GA. Heather is responsible for the CEC’s comprehensive multidisciplinary care program, clinical resear...

Updated 1/2023. Amy and Brittany talk about: —how endometriosis is different from the endometrium in terms of its estrogen and progesterone receptors. —how the receptors directly affect the biological processes of the endometriotic tissue, causing it to act differently than the endometrium does 🔗RESOURCES🔗 For clickable links to the resources below, go to www.insixteenyears.com/episode57 🔗Is en...

Updated 4/2023. Amy and Brittany talk about —some ways that endo and the endometrium differ —why this is so important to know in terms of treatment options 🔗RESOURCES🔗 For clickable links to the resources below, go to www.insixteenyears.com/episode56 🔗Bulun SE, Yilmaz BD, Sison C, et al. Endometriosis. Endocr Rev. 2019;40(4):1048-1079. doi:10.1210/er.2018-00242 🔗Aude Béliard, M.D., Ph. D., Agn...

Updated 1/2024. Amy and Brittany talk about —some of the roles that estrogen can play in endometriosis —why mouse endometriosis models are problematic —myths that everyone with endometriosis is estrogen dominant or that medical or natural menopause will treat the disease 🔗RESOURCES🔗 For clickable links to the resources below, go to www.insixteenyears.com/episode55 🔗Bulun SE, Monsavais D, Pavone...

Updated 1/2024. Amy and Brittany each following what’s typically considered a restrictive diet. We talk about some of the language and mindset shifts that have helped us —to stop hating the dietary choices we follow —feel empowered —have a more pleasant experience with eating ☀️CONNECT WITH AMY☀️ Instagram @in16yearsofendo Website: www.insixteenyears.com Like my show? Please rate it or leave a rev...

Updated 2/2023. Amy and Brittany talk about feeling like a burden. We talk about: —how we find ourselves apologizing often and feeling guilty when we ask for help —why we might feel this way —why we are NOT a burden and how to learn to appreciate our value ☀️CONNECT WITH AMY☀️ Instagram @in16yearsofendo Website: www.insixteenyears.com Like my show? Please rate it or leave a review! Support me by b...

Updated 2/2023. Amy and Brittany talk about sleep: —how hard it can be to sleep, especially if we have health problems —why sleep is so important 🔗RESOURCES🔗 For clickable links to the resources below, go to www.insixteenyears.com/episode52 🔗Insomnia Until it Hurts. The role of sleep deprivation in chronic pain, especially muscle pain 🔗Bennett RM, Jones J, Turk DC, Russell IJ, Matallana L. An...

Updated 2/2023. Amy and Brittany talk about gratitude: —how it can change the way we feel about our lives —how it can be hard to practice when we are suffering from endo challenges —how books, movies, and connecting with each other can help us find gratitude, inspiration, and strength ☀️CONNECT WITH AMY☀️ Instagram @in16yearsofendo Website: www.insixteenyears.com Like my show? Please rate it or le...

Updated 4/2023. Part 4 - But Doctor, It’s Not Psychosomatic! Amy and Brittany talk about: —‘medically unexplained symptoms’ —mental health referrals and stereotypes around being distressed about symptoms —results from a 2018 review which looked into how gender bias and gender norms have affected medical treatment 🔗RESOURCES🔗 For clickable links to the resources below, go to www.insixteenyears.co...

Updated 2/2023. Amy and Brittany discuss one of Amy's worst flares in public. We talk about: —how Amy was mortified by what had happened —how her lack of self-compassion worsened an already traumatic and unbearable situation —why self-compassion is important and how to practice it ☀️CONNECT WITH AMY☀️ Instagram @in16yearsofendo Website: www.insixteenyears.com Like my show? Please rate it or leave...

Updated 4/2023. Part 3 - Why Is Pain Dismissed in Women and People Assigned Female at Birth? Amy and Brittany talk about: —assumptions and stereotypes specifically related to women, people AFAB, and illness —a brief overview of the history of hysteria and some ways illness in which women were viewed culturally in the past 150 years —a 2018 theory-guided literature review which looked into how gend...

Updated 2/2023. Amy and Brittany talk about the rASRM staging system, which classifies endometriosis into stage 1-4. We discuss: —how this staging system has many limitations —two other classification systems: the EFI and the Enzian system 🔗RESOURCES🔗 For clickable links to the resources below, go to www.insixteenyears.com/episode47 🔗The Stages of Endometriosis explained by Dr. Cook – Video 🔗E...

Updated 4/2023. Part 2 - Why Science Knows Less About the Bodies of Women and People Assigned Female at Birth. Amy and Brittany talk about: —why less is known about disease presentations and side effects for medications for women and people AFAB —some of the federal regulations in the US that led to this —some ridiculous examples of studies that failed to include people AFAB in their research 🔗RE...

Today, Amy speaks with Teniola Ongunro about racial bias: —how it can be one of the most detrimental and undercutting barriers for BIPOC in getting proper diagnosis and treatment —how doctors may have implicit and explicit biases —some ways it can affect healthcare and what we can do about it 🎤WHO IS TENIOLA ONGUNRO?🎤 Teniola Ongunro is an endo warrior born in Nigeria who hosts the podcast ‘Not...